Very low B12 is often accompanied by high folate readings.

Hi Mrs. D.

A quick question from one of the members of the our Neuropathy Support Group. He phoned me today asking me about B-12. He knows what I take because we discuss it at the meetings. He has neuropathy. He also has Neurofibromatosis.

His B-12 level is 600. He then said "I know I have enough B-12 because I go in the sun quite a bit. I then corrected him on that assumption. Since he knows what I take he is thinking about taking it also. I don't think he knows his folate level. I'll ask him when I contact him. He said to me "I am on Triflex for cholesterol and Synthroid for Thyroid, can I still take the B-12? And how much folic acid should I take?

I told him "I have never heard of anyone have any ill effects from Methyl B-12, or if it has any contraindications, but just to be sure, I'll ask Mrs. D".

So I'm asking.

Thanks much

Melody

Are you sure about that drug? Triflex ??? Triflex is a glucosamine product for joints.

There is a TriCor for elevated triglycerides.

There is TriLipix....which is a statin Crestor mixed with Tricor.
Statins=neuropathy risk.

He has more problems than just B12 IMO. Most people get enough folic acid today in US because we have fortified foods that contain it. He should get tested.

First off this gentleman needs CoQ-10 because of the STATIN he takes. Also acetyl carnitine at least.

And yes, get a Vit D test.

He sounds rather confused, and statins contribute to that.
He needs to check Dr. Graveline's website,
www.spacedoc.net
Dr. Graveline lost his memory on Lipitor (STATIN) and wrote a book about it. "Lipitor, The Thief of Memory".

In regards to B12, some people with rather normal B12 levels, could have neuro issues. This is because people vary. It is less common than when their levels are lower, but it can happen.
Please, read that article I posted in this thread.
http://neurotalk.psychcentral.com/post698522-70.html

MrsD..... about the MethylB12 5000 mcg, you had mentioned Puritans Pride ?? I am not familiar with that. Is it a store?

Also, I was thinking, if my Folate was >45, which is high ........ why would the Neurologist prescribe 1000mcg Folic acid daily??

Referring back to one of my earlier questions about Pernicious Anemia..... having tested positive for antiparietal cell antibody means a diagnosis of PA??? Or are there more tests that go with it?

:)

Hi Mrs. D. I have written to him to get the correct name of the meds he is taking. Thanks much. Melody
Next week is the Neuropathy Association monthly meeting.

Mrs.

I was able to get the correct name of the medication that my friend is on. He only takes two meds. He is on 135 of the Trilipix (for cholesterol) and he takes synthroid for thyroid.

I asked him what his last B-12 level was and he said "Well 6 months ago it was 600. He has NEVER had his Vitamin D level tested (as far as he knows). And when I suggested that he get it tested he said "Well, I'm due to go in March for blood work and I can't go sooner because of the insurance co-pay.

So I gather he wants to know how much vitamin B-12 he should be taking, and how much Vitamin D3 he should be taking. At least until he gets another blood test done.

He takes no other meds at all. Nothing for neuropathy and nothing for Neurofibromatosis.

I just wanted to get you the exact information.

Thanks much

Mel

Without a D test, the recommendations today from doctors, specializing in D stuff is 2000IU D3 daily.

He could start the B12 aggressively at 5mg a day for 3 months, and then drop back to 1mg daily (on an empty stomach).

But it is that Crestor that is in the Trilipix that is worrisome.

That drug depletes CoQ-10 and he should be supplementing at least 300mg a day of that of a quality enhanced absorption type.
Also read my thread in the subforum about statins.

If he refuses to learn about it... then he should try adding acetyl carnitine to his CoQ-10 and hope for the best.

That statin in the Trilipix is highly problematic for someone already with neuropathy.

mrsD, I looked mine up from last wek and it showed B12 at 331,, so I guess were talking low and what supplement should I take,,, I have SFN that is spreading quickly,,

5mg of oral methylcobalamin daily on an empty stomach.

This is because you have symptoms considerable.

I would get the Vit D tested too.

But other things may help you too:

Acetyl carnitine
Benfotiamine
Lipoic acid

All of these help with mitochondrial functions.

Hi Mrs. D. Just wanted to update you on my friend from the Neuropathy PN Group. He has gone for a blood test and among what they are testing for is B-12 and Vitamin D.

So we shall find out when we find out!!!

thanks much

Melody