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Old 03-27-2009, 05:26 AM #1
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
Question Is this a good sign with CIDP, or just part of it

Hi there,
I haven't been formally dx'd yet, but testing is underway, and I'll be amazed if I don't have CIDP (14 yrs. worth!).

That being said, I have got some muscle wasting in my hands, feet, and legs, and lack of vibration sense in several places. 40mg's of Prednisone per day for the last month as meds, and at Mrsd's suggestion (thank you VERY MUCH) I started 2 grams of Acetly Carnitine a few days ago, in case my increase in symptoms is due to platinum toxicity from an aneurysm coil I had done just before this exacerbation.

Tonight, I had the pins and needles like when a foot that has fallen asleep starts to wake up, and my feet were actually WARM for a change. The pin/needle sensation lasted just a few minutes, but I'm wondering if that means my foot is waking up?

Can I be encouraged by this? or is this just the normal eb and flow of the symptoms?

Thanks.
__________________
Becky

Last edited by ras1256; 03-27-2009 at 05:28 AM. Reason: typos
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