Just fyi my first set of emg/nc did not show and then my 2nd emg/nc/ssep did show I have PN. So you may want to though I know not a pleasure have it repeated or asked about. Have you been on the rsd part yet. I would go on there because many of us have similar conditions you are stating over there. It seems one is prone to a lot with rsd as well like ears/eyes so on.

Hmm, really? Interesting. I never considered that the other symptoms could be linked to the RSD (they seem way too freaking weird to be RSD, isn't that just pain?)? Although come to think of it, my RSD (or what has been diagnosed as RSD) presented with tingling, as well as pain (the tingling came and went, the pain and hypersensitivity did not)--in fact the tingling showed up first, then the pain hit a day or two later. Eventually, the tingling left (or left for the most part, it still comes and goes, it has been back recently) and all that was left was the pain and hypersensitivity most of the time (in terms of the hands/arms). Could RSD really cause some of the other really weird symptoms I've mentioned here? (My pain is actually very mild for an RSD patient, although when it first began I couldn't even button my own shirts...I went through PT, etc., and am fairly functional these days and have pretty mild pain, even without taking anything most days...my neuro says I am in the "best shape of any RSD patient I've ever seen").

You poor thing.
 

I really feel for you. So many people here have no real diagnosis after tons of testing and probing. I too had one of those mysterious neuropathies that started in my head/eyes then went into my arms/wrist and then other parts of body. All testing was normal and I developed anxiety due to not knowing what the bloody heck was wrong with me.

If you can start taking vitamins as others mentioned this would be good. Don't exclude the fact that you may have had some sort of post viral/bacterial autoimmune attack on your nerves and its over now, but has damaged your nerves to some degree.

Also could be some sort of toxic exposure,that can trigger either a toxic or immune response or both.

Hang in there. You will get good support on this forum. Keep real good records of all testing you had done including results. Even within neurology there are subspecialties. I had to see 3 neuros before my diagnosis.

Hi. I would look on the rsd forum. Many there in addition to their rsd areas have ear problems,organ problems,eyes. It may be part of the rsd or seperate but what I do feel is people with rsd are prone to infections but I could be wrong. Hypersensitive which I am like beyond as a finger feels like a shot to my leg is with most rsd. My recent pain doctor and one previous said that rsd and Pn can have a lot of similar symptoms. For myself though I have both so even though you are young you could I would think too. I would really look at though the stomach condition too. I can't find my underlying why and have had beyond the amount of testing so I have to just work with treatments. It is very scary and unknown. I also am not taking away from older people in pain cause many here my heart breaks as your are like adopted family and have helped me fight so much. As a younger person though I really feel so confused and scared about how a young body can have so many health problems and pain. My 86 year old gramps is more active then I and I am not joking.No one at any age deserves this though. If I had a $1 for every time I hear your too young to have this I could be very rich. Ok many thoughts to all