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Old 07-16-2009, 09:11 AM #1
sheila sheila is offline
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Default Im just mad as .....

How come the doctors wont tell me what is going to happen to my body when i went to my doctors yesterday after the neuro sent him the results he changed his whole attitude they kept telling me it was anxiatyand deppression which i have but who wouldent now hes telling me they will do everything they can to help me i dont know how many times i have seen this doctor for mucle sprains and i dont even know how they happened im just mad as hell now i cant drive anymore because i cant feel my feet it sucks all my dignity is going out the window im starting to walk funny and have to hold on to things because my balance sucks and to top it off by bladder is starting to spasm and my stomach still blows up like im 6 months pregnany but when i ask them whats going to happen they cant tell me my face is getting worse my eye is messed up i asked him why it was only on one side of my face and neck he said he doesent know i kinda need to know what to exspect he put me on cyclobenzaprine 10 mg and i dident have mucle spasms all night but he said it would help me sleep but it dident my left arm is going out on me can anyone help me the doctors dont want to anser my quastians or give ne any idea of what to exspect by the way i got ne new shoes and they help alot thank you
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Old 07-16-2009, 11:10 AM #2
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if your doctor is telling you that anxiety and depression is causing your PN or that you dont have PN when tests show you do then you need a new doctor. If your doctor is telling you that anxiety and depression are making your PN worse, that could be true. They can exacerbate PN symptoms.
If your doctor is telling you that they dont know what is causing your PN or what the future may hold for your PN then they may be telling you the truth. Many people never find out what is causing their PN and no one knows the course that their PN will ultimately run. It can get better, worse, or stay the same at variable rates depending on the individual.

If they are throwing up their hands after a test or two or because a certain test is inconclusive, then you need a new neuro who is an expert in PN.
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Kitt (07-16-2009)
Old 07-16-2009, 08:08 PM #3
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Hello Sheila-
Firstly I wanted to say I'm really sorry that your neurologist is being so unhelpful when you seem to be progressing so rapidly.
I can't blame you for getting so unhappy.

I'm finding my neuro to be the most unhelpful person on the face of the planet as well.
I wonder if its a neurologist thing to be higly arrogant, and unhelpful?

I hope you start getting some better help, I just wanted to say, you aren't alone in the diagnosing frustration of it all.
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sheila (07-16-2009)
Old 07-16-2009, 10:30 PM #4
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I think it's sad that most Nero are JERKS!
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Idiopathic PN - diagnosed 1999
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sheila (07-17-2009)
Old 07-17-2009, 12:32 AM #5
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I agree with everything echoes said, it is sad that most of the neuro's out there are not very well informed about neuropathy, my first neuro didn't even know how to test for small fibre damage.
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sheila (07-17-2009)
Old 07-17-2009, 06:03 AM #6
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If its any consolation, I went to one who had the test results showing my diagnosis and he didn't even address the condition with me. Now I have an appointment to see another neurologist and I'm hoping he's better than the previous one. Find another neurologist and check them out on the patient rating sites. Take care
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