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Old 07-31-2009, 11:35 AM #11
dahlek dahlek is offline
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dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
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15 yr Member
Default Great that you have some sort of diagnosis

and that you kept at it until you got some answers!
Keeping your docs straight can be a challenge once you pass the dozen mark..I know from experience and can sympathize.
That biopsy will keep you on tinterhooks until the results are in, but then, be prepared for every single doc visit w/a notepad and pen as options will be put to you and it's gonna be up to you to learn about them and decide which ones are best for YOU. Be sure to ask, no seriously request a copy of the results and use the 'web' to learn as much as possible about the situation. I speak as a cancer survivor myself [w/an autoimmune neuropathy] and I've rarely had a doc get sticky about copies.
Hopefully, the biopsy will not be cancerous and more simply [HAH?] autoimmune of a different nature.
In the meantime, don't worry about the possibles yet. There are too many variations. Save the energy for the likely/definites and then research away!
Hang in there! - j
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Old 07-31-2009, 06:14 PM #12
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Gyrene Gyrene is offline
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Gyrene Gyrene is offline
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Default Raglet

Many thanks for your great input. And, my sincere prayers that your NP will take a turn for the better.
Which brings up a point that I have been pondering. Just today, on the national news, was a story about just how many people are turning to alternative medicine. The story stated that many are doing so for another form of pain management. As we all know, there are many diseases out there that leave the patient in chronic long term pain. Many of the people in the article spoke of such things as acupuncture, meditation, and many other forms of alternative medicine helping them immeasurably in their search for pain relief.
I was wondering if the same principle has ever been researched for the relief of the pain associated with PN.
If there are any out there who have done anything with alternative forms of medicine for PN, please feel free to share your information with us.

Thank you.

PS to Raglet: Love your avatar.
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