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-   -   STICKY - The Vitamin B12 Thread: (https://www.neurotalk.org/peripheral-neuropathy/85103-sticky-vitamin-b12-thread.html)

boogirl85 03-25-2013 05:48 PM

mrs D, I was wondering if you could help me please.

I have been taking sublingual b12 (cyano) for about a month now, because of tingling in my arms, not being able to stand up straight, weakness and pain in the arms, back pain (I couldn't even wear a bra), and the tingling went away in 3 days, and I gradually got better, so I know my problem is a B12 deficiency (my number was 270 about 6 weeks ago) but during that time I've also had days where I would feel faint, dizzy, and my heart beating really fast - aka symptoms of hypokalemia.

I've also had 2 injections of 1ml/1mg of hydro B12 in the past few weeks, but I've since stopped taking all B12 and put a halt on the injections for now because I wasn't sure what was causing the dizziness. Before starting the B12 my arms felt weak, but at least I could think properly. But these new symptoms are scaring me.

I've had an MRI of my brain and spine and MS was discounted (no lesions), but do you think I might still have MS even if the brain scan was negative? The symptoms seem to get worse during hot whether, or after I've had a shower (I feel faint).

Why would I get these symptoms after starting B12?

Am I having a reaction to B12?

Could I have low pottasium which is causing the mental issues?

Or could my body be adjusting to suddenly having B12 after being deprived for so long?

Does taking B12 mess with blood glucose levels?

Do you think I could also have pernicious anemia (my ferritin is 10).

I also have a thread in the vitamins & supplements section if you want to read it.

Thank you so much.

lined_in_silver 03-28-2013 03:35 PM

I got a copy of my bloodwork today. My b12 levels are are 564. I'm in Canada remember. MrsD, you know my story :-)
Set off any alarms of light bulbs? This is back in January, just fyi.

julleri 04-08-2013 01:10 AM

Good B12 deficiency video!
 
http://www.youtube.com/watch?v=BvEiz...ature=youtu.be

This is a good video on the severity of undiagnosed vitamin B12 deficiency. It is long and at first I told myself I won't watch all of this. I did watch it all; it was very good!

Jason

mrsD 04-08-2013 07:18 AM

Thank you Jason. I'm going to move it up to the beginning of this post. Some people may find this easier than reading, what we have here.

The video is very good, to a point... does not mention correct way to take oral, does not spend enough time on methylcobalamin, or discuss the MTHFR mutations. But still it is excellent in other ways, to motivate people and doctors on the subject. Thanks for posting it, as it seems very new. It will be interesting if the view jump suddenly after that link appear here. ;)

Sallysblooms 04-08-2013 02:16 PM

I had very low B12 years ago, caused so many problems. I am so thankful an integrative MD found it. My first integrative MD. I hope more reg. doctors learn more soon.

julleri 04-09-2013 06:00 PM

Quote:

Originally Posted by Sallysblooms (Post 973124)
I had very low B12 years ago, caused so many problems. I am so thankful an integrative MD found it. My first integrative MD. I hope more reg. doctors learn more soon.

Sally,

Would you mind sharing some of your problems from the low B12? Do you remember what your B12 level was once it was found to be low?

Are you still healing or would you say you are fully recovered now?

Thank you,
Jason :)

Sallysblooms 04-09-2013 07:30 PM

I slowly got more and more exhausted, unable to sleep after a while also. Then vertigo all the time. Many problems. I can't remember how low the B12 was but it was very low. Reg. doctors never checked it. Years later, an integrative MD did thank goodness. I got better, but then later, got Dysautonomia so I am four years into that healing with supplements, bio identical hormones and diet. More improvement is needed, but I have improved so much.

Quote:

Originally Posted by julleri (Post 973525)
Sally,

Would you mind sharing some of your problems from the low B12? Do you remember what your B12 level was once it was found to be low?

Are you still healing or would you say you are fully recovered now?

Thank you,
Jason :)


tomboy mel 04-16-2013 02:26 PM

Quote:

Originally Posted by MelodyL (Post 558298)
Hi PattY;

Over two years ago, I went to iherb.com and bought the JARROWS Methyl B-12 5000. Been taking it every day since without a hitch.

Best thing I ever did for my body. I did try a cheaper one (not that this one is expensive because it's not), but I did not get the same results.

So, for me, the Jarrows is the way to go.

Best of luck

Melody

This is the kind if info I need. Thanks Mel

nsrsg 04-30-2013 03:47 AM

Can I use cyanocobalamin and methylcobalamin together
 
I have been using puritan's methylcobalamin 5000mcg every day for long time(almost an year). My condition improved a bit in the middle but now going back to the old symptoms. Recently I consulted a doctor and he prescribed two Princi-B-Forte(B1-250mg, B6-250mg and B12-1000mg) tables per day. But the B12 in the tablet is cyanocobalamin. I don't want to discontinue my methylcobalamin intake. Can I use both? will there be any side effects to that.
I could not get tablets only with B1 and B6 in it.
Thanks in advance for your suggestions.

nsrsg 04-30-2013 04:02 AM

Antiparietal cells antibodies
 
Hi All,
I posted in this forum before regarding my B12 deficienty and I have been using puritan methylcobalamin 5000mcg for almost an year. In the recent blood test my B12 levels are up (1000) but doctor said "Antiparietal cells antibodies" are found in the test and referred me to gastroenterologist. I am not sure what it is and waiting for the appointment. Doctor says it can lead to cancer if not treated properly. Can anybody give some information on that and how serious it is? Thank you.


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