[Marie33]

[QUOTE=MelodyL;1103670]Hi again. Forget about anything that says Cyanocobalimin. You want to get Methylcobalimin. I myself have taken 5000 every single morning for about 7 to 8 years now. I buy it off the internet at Puritan's Pride. They give really good deals. Like buying 2 bottles and getting 3 for free. I do not know if they ship to another country. But I do know that Methylcobalimin Or Methyl B12 (as we call it) is the kind of B-12 that you should be putting in your body. It nipped my neuropathy symtoms for good.

If you take cyanocobalimin, your body converts it into Methyl and you won't be getting a great deal. It's a large molecule. That's why I take 5000 every morning, on an empty stomach. It dissolves under my tongue.

I have had no side effects and I sleep quite well. And if you run this by your doctor be prepared to hear "Oh, I don't believe in B-12 therapy, it's a lot of nonsense, etc. etc". Remember, doctors practice medicine, they do not practice nutrition. We get B-12 from meat. We'd have to eat A LOT OF MEAT to get a good amount. I don't eat meat. Even if I did, I would continue to take my Methyl B-12 each and every day. Others will come along and advise you also. All the best

Hi MelodyL
I like your post. My B12 blood level is 1500. I still take 1000 mcg Methylcobalimin as a maintenance. Your right about Doctors, My Neurologist always says: My B12 is too high , stop taking it. But after reading posts on here for the last two years I am convinced its ok to keep taking it. Unfortunately I cant say it has helped my small fiber neuropathy symptoms (yet!).
Could you please explain further what you mean by it nipped your neuropathy symptoms for good.That is wonderful! Did you have a vit B12 deficiency? Was that your cause? Mine is still Idiopathic. Still looking for a cause and something good , supplements or meds to help with this pain.
Thank you in advance..

[razor1951]

Has anyone tried Metanx???????

[mrsD]

Originally Posted by razor1951

Has anyone tried Metanx???????

If you search the word "metanx" in our search engine you will find many discussions about it.

Unfortunately, most people are advised to take it with food, which will greatly diminish or prevent absorption of the B12 orally.
Folate is typically not a huge player in PN either.

So while it looks like a good idea on paper, it must be done properly to show effects. It will only work, for those who are
deficient in those nutrients.

[Neuroproblem]

folate helps with the conversion of cyanocobalamin. usually products will indicate cyano or methyl.

[Malia]

I've really got to read more on this thread Mrs. D. I was reading one can OD on the B's and I may just be one. I take the Benfothiamine and the Jarrow B complex and then a spritz of B-12 a couple of times a day... but I must say that my PN is feeling better than in years. I really hope for some healing of the nerves in my lower legs and feet... course I don't let that stop me... I am a real work horse but am getting older and have to be more careful of my gallop. I was tested awhile ago...(years) May be a good time to do it again...Any personal experience of taking too much B's? Aloha.

[mrsD]

Taking too much B6 affects some people but that is not common.

But one B-right daily
is not that much. If you feel better, that is good..and something to keep going.

[MelodyL]

Originally Posted by Malia

I've really got to read more on this thread Mrs. D. I was reading one can OD on the B's and I may just be one. I take the Benfothiamine and the Jarrow B complex and then a spritz of B-12 a couple of times a day... but I must say that my PN is feeling better than in years. I really hope for some healing of the nerves in my lower legs and feet... course I don't let that stop me... I am a real work horse but am getting older and have to be more careful of my gallop. I was tested awhile ago...(years) May be a good time to do it again...Any personal experience of taking too much B's? Aloha.

Aloha. I have been taking 5000 each morning of the Methyl B-12. To say it kicked my PN's butt is putting it mildly, but what i really noticed is that I am able to take care of my 67 year old disabled husband (who just got home from almost a month of being in hospitals and nursing homes due to getting his blood pressure under control and not fainting anymore (which we have accomplished).

I make all appointments, I get after him to do his exercises. I go up and down stairs (and I have bad knees) and my memory is sharper than when I was in my teens.

I attribute this all to Methyl B-12. Yesterday (which was his last day in the nursing rehab facility), I gathered all the residents around the computer in the Day Room and I put on videos from youtube that I knew they had never seen in their life. I had them hear Alexander Graham Bell's Voice (that's up on youtube). One of the people wanted to see the Magruder Film on JFK. I brought that up. The best was when I brought up an old I've got a secret show from the late 50's and there was a 96 year old guest whose secret was "I saw John Wilkes Booth shoot Abraham Lincoln". You should have seen the faces on those ladies. They are all in their 80's. I taught some how to use the mouse and bring up youtube. Just simple stuff.

I left them watching Liberace and Frank Sinatra videos. They were just amazed. And I can still type 146 words a minute (even with arthritis).

I am convinced that if I didn't take 5000 of Methyl B-12 I could NEVER do what I do, (especially take care of my husband who has had Peripheral Neuropathy (idiopathic) for almost 25 years.

So in my case, Methyl B-12 was a life saver with absolutely no ill effects or side effects. In all honesty, I also grow my own food in my kitchen (I'm a sprouter, look that up and you'll see what I eat). It's really cool

Take care, Melody

[Marie33]

[QUOTE=Malia;1136946]I've really got to read more on this thread Mrs. D. I was reading one can OD on the B's and I may just be one. I take the Benfothiamine and the Jarrow B complex and then a spritz of B-12 a couple of times a day... but I must say that my PN is feeling better than in years. I really hope for some healing of the nerves in my lower legs and feet... course I don't let that stop me... I am a real work horse but am getting older and have to be more careful of my gallop. I was tested awhile ago...(years) May be a good time to do it again...Any personal experience of taking too much B's?
Hi Mailia
Glad to hear the B's are helping with your pain! How much Bentofamine (B1) and B12 do you take? I also have a normal-high B12 level. my last blood test (4 wks ago) was 1050. PPC said it was too high ,but I still Supplement with 1000 mcg Methylcobalamin a day. Is there any B6 in your Jarrow B Complex? As Mrs D stated , B6 is not good for everyone. I was told to stay away from the B6 because of my SFN. I still get bad pain and burning in my lower legs and feet. I take 300 Lyrica , its not working. Was thinking about increasing my B's again without the B6. What can of Neuropathy do you have and do you have a cause for your pain. Do you take any meds with your B's?
I hope you continue to "heal"..

[rec60661]

I was diagnosed last week with PN based on symptoms and a nerve test. It has come on suddenly although I have had slight numbness in my feet for over ten years. I think the combination of a daily dose of Protonix and Metformin* caused a b12 deficiency ... and now with what I've read here ... I'm pretty sure that's the cause. I'm not diabetic and I WAS very fit, so I'm hoping that I can restore my B12 levels and stop the progression of nerve damage.

Of course, 3 out of 3 doctors agree that my "normal" B12 serum level precludes a B12 deficiency as the cause of my symptoms. They also all agree that there's nothing they can do.

BUT ... armed with the information that each of you so generously shared ... I'm going to the 24-hour Walgreens to buy a bottle of Methyl B12 (and will take on an empty stomach!).

Any advice on B12 brands or issues I need to know will be gratefully appreciated! Also - are shots better? My situation is pretty bad ... significant impaired gait, twitching and jumping muscles in legs and arms and feet are totally "gone".

[rec60661]

Mrs. D - you are absolutely amazing at your knowledge and your willingness to help others. So many of us are scared and confused and getting absolutely no help from doctors who really are very good, but so misinformed on b12!

I will stay the course and take your advice by adding AC. To combat weakness I just bought 5 pounds of bananas!! Will work on increasing potassium and will I will look into taking a supplement as well.

If it helps anyone out there I do think that protein is also very important. I have no appetite but it is easy to hard boil a couple of eggs each day and take them with me to work.

Once again, thank you sincerely. I was down in the dumps but you have lifted me up! If all it takes is patience ... I can definitely stay the course.