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Old 06-27-2009, 06:10 AM #1
EE03 EE03 is offline
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Join Date: Sep 2006
Posts: 616
15 yr Member
EE03 EE03 is offline
Member
 
Join Date: Sep 2006
Posts: 616
15 yr Member
Default Newly diagnosed and clueless

Hi all,

I now have this condition too. I post on several other boards. I went to a neuro who has treated me in the past regarding this which started after I woke up from a nap with my leg completely numb. Thinking it just was asleep, I got up and stood on it and when I tried to use it, it buckled right out from under me. My PCP sent me to a neuro...fast forward to the followup after the EMG/NCV, and the doctor says that these symptoms along with the pain I reported to him in my feet, lower legs, and hands are all due to fibro! I couldn't believe this in light of the diagnosis from one of his colleagues in his own group who did the EMG and the diagnosis clearly states PN and Lumbar radiculopathy. Going into the EMG, this neuro said he felt my test would be negative. It wasn't, be he didn't discuss any of my sysmptoms other than to say its fibro.

So, I get the buning pain in the hands and feet, the feelings of being stuck with a gazillion pins and needles, and I get really strong shooting pains which sometimes linger. I also seem to be having a foot problem at times as it seems my foot doesn't grab the sole of the shoe. I'm not sure if that is related to this or not.

I wrote a letter to the doc and I haven't heard any response. I pointed out that we didn't talk about this dx. I really didn't think I'd hear from him or his staff, but I'm still dumbfounded.

Any advice/input would be greatly appreciated. EE

PS: they did a lot of bloodwork, screening for a cause and that is negative at this time. Diabetes isn't the problem, thank heavens, and my blood sugar readings are all good.

Last edited by EE03; 06-27-2009 at 06:12 AM. Reason: added PS
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