Degrees of PN???????

nide44 · 07-29-2009, 08:50 AM

B12 of 'fine' isn't a proper dx.
You have to check the numbers on the testing,
If your B12 is 600 or below, you are suspect.
Many docs are out of date and think 400-500 is 'normal'
That's 20 yrs behind the time from old medical textbooks.
I keep mine above 1000 with supplimental B12 everyday.

Trishann · 07-29-2009, 07:42 PM

EEO3 so sorry to hear that your neuro. was not much help for you. Hopefully your next visit to a new neuro will be able to help you. I don't have much helpful information for you except that Lycria and the pain medicine does help at times but other times nothing seems to help. Please let me know what you new neuro have to say.

Nide44 I think my B-12 was 645. Wonder why doctors are not up to date with this information.

lynxgal · 07-30-2009, 06:36 AM

Had to pop in on this thread. 3 years ago, before all my symptoms started to ramp up like crazy my b12 number was 362. I was told to take a supplement once a day. Was rechecked twice and told it was "fine". Never did get copies of those blood results. I asked for them but they were not part of the test result package I received. Hummmm.

I was also told that number was borderline low. At the time my folate was extremely low as well

nide44 · 07-30-2009, 09:07 AM

Quote:

Originally Posted by Trishann

Nide44 I think my B-12 was 645. Wonder why doctors are not up to date with this information.

Because they went to school 15 yrs ago, with texts that were 5 yrs old,
and haven't bothered to update themselves.
A hospital w/a large neuro dept, affiliated with a University, with a research dept in PN -is the most up to date on the problems.

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