NeuroTalk Support Groups - PN and ReBuilder-effective ???

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- - PN and ReBuilder-effective ??? (https://www.neurotalk.org/peripheral-neuropathy/91101-pn-rebuilder-effective.html)

Quote:

Originally Posted by Gyrene (Post 533448)

I too have been trying to determine whether the "Re-Builder" is worth the time, and money. Can anyone tell me if the ad claiming to be "FDA" approved, and "paid for by medicare" are true statements, or purely hype? I would love to be able to either see about getting a unit, or throwing the ad in the "trash bin" once and for all. Thanks for any help.:confused:

If you go to MrsD's link, there's a statement about the FDA approval.
Seems it is for all of the 'TENS' type units, not this particular one.
Don't know about the Medicare part.
Guess you'd have to have a doc Rx it for you & demand that it be part of your therapy before they'd pay- if they do at all.

Did Melody's husband try this or was it the Tens? I have heard the Tens helps some people. I could not tolerate it since it is placed on the body parts that are impacted but for others.
Gyrene I think many respond different. I am not sure if it is covered but you may want to ask your doc and I would think you would need an rx no matter what.

Quote:

Originally Posted by tinglytoes (Post 531531)

Sending out a great THANK YOU to all the folks who took the time to provide the links to some very darkly amusing stories of the modern snake oil sales of this overpriced, over-hyped devices. I had called the hospital neuro- rehab unit and spoke with the head therapist. Never heard a whisper about the thing. Together with the info on this site I am making progress toward being proactive with options which will help. I feel hopeful in a more realistic way. What a great support this site is!! Again many thanks to all and hope this updates the question of efficacy once and for all. Onward...one step at a time....

Have you looked into iodine light therapy?

John found it effective

John used it and had immediate reduction in pain. He dropped from a about 4 -5 on the pain scale down to 1 -2 within the first few weeks. Since he's doing so much better now, he hasn't had need to pull it out of the closet in over two years so I don't know if he used it more if it would provide a benefit to him anymore.

--do you mean Anodyne light therapy?

http://www.anodynetherapy.com/

http://www.anodynetherapy.net/

Quote:

Originally Posted by Marty SLC (Post 531349)

There are some that swear by them. If you do a search you may find some that said it help them greatly. If not do a search on this site:

- Marty

Marty,

May be interested in buying this unit if still available. Send info on Model, Price, etc.

Thanks,

Richard

ReBuilder for DPN

Quote:

Originally Posted by Marlene (Post 533523)

If the unit you are referring to is the ReBuilder and is still available, I may be interested in buying it. Please let me know the details; Model, Accessories, Price, etc.

Thank you,

Richard HS

Quote:

Originally Posted by tinglytoes (Post 529171)

The neuropathy in legs and feet is worsening, I found the site on ReBuilder and have searched for any content unrelated to the manufacturer or other sellers. Unable to find any reports etc... Would love to hear individual experiences for or against the efficacy of this device.

Then please offer any useful suggestions on how to introduce it to one of my 12 doctors who will not call it "snake oil quackery".

Maybe it is- maybe it could help me. I owe it to myself to find out and if any group would be able to tell me this is it. Thanks for all the informative and supportive entries on this forum. Wonderful! Understood at last!

Also anyone found any help with fasciculations(minute involuntary muscle twitches) of the lower legs? Along with restless leg syndrome I feel like my body refuses to go into relaxation, rest or sleep mode and I am exhausted.

it helped me a lot for while until i detriorated..

I noticed with me though it helped more if i used really low so that it was subtle , I suppose like biofeedback a bit .

Other than "entheogones " it was the only thing that did help me relax .

If you can find one cheap or rent one id try it.

Something else I wanted to try myself is the H-wave , but Im not in the US to go to anywhere that offers it ( its even more expensive to buy )

m

I have used the rebuilder for months at a time, but I don't believe it has helped me. The seller of RBuilder has good credentials, but credentials don't help my feet[

[QUOTE=tinglytoes;529171]The neuropathy in legs and feet is worsening, I found the site on ReBuilder and have searched for any content unrelated to the manufacturer or other sellers. Unable to find any reports

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 etc... Would love to hear individual experiences for or against the effic

acy of this device.

Then please offer any useful suggestions on how to introduce it to one of my 12 doctors who will not call it "snake oil quackery".

Maybe it is- maybe it could help me. I owe it to myself to find out and if any group would be able to tell me this is it. Thanks for all the informative and supportive entries on this forum. Wonderful! Understood at last!

Also anyone found any help with fasciculations(minute involuntary muscle twitches) of the lower legs? Along with restless leg syndrome I feel like my body refuses to go into relaxation, rest or sleep mode and I am exhausted.[/QUOTE]