[zeeclass6]

Thanks, Mrs. D. I appreciate the advice on chewing the B-12. It takes SO LONG for it to dissolve!

Do you think that my reaction to the cyano B-12 has any relationship to the way I react to caffeine and other stimulants? I've been trying to figure out why, over the past 10 years, I have become intolerant to caffeine and stimulant drugs like Sudafed. I just can't tolerate more than a tiny tiny amount of caffeine. A cup of coffee practically gives me a panic attack....so much anxiety. I have asked my doctors about this but they have no idea. I used to be able to drink coffee and take Sudafed, but not anymore. It's perplexing and makes me think very carefully about medications.

Originally Posted by mrsD

Some people do not do well on the cyano...something to do with cleaving off the cyanide portion.
Cyano has to be methylated in the body to methylB12 before our enzymes can use it properly.

You can chew up the Jarrow and swallow..just do it on an empty stomach.
I switched to Puritan's Pride...the tablets are finer, smaller and easier on the mouth. In fact they pulverize in the bottle and I save the powder and take that too!

[mrsD]

I really don't think your reaction is like caffeine.

When doctors test people under the tongue with substances they cannot tolerate...the do get reactions. (this practice is not accepted by all doctors however).

But the cyano is what is triggering you, not the cobalamin part IMO.

Try swallowing instead of under the tongue. There may be no reaction that way.

[Chemar]

Originally Posted by SqueakyWheel

I'm a new member and can't figure out how to post a question except to reply to one. Can someone plz tell me? I also want to make sure I'll be notified when a reply is posted.

Hi and welcome

you do a new thread the same way as a reply, except you just go to the forum you want to make it in and then you will see NEW THREAD near the top left of the page so for example this forum
http://neurotalk.psychcentral.com/forum20.html

look for the NEW Thread button, click, type in the box, and submit
hth

[mrsD]

I am sorry I missed that post!

When I am posting, sometimes they don't show up quickly for me. I guess I have to empty my cached pages now!

--edit to say--I just emptied my cache.... and it crashed FireFox!

But I assume I am good to go now, at least for a while!

[zeeclass6]

Thanks for the advice.

I'm not sure if my doctor will prescribe any B-12 shots for me when I see her next month after getting re-tested. I was worried that the shots might cause a severe anxiety reaction like the cyano. But based on what you said, it seems that it probably wouldn't. It will be interesting to see whether the oral supplementation I've been doing for the past month (1.5 months when I get the test in mid-Oct) will show any improvement.

I plan to stop taking all my B vitamins one week before getting my blood drawn for the test. Does that sound about right?

Originally Posted by mrsD

I really don't think your reaction is like caffeine.

When doctors test people under the tongue with substances they cannot tolerate...the do get reactions. (this practice is not accepted by all doctors however).

But the cyano is what is triggering you, not the cobalamin part IMO.

Try swallowing instead of under the tongue. There may be no reaction that way.

[mrsD]

Yes, one week off of them should do it.

[AlwaysLearning]

Wow - what a fascinating and informative thread. Thank you all for your help.

I had my first visit with a new MD, and had CBC, Vit D, and thyroid testing a few weeks ago. My D was "in the toilet", using his words. (33 out of 32 to 100 mass/volume test range.) This surprised me as I do use a multi vitamin and mineral supplement, and drink OJ with Calcium and D almost every day. I also try to eat well, with lots of veges, fruits, whole grains, meats, and dairy. At the moment, I don't avoid any food groups. However, he suggested an elimination diet, which I will start after I get back from vacation in a few weeks.

After reading on this thread, I wonder if my B-12 is also low. I didn't get a copy of my bloodwork; I keep forgeting to do that. I will do that this week!

It seems that if I am not absorbing the D I've been taking, maybe I am not absorbing other nutrients either.

I three meals plus snacks, sit at a desk most of the day, and am stuck at almost 115 pounds, which is thin for 5' 5".

I started having PN symptoms early this year, though I didn't know that's what it was. I went to a podiatrist when my feet hurt so much I was using crutches and couldn't drive. He diagnosed capsulitis and PN, and gave me cortizone injections in my feet for the capsulitis, and suggested Lyrica for the PN. The capsulitis has resolved, but the tingling in my feet and thigh is still present. I didn't and won't take the Lyrica, after reading the side effects.

I'm going to give the B-12 a go.

[MelodyL]

Hi Kate:

I just took this excerpt from your posting.

"I do take the benfo and a b6."

I was always under the impression that people with neuropathy should NEVER take B-6

Mrs. D ??????

Melody
"

[mrsD]

Some B6 is necessary. Extremely high doses in the gram range for a long time can cause a neuropathy. (but that was using pyridoxine, which is not active).

Very low B6 (a deficiency) also causes neuropathy.

This poster, Mel, is using medications that deplete B6, so her need is greater than those not using those medications.

[MelodyL]

Originally Posted by mrsD

Some B6 is necessary. Extremely high doses in the gram range for a long time can cause a neuropathy. (but that was using pyridoxine, which is not active).

Very low B6 (a deficiency) also causes neuropathy.

This poster, Mel, is using medications that deplete B6, so her need is greater than those not using those medications.

See why I ask questions?
Because today I learned something new....from YOU

Thanks so much.

Take care

Melody