I switched to this female neurologist because I was told that she was less of an *** then the rest of the neuro's in my city. (as told to me by my GP)

However, I am finding her to have this attitude of unless you are in a wheelchair or getting there take a backseat.
She is too busy for you or your problems.

She says the clinic will call me to schedule something, and they don't.
She says they will call me with results of studies, and they don't.

In the mean time my symptoms bother me.. my hands, and feet go numb.
Today my mouth even went numb.

She tries to BLAME ME for my neuropathy.. since she can't find anything in certain testing.
First she said my sitting with my legs crossed was worstening my neuropathy.
YEAH LADY.. my sitting like this gave me a neuropathy?

THEN.. last week my weight was down, and she said that my eating habits caused my neuropathy.
So first its the way I sit, and now its eating habits.
.. I've already been tested for nutrition related neuropathy.
But she decided to WASTE my insurance, and re-run the same damn tests!

I'm really getting P.O.'d with this neurologist who seems to be making me wait around on her, and her blaming me.
And her seeming to treat me like my problems are insignificant.

I'd like her to go through several days with her limbs going numb.. her face going numb.
See how much she likes it.

So, at what point to I say "SCREW YOU" and find a different neurologist?
I'm considering going back to Mayo clinic or something. .. because the doctors here clearly have no clue.

Neuros aren't known for their good bedside manners. Most are scientifically objective and have bad social skills & interact personally, very poorly.
That said, a specialist in PN would never say the things that you have quoted your neuro as saying.
You need a PN specialist, not some general neuro who's empathy wiring has burnt out.
The Mayo and your GP/PCP, working together, may be your best shot.
As to when...............NOW !

Have you never had DNA blood testing for HNPP? Here is a site for HNPP: http://www.hnpp.org/hnpp_symptoms.htm

The thing you mention about when you cross your legs and they go numb, for example, makes a person wonder. HNPP is the opposite of CMT1A.

Now this is just my opionion so please do what is in your heart. I have seen so many of the same specialists. It is very frustrating and often when one is doing nothing I am in the same situation as you are. I think there is a difference between no bed side manner and really doing nothing or brushing you off. Now for me you can have no bed side manner as long as you order tests,offer relief or suggestions. Now this doc seems like she is doing nothing positive so though I know very frustrating I think you should start researching more because as we know neuros can have very long wait lists. If you decide to stay I think you need to address your issues with the neuro. I did with one of mine though she did not change at least I tried. Hang in there

Not that they would most likely give a damn, but I wish some neurologists were reading this. So many of us have had bad experiences with them, that it has become a real problem. I just wanted to grab some of the doctors that I have seen, looked them in the eye and yelled, "Why in the hell did you even go into the medical field."???

I can understand a doctors frustration at not finding answers, but this "sorry can't help you" and then toss you to the curb attitude sucks, and it seems so prevalent among them. The first neuro I saw took only a few tests, couldn't find anything wrong and then proceeded to tell me how I would eventually lose my balance. How the heck does he automatically know that???? You don't dump that on a patient like that. I cried for days after that.

Kitt- Nope, I haven't been tested for HNPP.

Thank you everyone for your responses.

Today I decided to call my neurologists office and ask for a referral back to Mayo.
Although there is a wait to get in, at least I feel the people there know about PN, and are experts in all sorts of things, and its the best place for me to be.

>> and while on the phone with the nurse asking for that referral she was talking about the labs that they drew back on the 15th.. she said they came back normal.
DUH. They were normal the first time I had them done as well.

Even if they just want to run a nerve biopsy on me at mayo, at least I feel they are qualified enough to ask for it.
The people here are running around in the dark.

Make sure you have copies of all testing done.
From everybody!
You are entitled to them and can give copies to future docs, or Mayo.
You can glean much from reading and researching the numbers given you
in the test results.
Start a file folder and demand your records, especially if you are
considering switching docs.
You'll know which tests have been done and which ones haven't.
See:
www.lizajane.org
for a complete list of tests for PN and a downloadable form
to follow your results, over time.

Hi

I had a TIA last year, my PCP sent me to a neuro, and warned me that he wasn't the "warmest, fuzziest" guy around. He did the ususal tests in the office, sent me out for EEG & such. When he was testing my legs, I told him I had PN in my feet. He said he couldn't find it. I told him it showed up on the EMG from my Pain doc.

Later, I was telling my PCP about the visit, and called the neuro DR CACTUS. He choked, and almost fell off his chair. With a big question mark on his face. I just said he has a very prickly personality. I know it got back to him, but I haven't!

Hee Hee Hee Hee Hee Hee Hee