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Old 08-02-2009, 01:01 PM #1
Hurtin' Nerves Hurtin' Nerves is offline
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Default Allergy to B1 or B12 or both !

Thanks for the info about the stickies...found them.

I have a BIG PROBLEM: B vitamin ALLERGY (I suspect) !! Read further....

I have Dx as having "SMALL SENSORY NERVE FIBER NEUROPATHY." None of the Rx works, makes me dizzy, itchy, sleepless or too sleepy...unable to function.

So I have been trying the NATURAL ROUTE via vitamin supplementation for nearly a year now.

So many of you say how huge doses of B12 are much better than RDA B12 doses. I have read over and over that Methyl B12 is much better than Cobalamin B12.

WELL, I have tried this:
NERVE SUPPORT FORMULA (google it, this site will not allow me to post
the link here). It is supposed to be THE CURE for neuropathy.

Well, I take only ONE capsule a day of this NERVE SUPPORT FORMULA, after reducing it from the recommended four a day which gave me ITCHING, RASH, HIVES..now down to just ONE capsule a day, SAME REACTION: ITCHING, RASH and HIVES.

I take it with Acetyl-L-Carnitine 500 mg a day, Zinc, Magnesium, Calicum, a regular vitamin tablet and Fish Oil Capsules (purified) and a capsule of Grape Seed Extract a day.

WELL, NOW WHAT?

The fat soluble B1 and B12 in this NERVE SUPPORT FORMULA are supposed to be THE BEST. And all of you are saying that HUGE DOSES of B12 in the Metyhl B12 version (fat soluble) is the BEST form of B12, the only effective form of B12 to take...up to 5000 mgs a day.

WELL, this NERVE SUPPORT FORMULA CONTAINS the FOLLOWING:
Benfotamine........ 150 mgs..6,875% OVER the RDA (form of Thiamine)
Methylcobalamin.. 1000 mcg..16,666% OVER the RDA
Vitamin B2 ......... 2 mg
Vitamin B6 ......... 2 mg
Folic Acid........... 100 mcg

WELL, I am now having to take BENADRYL I am itching so BAD and red rash on my arms and legs, scalp itching, neck breaking out...so how can this be??

I have NEVER HEARD of ANYONE being ALLERGIC to B VITAMINS, no one here has mentioned this....so NOW WHAT should I do?

Take a different formulation of B1 and B12, the water soluble version (which I read is not effective at all for neuropathy)???

Take a different B1 and B12 fat-soluble version made by a different manufacturer???

B12 seems especially needed to remylienate the damages nerves -- so is there another way of taking Methyl B12 at a lower dose ????

I just do not know WHAT to DO !!

PLEASE HELP ME !


--Hurtin' Nerves
Northern Chicagoland 'burbs
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Old 08-02-2009, 01:34 PM #2
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you are welcome re the info on the stickies

I moved your post down here to the main forum from LisaJane's sticky as that is more for discussion related to improved symptoms and so your topic would be best on a separate thread

I hope you find the info you are seeking. being the weekend, and summertime vacations the forums are a bit quieter than usual
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Old 08-02-2009, 01:46 PM #3
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Lightbulb

just a PS that the product you are taking may contain other ingredients that you are allergic to...it may not necessarily be the B vits that you are reacting to
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Old 08-02-2009, 05:49 PM #4
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Have you tried the Vitamin Sublingual Liquid B Complex with B-12 that you can purchase at most drug stores. I use one dropper daily. Had labs done.
B12 levels increased.

Hope that the itching is better.

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Old 08-02-2009, 07:33 PM #5
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Hi HN,

I can't take B complex either, it makes me feel sick. If you can't handle it, you can't. Maybe you can find food sources of the vitamins you're trying to get from the supplements? That's what I have to do for my B vitamins.
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Old 08-02-2009, 08:50 PM #6
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i would second what Chemar said about possibly being allergic to an additive or filler and not the vitamin itself. I would try b12 by itself from a different manufacturer such as jarrows, which many here use. If that goes ok you can add a b multi vitamin and see how that goes. this way you can start to narrow down what exactly you are allergic to.
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Old 08-03-2009, 11:35 AM #7
Hurtin' Nerves Hurtin' Nerves is offline
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Thanks for the advice !

I just hear that Benfotiamine (B1 fat-soluble) is better than just B1 water-soluble, and that Methyl B-12 (B12 fat-soluble) is better than just B12 water-soluble.

But then I worry that maybe my reaction is that I just cannot absorb so much long-lasting B1 and B12 in the fat-soluble state.

Maybe that is the reason for the allergy ... just too strong.

Maybe I should just try the non fat-soluble B1 and B12?

Is the B12 sublingual Methyl B12? Is the B complex tongue dropper fat-soluble B1 and B12 or just water-soluble?

Also, is B1 and esp B12 water-soluble BETTER than no B1 and B12 at all?
I just have to have it to heal my terrible burning, numb neuropathy of the small nerve fibers (non-diabetic, MDs call it "idiopathic").....so many ways to turn, just don't know what to do next !

-- Hurtin' Nerves
Chicagoland, USA
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Old 08-03-2009, 07:11 PM #8
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"vita" in vitamin means vital, you are not allergic to the vitamins....it would have to be the "carrier/filler" in the tab.....try a different brand, and one vitamin at a time...to try and isolate the issue......as far as the B complex making you sick (this was another poster) taken after a full meal, it shouldnt, good luck to both
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Old 08-13-2009, 01:28 PM #9
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Exclamation Cobalt

You may have an allergy to hapten, but with the skin allergy, that is likely to be cobalt. (Cobalt is a component of B12 and causes skin rashes). However, the body naturally contains B12, so it seems that you can cope with small amounts of B12, but these tablets exceed the RDA (recommended daily amount) so maybe that is why you react. You need to speak to a doctor about this or a pharmacist!
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