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08-02-2009, 01:01 PM
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Junior Member
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Thanks for the info about the stickies...found them.
I have a BIG PROBLEM: B vitamin ALLERGY (I suspect) !! Read further.... I have Dx as having "SMALL SENSORY NERVE FIBER NEUROPATHY." None of the Rx works, makes me dizzy, itchy, sleepless or too sleepy...unable to function. So I have been trying the NATURAL ROUTE via vitamin supplementation for nearly a year now. So many of you say how huge doses of B12 are much better than RDA B12 doses. I have read over and over that Methyl B12 is much better than Cobalamin B12. WELL, I have tried this: NERVE SUPPORT FORMULA (google it, this site will not allow me to post the link here). It is supposed to be THE CURE for neuropathy. Well, I take only ONE capsule a day of this NERVE SUPPORT FORMULA, after reducing it from the recommended four a day which gave me ITCHING, RASH, HIVES..now down to just ONE capsule a day, SAME REACTION: ITCHING, RASH and HIVES. I take it with Acetyl-L-Carnitine 500 mg a day, Zinc, Magnesium, Calicum, a regular vitamin tablet and Fish Oil Capsules (purified) and a capsule of Grape Seed Extract a day. WELL, NOW WHAT? The fat soluble B1 and B12 in this NERVE SUPPORT FORMULA are supposed to be THE BEST. And all of you are saying that HUGE DOSES of B12 in the Metyhl B12 version (fat soluble) is the BEST form of B12, the only effective form of B12 to take...up to 5000 mgs a day.  WELL, this NERVE SUPPORT FORMULA CONTAINS the FOLLOWING: Benfotamine........ 150 mgs..6,875% OVER the RDA (form of Thiamine) Methylcobalamin.. 1000 mcg..16,666% OVER the RDA Vitamin B2 ......... 2 mg Vitamin B6 ......... 2 mg Folic Acid........... 100 mcg WELL, I am now having to take BENADRYL I am itching so BAD and red rash on my arms and legs, scalp itching, neck breaking out...so how can this be??  I have NEVER HEARD of ANYONE being ALLERGIC to B VITAMINS, no one here has mentioned this....so NOW WHAT should I do?  Take a different formulation of B1 and B12, the water soluble version (which I read is not effective at all for neuropathy)??? Take a different B1 and B12 fat-soluble version made by a different manufacturer??? B12 seems especially needed to remylienate the damages nerves -- so is there another way of taking Methyl B12 at a lower dose ???? I just do not know WHAT to DO !!   PLEASE HELP ME ! --Hurtin' Nerves Northern Chicagoland 'burbs |
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08-02-2009, 01:34 PM
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Administrator
Community Support Team
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you are welcome re the info on the stickies
 I moved your post down here to the main forum from LisaJane's sticky as that is more for discussion related to improved symptoms and so your topic would be best on a separate thread I hope you find the info you are seeking. being the weekend, and summertime vacations the forums are a bit quieter than usual
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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08-02-2009, 01:46 PM
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Administrator
Community Support Team
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just a PS that the product you are taking may contain other ingredients that you are allergic to...it may not necessarily be the B vits that you are reacting to
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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08-02-2009, 05:49 PM
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Junior Member
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Have you tried the Vitamin Sublingual Liquid B Complex with B-12 that you can purchase at most drug stores. I use one dropper daily. Had labs done.
B12 levels increased. Hope that the itching is better. BonDon |
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08-02-2009, 07:33 PM
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Elder
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Hi HN,
I can't take B complex either, it makes me feel sick. If you can't handle it, you can't. Maybe you can find food sources of the vitamins you're trying to get from the supplements? That's what I have to do for my B vitamins.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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08-02-2009, 08:50 PM
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Senior Member
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i would second what Chemar said about possibly being allergic to an additive or filler and not the vitamin itself. I would try b12 by itself from a different manufacturer such as jarrows, which many here use. If that goes ok you can add a b multi vitamin and see how that goes. this way you can start to narrow down what exactly you are allergic to.
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Allergy to B1 or B12 or both !
Hybrid Mode
