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05-06-2010, 08:02 AM | #1 | |||
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I thought some basic information for those newly diagnosed with neuropathy might be helpful. Here are some of the articles and resources I have found to be particularly informative:
Articles:
Other Resources: Recommended Reading: John Senneff Books:------------------------- *Note: Over the years I have saved information from websites in pdf format. As I started to copy links to add here, I found that many links were no longer valid, and others, like NINDS, had changed the information. If you would like to save websites in pdf format, see my post here: FREE pdf creator - 3 easy steps .
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. . .My SFN story: . |
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05-07-2010, 05:31 AM | #2 | |||
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Wisest Elder Ever
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This site is a wonderful resource to show the anatomy of the feet and placement of the nerves.
https://www.northcoastfootcare.com/f...t-anatomy.html There are interactive pain diagrams also which are helpful. https://www.northcoastfootcare.com/f...in-finder.html I think this is one of the best sites for the feet I've seen over the years. Your feet may have mechanical problems in addition to the PN, which may be causing the PN or contributing to MORE pain for you. So please just take a look at this site and see what strikes you as helpful. For example, I found the shoe lacing suggestions very helpful.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-07-2010, 06:33 AM | #3 | |||
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Thanks mrsD. That is a great site, and reminded me of one I know about. It isn't about PN specifically, but does describe and demonstrate (through videos) a complete neurologic exam:
NeuroExam.com So, if you have recently been referred to a neurologist and are waiting for your first appointment, this will show you what to expect: Or, if you have ever seen your medical records and wondered what "Muscle Strength = 3/5" or "Deep Tendon Reflexes = 3+" indicated, you will find the answers here.
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05-15-2010, 06:48 AM | #4 | ||
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Magnate
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--that cycelops found at the Washington University at St. Louis Neuromuscular Disorders site:
http://neuromuscular.wustl.edu/over/...alwebn2ie2.pdf |
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09-24-2010, 06:38 AM | #5 | |||
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Wisest Elder Ever
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Here is a new article about a study from Mayo....
Inflammatory damage to nerves following surgery: http://www.medicalnewstoday.com/articles/202127.php
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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09-24-2010, 07:38 AM | #6 | ||
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Thank you for the article Mrs. D. It makes complete sense in my own case. There is one thing I am confused about though. It speaks to immunotherapy. For those of us who have had fusions we are not allowed to take any anti-inflammatories as inflammation is part of the healing process. Or, I should say, we aren't allowed to take any until about 6 weeks or so after surgery. So, I wonder if I am confused or not quite undertanding what immunotherapy would consist of.
Anyway, thank you again because I did NOT have Neuropathy until, like the article states, about 30 days after surgery. It didn't come on suddenly...just over a matter of a few weeks. |
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10-21-2010, 10:19 AM | #7 | |||
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For those newly diagnosed with peripheral neuropathy, as well as anyone wanting to take control of organizing his or her own lab test results:
www.Lizajane.org This is a site I put up years ago, and which is popular with pn-ners world wide. It contains lists of tests which should be done to make diagnoses in cases where the cause of neuropathy is unclear. The charts can be downloaded into an Excel Spreadsheet. You can fill in the charts on your computer, or just print them out and fill them in by hand. You can print them out and take them to your doctor. (Despite trepidation, nobody has yet had a doctor be anything other than grateful to see them). The charts indicate tests for primarily sensory and primarily motor neuropathy. They include tests for genetic, toxic, and metabolic causes. There is a checklist to keep track of what tests you've had, and which your doctor says is unnecessary. Even routine labs, like blood sugars, can be put into the charts, and you can follow them over time to see your progress, good or bad. Please feel free to use them, and to contact me if you have any questions or suggestions. LizaJane
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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10-25-2010, 04:11 PM | #8 | ||
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New Member
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Hi Liza,
I'm a new member to NT and am trying to learn my way around the site. I not sure where or who to start with, but thought you could steer me in the right direction. I have been diagnosed with PN, but have felt my doctor isn't too much on top of my case or guiding me. I must admit I feel very hopeless right now. The pain is getting worse and I don't know what to do. I read part of your post that says it gets better. I just need some hope. Thanks, Dave |
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10-26-2010, 10:09 AM | #9 | |||
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Wisest Elder Ever
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This is a very good article on neuropathies, with definitions, tables, lists, etc:
http://www.medscape.com/viewarticle/510706 An Approach to the Evaluation of Peripheral Neuropathies Mark B. Bromberg, MD, PhD You can join Medscape for free...if you don't belong already. It is a wonderful resource to have at hand to consult on many medical conditions, new drugs, etc.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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02-24-2011, 01:00 PM | #10 | |||
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Wisest Elder Ever
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This is an excellent illustrated model showing how pain is generated from the periphery and perceived in the brain:
http://www.georgiapainphysicians.com...od2_slides.htm Thanks to boytos for finding this link and sharing it here.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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