[MelodyL]

Originally Posted by marty75

I have tried to do a lot of reading here, but there's a LOT to cover. My apologies if this has been discussed before and I didn't see it.

My doctor tested my B12 as soon as I began experiencing pain in my feet 13 years ago. (I have PN). He kept telling me it was normal. However, in May 2013 I saw a specialist when I could not sleep (literally, did not sleep for days/weeks), got confused easily, lost my up-close hearing & had my distance hearing go massively hyper-sensitive, had difficulty breathing, my heart started hurting and I began falling down. He found my B12 to be 130 and ordered my doctor to immediately begin B12 injections. I got weekly 1000mcg (I believe) injections for 2 months, then bi-weekly for 2 months, and I now get them monthly. It took 9 months for my hearing to come back. I am sleeping better but still have issues. My last blood test was 325-ish. My doctor says this is in the normal range, but I don't think so. My specialist said he thinks my PN could easily be from prolonged B12 deficiency.

I am 38, and have totally normal stomach acid levels. I take an oral B12 but my doc says I am unable to absorb it. I only feel better for a few days after each injection. What SHOULD my minimum level be? Should I be striving to get it up to 600? 700?

My last B-12 level was 2000 and I'm doing JUST FINE.

Doctors do NOT know anything about B-12 levels. Read all of Mrs. D. posts on B-12.

I take Puritan Pride's Methyl B-12 (that's the important kind of B-12 you should be on).

I take 5000 EVERY morning. Been doing this for YEARS now.

No more peripheral neuropathy and I can do things at 66 that I didn't do when I was 30. Of course I grow my own food and don't smoke and all that stuff but I know that the Methyl B-12 that I have been taking for almost 7 years has literally changed my life.

Read up on this. It's all over the internet and especially on this thread.

Best of luck to you.

Melody