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Old 07-23-2009, 09:51 PM #1
lynxgal lynxgal is offline
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lynxgal lynxgal is offline
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Hi Fran. I have had that sensation. I call it my brain earthquake. Not very nice sensation is it. At one point I was having more then 50 episodes a day. I did have an EEG and it was normal. I have had pretty bad facial twitching with it at the beginning. My face would spasm into a look of surprise.

Mine started almost 2.5 years ago. I'm happy to report I rarely get them now. Funny, those started at the same time as my undiagnosed vertigo, which appears to be fading away too!

I never found out what it really was but someone else I know experienced it as well. She was told it was a migraine variant.

I'm not sure but for me it makes sense sort of. I have a long history of migraines and during the time that my brain quakes were severe I was not having migraines. Now the migraine pain is back and the quakes are disappearing.

Hope you get some answers soon!

Oh and I wanted to add I have a demylinating polyneuropathy as well. Currently they think it may be CMT.
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Old 07-24-2009, 11:45 PM #2
Fran E Fran E is offline
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Fran E Fran E is offline
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I like brain earthquake! That describes it quite well.





Quote:
Originally Posted by lynxgal View Post
Hi Fran. I have had that sensation. I call it my brain earthquake. Not very nice sensation is it. At one point I was having more then 50 episodes a day. I did have an EEG and it was normal. I have had pretty bad facial twitching with it at the beginning. My face would spasm into a look of surprise.

Mine started almost 2.5 years ago. I'm happy to report I rarely get them now. Funny, those started at the same time as my undiagnosed vertigo, which appears to be fading away too!

I never found out what it really was but someone else I know experienced it as well. She was told it was a migraine variant.

I'm not sure but for me it makes sense sort of. I have a long history of migraines and during the time that my brain quakes were severe I was not having migraines. Now the migraine pain is back and the quakes are disappearing.

Hope you get some answers soon!

Oh and I wanted to add I have a demylinating polyneuropathy as well. Currently they think it may be CMT.
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Old 07-25-2009, 07:22 AM #3
lynxgal lynxgal is offline
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lynxgal lynxgal is offline
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Morning Fran,

I may have to take back part of my prior statement. LOL

I'm on day 4 of a migraine. Woke up on my right side which is the side where the symptoms started, the side that is mosted effected and weirdly enough the side with the migraine.

Before I opened my eyes, and I might add, I didn't move (there goes the BPPV guess lol) I had an episode with a 1/2 spin of vertigo and a brain quake all at the same time.

So the migraine pain, vertigo and brain quake all at the same time. Nasty!

Hope you are quake free today!
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