[Marty SLC]

Hi everyone!

Well it's been 12 years now since I first learned I had PN. I use to visit the site Brian Talk a few years ago. I still have PN and it hasn't much changed but feel I need to give the healthy living a better effort then I have been doing so I need advice.

My Info:
My PN is idiopathic and I have had many test and TTS release on both feet
I take 150mg of Lyrica daily
I am not diabetic
My b12 level is on the low end of the normal range
I know about Methy B12
I exercise daily
I'm not overweight more than 10 pounds and I'm losing that in my new plan

Could you kind folks please help me what vitamins like B-12 I should be taking and how much. I just want to follow a good sensible plan that has already be researched by you kind folks. I don't want to spend hours trying to figure this stuff out and really I'm not the bright. Could you folks please cut and paste your daily plan and where I can get them. You know something like this:

DAILY
Fish oil - 2Gm *
Methyl B-12 - 2000mcg *
Folic Acid - ? *



Thank you so much,
Marty

*edit.

[nide44]

Fish oil - two 1200 gels= 2400/day
Lyrica 200mgs 3x day =600mgs/day
sublingual Methyl B12= 2000mcg/day
Tramadol 100mgs 4x day = 400mgs/day
CoQ10 (forgot dosage)
Folic Acid (forgot dosage)
Zetia 10mgs/day
RLA (ALA) 50 mgs/day

[mrsD]

Hi Marty... I remember you.

Do you have PN only in the feet? Does it move up to the legs, or has it spread to any other places?

[Marty SLC]

Originally Posted by mrsD

Hi Marty... I remember you.

Do you have PN only in the feet? Does it move up to the legs, or has it spread to any other places?

Hi mrsD,
I remember both you and nide44.

It has moved to my legs, hands and face. Mostly the hands and face are in the beginning stages with tingling, and some burning. I get deep aching pains in my legs with some tingling and burning. But for the most part it's my feet. Really bad. I can not wear shoes or stand for more then five minutes without the pain level rising to a point I must get off them.

I've had many blood test, those shock test, needle tests (cant remember the names lol) and MRI's.

[mrsD]

Since you are not getting better, and it is traveling around, it might be that your diet needs looking at.

Gluten intolerance can cause peripheral neuropathy.
We have a gluten forum here:
http://neurotalk.psychcentral.com/forum13.html
The first post in the sticky has The Gluten File in it. A wealth of information.

I know two posters from the old board who had PN and improved with going Gluten free.
I think it would be worth a trial for you.

[Marty SLC]

Originally Posted by mrsD

Since you are not getting better, and it is traveling around, it might be that your diet needs looking at.

Gluten intolerance can cause peripheral neuropathy.
We have a gluten forum here:

The first post in the sticky has The Gluten File in it. A wealth of information.

I know two posters from the old board who had PN and improved with going Gluten free.
I think it would be worth a trial for you.

Yes I'm going to give the gluten free diet. I think I'm not absorbing like I should. So I'm doing gluten free, a good vitamin regiment and exercise daily. The gulten free diet is going to be hard. It's a staple in my diet.