This board has been the best resource I've been able to find and it's nice to know that I'm not alone in what I thought at first was some bizarre condition. I posted in another category but wanted to get more specific thoughts on managing my neuropathy which just won't go away.

I'm a 35 year old male in great shape and have never really had to go to the doctor much in my life. I'm active and eat well. The only thing that's really bothered me in the past is milk which I chalked up to lactose intolerance. About a year ago (I still remember exactly where I was), I started to have tingling in my face after eating at an Indian restaurant. Come to think of it, I had experienced a more mild version of it, always after eating, every once in a while for the decade before--just in the face. This time the tingling moved to my arms, then to my legs and began to change in sensation. First it was pins and needles and then turned to burning from my shins down (and electrical pulses in the feet and shins). For several months it was mostly in my legs and feet. After about 10 months the tingling (sometimes light pins and needles) basically started to evenly distribute itself throughout my body. I had a myriad of tests from Lymne, to B12, to cancer, to diabetes, etc. I saw a neurologist who did EMGs and had me do MRIs of the brain and upper and lower back. Everything turned out normal, except a finding of antiglaidines which my neuro assumed was a gluten allergy--celiac neuropathy. I had an endoscopy and it turned out negative for celiac and my GI doctor doesn't have a clue that PN could even be caused by something GI related (I basically had to educate him). I started taking Neurontin which took the edge off of the tingling but didn't make it go away. However, it made me feel very foggy with pressure behind my eyes so I stopped. Now the PN is back as usual. When I exercise it goes away but after it returns. I find myself shaking my leg constantly because the motion either makes it go away or distracts my brain into not registering the sensation.

I'm taking supplements now since the GI doctor and my Neuro basically don't know what to do. The supplements are:

- Multivitamin
- Vitamin E
- B-1 complex
- Vitamin D
- Probiotic
- Fish oil (stopped but am going to restart)

I'm trying the gluten free thing and it was suggested on another thread that I continue it for 6 months (it's been 2). However no change yet.

No other systems that I can tell.

My question is if there is anything else you would all suggest that I do or take to help? The condition is not debilitating but drives me CRAZY and I'm trying not to assume it's something that may turn worse (although, the uncertainty is the worst part of it). It doesn't help when the neuro says things like we may never know.

Your thoughts are greatly appreciated to help me manage the PN.