[Jolina]

Originally Posted by mrsD

I'd do the B12 correctly and wait 3 months to see what happens.

Do the tests the Neuro ordered and see what shows up.

If you do too many things at once you won't know which is working or not. You can watch your diet in the meantime and avoid sugar. That makes burning much worse for some people.

You can do a trial of gluten free and see if that works. Naturopaths often try to sell you lots of supplements to start, and you'd want to see how the B12 works alone, in the beginning.
You can always go later IMO.

You can have your doctor test your Vit D level too and correct that if it is low. Low D can cause problems.

Question on the b-12. my healthfood store has a coenzyme Lonzenge that is 2500mcg methylcobalamin. will that work the same if I take two.?? or does it have to be a pill

[mrsD]

That's okay....you will probably pay more for it that way, but it is not that expensive after all.

You can chew them up and swallow-- on an empty stomach. That part is very important.

[californiafriend]

Hey guys, ive been reading these posts and since everyone here seems so knowledgable about B12 i was hoping you might be able to answer a question I had blood work done that showed that i was low RBC count and high MCV and MCH which my dr. thought i could be B12 deficient but it just so happened i started taking a high sublingual B12 suppliment the day that i took the blood test which made my b12 levels over 1400H! So my question is, is it possible that (if i was B12 deficient) that the levels could move up that high after just a few doses of a b12 suppliment?

[MelodyL]

Originally Posted by californiafriend

Hey guys, ive been reading these posts and since everyone here seems so knowledgable about B12 i was hoping you might be able to answer a question I had blood work done that showed that i was low RBC count and high MCV and MCH which my dr. thought i could be B12 deficient but it just so happened i started taking a high sublingual B12 suppliment the day that i took the blood test which made my b12 levels over 1400H! So my question is, is it possible that (if i was B12 deficient) that the levels could move up that high after just a few doses of a b12 suppliment?

Hi.

you said:

" i started taking a high sublingual B12 suppliment the day that i took the blood test"

So that's ONE dose, right?

you also said: " is it possible that (if i was B12 deficient) that the levels could move up that high after just a few doses of a b12 suppliment?"

So was it ONE dose, or a FEW doses?

I'm not an expert, Mrs. D is the expert, but I really don't think that ONE dose or a few for that matter, of an oral B-12 supplement could get you to that number.

I'm sure Mrs. D will come along and give us the correct info.

I'm curious as to what the answer actually is.

I'm still learning.

lol Melody

[Linda1956]

Hi there everyone i was only diagnosed having a low b12 deficiency when i had surgery although that wasnt the cause im told but as time went on i got more tired to the stage my gp done a few blood tests to prove i had this auto immune condition.

Im told i dont have pernicious anaemia but just a very low b12 so my gp had put me on 50mcg cyanocobalamin tablets, ive a course of 50 but now been on them since 27/4 and feeling no better, is this normal, ive to have another blood test done next week just to see how things are.

Will i have to end up with injections if the tablets dont work or is the injections only for people with pernicious anemia

Any advice will be useful because im new to having this condition

Linda

[mrsD]

50mcg orally is not enough IMO. You will need 1000mcg to 5,000mcg orally at least. Only 1-10% is absorbed orally. So take this on an empty stomach to get the best results.

Please read the beginning of this thread for dosing oral, and also choosing the active form methylcobalamine instead of Cyano.

[MelodyL]

Originally Posted by mrsD

50mcg orally is not enough IMO. You will need 1000mcg to 5,000mcg orally at least. Only 1-10% is absorbed orally. So take this on an empty stomach to get the best results.

Please read the beginning of this thread for dosing oral, and also choosing the active form methylcobalamine instead of Cyano.

50 is absolutely NOTHING. You are not absorbing 50. I have been taking 5000 for over 2 years now.

Doctors don't know this, or they don't want to know this.

Listen to what everyone says on this forum. You will learn quite a bit.

All the best

Melody

[numbfoot]

Been taking 1000mcg per day for a year or so now.
Havent had a test for a while but last one was around 650.
Thought I would step it up & get some Jarrows 5000.
Nothing over 1000 available over the counter in this country, so have just placed an order with iHerb.com
Be interesting to see it arrives ok.

[capewind]

Originally Posted by mrsD

50mcg orally is not enough IMO. You will need 1000mcg to 5,000mcg orally at least. Only 1-10% is absorbed orally. So take this on an empty stomach to get the best results.

Please read the beginning of this thread for dosing oral, and also choosing the active form methylcobalamine instead of Cyano.

I wonder in your opinion if a B12 of 320 pg/ml could be low for someone with PN? PCP say level is normal! I am not convinced. I know about your info and agree on dose an type plus empty stomach. Any feedback would be helpful! Thanks. P.S. Have serious burning stinging pain in feet, toes and now hands.

[kwinkler]

Originally Posted by californiafriend

Hey guys, ive been reading these posts and since everyone here seems so knowledgable about B12 i was hoping you might be able to answer a question I had blood work done that showed that i was low RBC count and high MCV and MCH which my dr. thought i could be B12 deficient but it just so happened i started taking a high sublingual B12 suppliment the day that i took the blood test which made my b12 levels over 1400H! So my question is, is it possible that (if i was B12 deficient) that the levels could move up that high after just a few doses of a b12 suppliment?

It would all depend on timing. If you took the SL B12 fairly close to the blood draw, it would falsely elevate the value. I have experienced this with get my niacin levels checked. It is actually short lived in the blood in detectable levels. If I took it the night before it would be below the detectable level. If I supplemented in the AM it would be detected. I usually hold supplementation for a day or two prior to testing to get a more accurate measure of what my true levels are.