NeuroTalk Support Groups - Freezing to death

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- - Freezing to death (https://www.neurotalk.org/peripheral-neuropathy/852-freezing-death.html)

I like to use the warming bags I make....fill a fleece bag with flax seed, then micro 3 minutes....or use a clean sock and tie the end.
Can use rice, barley, crushed corn (polenta)...works wonders for cold extremities.
PS...glad I found you guys....again....sure miss the old BLT!

french fries....

its been literally almost six years since i was able to eat solid food - so i dream about being able to eat - (literally - peope in my dreams tend to have normal heads - but sandwiches as bodies) - i miss eating - ever notice how many food commercials are on all the time!! and french fries just sound so good (and pizza, and sushi, and a big fat burger, and.......)

yum!:)

why are you not able to eat solid food?
I have Crohns disease....so I can relate, but only a teeny tiny bit!
Sounds awful. Crytearszzzz aka crytears on the old BLT!

Quote:

Originally Posted by crytearszzzz (Post 6657)

That sounds so neat, what a good idea!!!!!

I have gastroparesis - assumed from from atuonomic neuropathy, so my stomach just doesnt digest food like it should - even liquids just sit in there for hours....

Crohns disease from what I understand is very painful - you have to be super careful about what you eat right?

Its amazing what we can get "used" to in order to survive eh?

Hang in there!
:) KMEB

Quote:

Originally Posted by kmeb (Post 6658)

Your dreams are ... wow, very ... wow, sandwiches as bodies...
boy what a hard thing to live without eating solid things. I have great respect for you!

Will it ever get better?

I was scared when I read your description because tetanus affects the stomach muscles, and it feels so uncomfortable. I started being afraid ...

Have to put a lid on being afraid.

So do you get B12 injections at all?

I was just thinking that the injections aren't like having to take a solid vitamin. OH... but then neither are the sublinguals.

(As far as I can tell, 6 of the 5 mg methylcobalamin sublinguals a day do not equal one B12 shot a day...)

((((((((kmeb)))))))))

Answer to Liza Jane,

No I don't mind charting my temp. Might be a good idea anyway. I'll set it up on Xcel. Easy to do. Then I think I'll make an appointment with an indocrinologist. It has bothered me long enough. My t3 &4 were off in the last test I had run. But when I saw the new rheumatologist, he thought they were fine because the TSH was fine. T3 &4 weren't but he told me it didn't make any difference because the TSH was fine. I decided not to argue at that point and I wasn't sure.

Anyway...
Billye

Quote:

Originally Posted by Silverlady (Post 6706)

No I don't mind charting my temp. Might be a good idea anyway. I'll sit it up on xcel. Easy to do. Then I think I'll make an appointment with an indrocrinologist. It has bothered me long enough. My t3 &4 were off in the last test I had run. But when I sAw the new rheumatologist, he thought they were fine because the TSH was fine. T3 &4 weren't but he told me it didn't make any difference because the TSH was fine. I dediced not to argue at that point and I wasn't sure.

Anyway...
Billye

((((((((((Silverlady))))))))))))

I hope it goes well for you!!!!!

Most important....see an endocrinologist to sort out thyroid problems. Most docs just cant handle it.
150 mg of Synthroid sure helps me.
When you mentioned being cold....Hashi Motos came to mind. ITs an auto immune thyroid disease....another malady I picked up along this ugly journey. My feet, hands, nose....ice cold....sweat pouring off my face as I'm sweating so profusley.....can't even wear make-up.....ugg! Change clothing often, must wear only cool cotton with no sleeves or collars. I hate this disease!
On top of this mess....diarrhea makes me miserable ALL the time. I do get some sleep....when I wake up and simply swallow, my gut starts doing it again and I'm off to the toilet.....trying to make my muscle weakness behave long enough to get my bunns on the white throne. Having a huge butt certainly helps!
Ya know....I've complained for eons about food sitting down there for hours. I did that pill camera and all it did was die in my stomach...didnt go anywhere or show anything...then stuck in my intestines...had to open me up a week later to retrieve it...thank God they did...found the cause of my severe anemia....5.1 hgb the lowest....2 years of transfusions....they found 3 feet of rotted intestines but not the source of my bleeding.....several feet up my intestines they found an AVM.....arterioveinous malformation...basically an intestinal anuerism the size of a baseball....bleeding away. Once the bad sections removed I was doing much better....but they failed to advise me on the B12.....so weak I could hardly swallow....a summer spent in bed thinking I was dying...I found BT and Rose advised me about sublingual B12. What a difference it made! But sadly....life has not been easy....especially lately.
No one knows whats wrong....I say its mostly tied to vitamin and mineral deficiencies but finding the right combo has been a real crap shoot.
What ever! Blessings, cheryl