Mrs. D's comments on Neuropathy Support Formula
 

Thanks Mrs. D, your comments on Neuropathy Support Formula make sense. You asked if I had my B12 tested; I assume it was included in a wide battery of blood tests that my neurologist ran, all with normal results. Also I tried a B vitamin supplement for several months with no help noted. So I don't think Neuropathy Support Formula is for me and it is expensive as you noted.

I was borderline diabetic at the beginning of the year, I've since dieted and am down 40+ lbs. with much better blood sugar numbers. The neurologist thinks my high blood sugar may have contributed to my PN. I am also a regular Scotch drinker. So I will look into Benfotiamine per your suggestion and will discuss with my neurologist at my second visit which is this week.

Thanks, you have a lot of knowledge on the subject!

Hi Mrs. D
 

What is the name of the one that has cynaide in it? Alpha Lipoic Acid? I simply will not take it with poisen as I have already been poisened with DDT. I am sure of this. I will copy your posts and give it to my doctor on tuesday.
I also have very very bad Gerds, Barretts esphagus is being watched carefully for cancer. which one causes nausea?
I have enough B12 shots for three months. don't know beyond that time frame. the CoQ 10 is 100 mgs. B complex is timed released put out by Finest Natural. Tumeric is 500 mg. Again, any and all informations i greatly appreciated. will copy your post now. ginnie
When given these things, no dangers were presented, possible side effects, or exactly what each one did. I only know I feel real weird, tired, more depressed nauseated, headache. thanks ginnie

Hi Mrs. D
 

looking at bottle of injectable B12. Is this cyanide? Called cyanocobalamin? 1000 mcg/ml
10 mil bottles.why the heck would a poisen be admisistered to a person already poisened with multipal auto immune problems? I don't understand. I had a direct response to DDT poisen from the blueberries in michigan during the 50's. I ate right off the plants proved to be sprayed. Also had epson barr at 9 years old. all kinds of stuff when I was little. She is a board Certified physiatrist. doesn't that mean she knows how the body works with absorption of these vitamins and supplements? very confused ginnie

Cyanocobalamin is in the B12 shot.

Are you sure about that every other day for 3 months?

That is extreme. Usually they are given often say, once a day for 7 days or every other day for 2 weeks, then once a week, or twice a month. Best to have blood work done in between shots to see if they are working. So the frequency is only in the beginning, and does not continue over time.

Cyanocobalamin is B12+cyanide ...it is a tiny amount but given so often, it might be hard on some people. Then there are those who cannot activate this synthetic form, and so it doesn't work right.

Methylcobalamin oral is much better IMO. OTC 5mg a day on an empty stomach, and no cyanide.

I'd clarify why the B12 so often by injection. There is another form for injection called hydroxocobalamin that does not have the cyanide portion. Methyl B12 is available in shots, but typically is made by compounding pharmacies and doesn't come in a multi use vial for self administration.

how often Mrs. D
 

I was given three vials, each vial lasts two weeks, so a month and a half ever other day. I go back on tuesday just after two weeks. I will report all, and I am sure glad I asked you. I have not felt right since starting any of it. I wondered if it was all in my head due to stress etc? I also Have SEVERE GERDS and do not want ANYTHING to increase my nausea, and heart burn. I am at risk right now to cancer. I take a double proton pump inhibibtor as it is. Stomach does not feel good, and I don't know if it is hunger sometimes or nausea. heart burn has increased this past two weeks also. I so much want to find a doctor to trust, and that isn't going to give me stuff that makes me worse. Two refills were given to me regarding the B12 injectable, so I do think she meant this as a longer therapy. My nails are peeling off the top, does this have something to do with why she wanted me on this? In general I feel lousy. I will bring all up to her, no question about it. I appreciate you MrsD. I am glad we have NT, to go to, to help us sort through things. thanks again ginnie:hug:

Good luck at the doctor. Hope you start feeling better! Yes, the Cyano B12 is really not needed. Doctors really should know this, but some do not.

I take Methyl. B12. I used to get shots because my level was SO low, then it was fine so I take it sublingually. Works great!

I have to be very careful with B6. Too little is bad but too much is bad for the nerves also. I always get tingling that lets me know. It is added to a couple of supplements but I never take it alone.

Hi Sally
 

Thank you. I will tell doctor all. what bothers me is that she is a Physiatrist, should she know about cyanide? Can't figure out why she would have an immune compromised patient taking it to begin with. I will get answers. thank you for helping me. I am glad I have this place to come to, and get my worries adressed. ginnie

You mean a Pyschiatrist? Can you see a regualar MD? An MD that knows about suppements? Integrative MD's are good.

No Sally
 

She is a board certified Physiatrist, not a mental doctor, all though I could use that too!. this kind of doctor works on a cellular level to try and restore health, and she is suppose to know about all kinds of nutrition and suppliments. That is why i questioned her, and this treatment, she should know about this. Someone who has a compromised immune system I just don't think should be taking cyanide in any form. She knows this. I have only seen her once, and we don't know each other well yet. I will see her every two weeks for awhile, and give her a chance. Look up this Physiatrist, she also is a pain specialist, that was my origional reason for finding a new doctor. Thanks sally, ginnie

I have a doctor's appointment this week and I suppose that, in order to get good readings on my tests, I should stop my supplements. The problem is that I do not look forward to days of foot and leg cramping.

Advice?