Liza Jane,
My temp is 98.2. But I'm freezing. The last time my TSH was checked it was normal. I see some symptoms I can relate to but not many.
Billye

Hi SilverLady,
I forget what a normal temperature is...

Do you feel afraid at all? I get so cold when I'm afraid.

Also, is there any chance you have an infection of some kind? is your temperature a little high?

Maybe your body knows something that scares it a little.

I am always so much warmer when I am relaxed...

I think low grade infections are a huge drain.

(((((((((SilverLady))))))))))

Yeah, I know I'm obsessed with charts, but could you chart your temperature maybe 4 times a day, for a few days? What you'd be looking for is two things:

Is the average much lower than what it is now?
Are there big swings?

The body feels cold when it's "central thermostat" is set higher than what the temperature actually is, and hot when the thermostat is higher than the reading. So, you get a chill before a fever, because the thermostat was raised, and you got cold before the body temp could be raised. Once the body temp and the thermostat are the same, you're not cold. Then, when the fever breaks, you sweat. Same thing, now the thermostat is set lower, back to normal, but you're still hot.

So, if you're cold, my guess is your thermostat is set high, and perhaps that will be evident if your temperature rises and you begin to feel okay.

Your body "wants" to be higher than 98.2. Perhaps it will be happier at 98.6.

This won't necessarily answer the question of why your body is not matching what its thermostat wants, but it might give you a sense of what is going on.

Good luck with this one. Wrap yourself up warmly.

LizaJane

Hi,

Jumping into the thread here - sorry - but quickie question.... My normal body temp is about 96.5, and after IVIG closer to "normal" - around 97.5 - you mentioned autoimmune causes low temp - but should I also askk for any specific thyroid tests? (seeing a doc next week who could order them...)

(this morning it was 101 - I KNOW thats not good but going down now)

Hi kmeb,

Please can I ask you, do you take vitamin C at all?

I have found that it helps with infection type things.. When my eyes burn and I take it, the burning tends to go away.

I don't have a thermometer.

Hi -

I dont take any separate vitamins because my only nutrition due to gastroparesis (basically a paralyzed stomach due to autonomic neruopathy that has damaged the nerves the cause digestion)..... is Ensure, a nutritional liquid supplement only - and it is pure vitamins... My stomach gets very upset if I try to take separate supplements - but my docs also tell me blood counts are ok in that area and that since the Ensure is pure nutrition I'm getting all the vitamins I need... I am seeing a nutritionalist next though - and she may have some suggestions.....

(I need to gain weight but cant digest fat - or eat ice cream or anything like that - so thats a challenge we're trying to deal with)

KMEB

Oh, Kmeb, I am so sorry that I said that when it could have been hurtful to read.

I'm so sorry.

I'm glad you have such a good attitude. You have a brilliant attitude!!!!!!

Dont worry ! I've actually called Ross, makers of Ensure, and asked them exactly the miligrams of vitamins in each can of Ensure - because they list them as percentage.... they did a lot of research for me - and got back to me with it - they were great... however, I do need to expand my diet - and I'd kill for a french fry!!!!!!!

6 mos after my 'onset' my toes turned into swollen mini-hot dogs & the feet? well, THEY swelled up at least 3 shoe sizes - I'd been up and down the thyroid dosage scale for over 5 years...until then. Thyroid tests resulted in a 20+ mcg dose increase. Stable since then. Now with my other things happening, my docs are screening my blood w/a very fine tooth comb -more often than is the norm. It's a small comfort, I think.

As for temp- I also have a normal thats a few decimal points below the considered 'norm'. It will chug up to almost norm during the 2nd hour of IVIG. I believe that's the only time my tootsies ever feel 'normal' now.

Somebody! KNOCK WOOD QUICKLY! I'd said the words 'feel normal'!

Good thoughts and warm foot inventions to all! [gotta find them first!] - j

I have considered, but not actually done it - putting bricks in the oven and using them [wrapped of course] as old fashioned foot warmers. Has anyone tried this?

((((((((((kmeb))))))))))

What is it about French Fries?

That's really nice to hear that Ensure was so helpful.