I sincerely appreciate everyone's thoughts on this. I still don't have an answer and will probably call towards the end of the day. It shouldn't take them too long to decided if they'll see me or not. :hug:

Your neuro should not be threatened by another neuro's opinion. If NCV tests show PN than it is safe to say you have PN. Often, PN starts in the smallest nerve fibers which is not picked up well on NCV. If you have FM, then chances are your CNS will have a hypervigilant state to pain signals. So if PN is sending more pain signals to your brain, then due to FM, you will hurt "more." There is evidence that FM patients may have more substance P in their CSF. This is evidence that FM may be a "real" diagnosis, and not the hypochondriacal malady that half of doctors think it may be.

MdotDdot,

The test results show PN, lumbar radiculopathy, and numbness. I called the second neuro's office and they agreed to see me "only for a second opinion" so I told them not to bother as I need someone to treat me. Its back to my GP for other suggestions. This is crazy!!!! Its looking like I'll end up at Mayo again.

Thanks for posting the information you did. I really didn't need anything more to validate my pain, but if it does that too than at least something good is coming from it.

I finally got an appointment with a neuro who is willing to treat. It's about 3-4 weeks out, but its better than nothing which is what I had previously.

Thanks again to all who've posted :wink:

Good luck EE... I hope it goes well for you.

Good I hope you find relief and direction. FYI you may want to call for canceled apts. I have done that before and have gotten in month early before. I think the office staff gets sick of me and my daily calls.