NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   PN Tips, Resources, Supplements & Other Treatments (https://www.neurotalk.org/pn-tips-resources-supplements-and-other-treatments/)
-   -   ~~SUPPLEMENTS~~~ for Peripheral Neuropathy: (https://www.neurotalk.org/pn-tips-resources-supplements-and-other-treatments/121683-supplements-peripheral-neuropathy.html)

sojourner777 07-05-2010 01:34 PM

resveratrol
 
Mrs D,
Do you know anything about the potential effects of resveratrol on PN?

mrsD 07-05-2010 02:31 PM

I can only assume it would be helpful. That is if you get good quality resveratrol.

I think antioxidants are useful for PN...they quench free radicals etc. I take 300mg grapeseed extract daily, and krill oil has one in it too...to make it the red color.

And there are the studies showing simple Vit C in high amounts of 500 to 1000mg can prevent onset of RSD from surgery on the foot or hand. That is something to think about. RSD being a neuropathy of the sympathetic nerves. Why is not understood, but inflammation must be at the heart of that action.

So if you can afford resveratrol, I say give it a try.

sojourner777 07-05-2010 09:38 PM

Thank you MrsD.
I notice you have recommended Puritan's Pride as a source of supplements in many of your responses - does it have better prices than other providers?

mrsD 07-06-2010 06:01 AM

Puritan's has better prices on some things, but not others.

For example with the sale going on now, for d-ribose (which is expensive), buy one get 2 free... I saved about $30. (over iherb)

They do raise their prices for "sales", but even then they can be a "deal". I used to get my grapeseed extract from them, but then Costco started carrying a nice softgel type, so I bought that last time.

After you buy from them once, if you give your email, they will send occasional emails, for free shipping + perhaps a $$ discount coupon. The buy one get 2 free is the major sale I use.
I don't think the savings on their other sales is as great. They only do this one once a year in summer typically. (If you save your catalogs from them, you will see they alter prices according to sales-- this bothers me somewhat, but I think you still save alot in the end.)

In the past Puritan's did not have the "newest" supplements, but I see that is changing. They now have methylcobalamin and the d-ribose which I had purchased at iherb previously.

I think their quality is fine. I've used them for years. But just not for everything.

sojourner777 07-06-2010 08:24 AM

Thank you Mrs. D
I have been taking Shaklee vitalizer complex but I'm putting together a list of individual supplements to take after reading this site. I have a few questions about either dosage and/or provider on a few of them. would you mind giving your input?
supplement

sojourner777 07-06-2010 09:08 AM

Sorry - I hit the wrong key

Supplement dosage provider

benfotiamine 300 mg/day - 2 doses iherb - Doctor's Best
methylcobalamin 5 mg/day iherb - Jarrows methyl B12 5000
P5P 50 mg/day iherb - Now Foods Coenzyme B6
folate 1600 mcg/day - 2 doses iherb - MetaFolin by Solgar
magnesium 1/2 of RDA WalMart - SlowMag 2/day
iherb - Ionic Fizz mag Plus
acetyl-L-carnitine 500 mg;/day - 2 doses iherb
grapeseed extract 300 mg/day costco
r-lipoic acid 600 mg iherb

These have questions
D3 5000 IU/day ?
curcumin ? epic5health - Curcugel 500
CoQ10 ? ?
zinc ? ?
calcium ? ?
glucosamine ? ?
omega-3 fish oil 1200 mg - 2 doses ?
d-ribose ? Puritan's Pride

I have not had any labs done on these levels - I am scheduled to meet Friday with the nurse practitioner of one of the two local neurologists who I have been told works with Neuropathy - can't get an appt with the dr until Oct.
I am in Mississippi. Do you have knowledge of doctos/centers in the Southeast - someone to recommend? I have read of Dr. Norman Latov in NY on this website. I want to take the best steps I can in dealing with this - these neuropathic symptoms of burning and pins and needles started within the last two months and it has taken a toll on my life. I am so grateful for this website - you have all given me hope and inspiration - thank you.

mrsD 07-06-2010 09:44 AM

I am going to put my comments in red within your quote:
If I don't comment, that means okay.

Quote:

Originally Posted by sojourner777 (Post 672573)
Sorry - I hit the wrong key

Supplement dosage provider

benfotiamine 300 mg/day - 2 doses iherb - Doctor's Best
methylcobalamin 5 mg/day iherb - Jarrows methyl B12 5000
P5P 50 mg/day iherb - Now Foods Coenzyme B6
folate 1600 mcg/day - 2 doses iherb - MetaFolin by Solgar
magnesium 1/2 of RDA WalMart - SlowMag 2/day
iherb - Ionic Fizz mag Plus
you don't need ionic fizz if you use the SlowMag and vice versa
acetyl-L-carnitine 500 mg;/day - 2 doses iherb
grapeseed extract 300 mg/day costco
r-lipoic acid 600 mg iherb
r-lipoic is very strong, I'd start at 50mg a day and if you feel okay with that --it can be stimulating-- then increase to 100mg a day. r-lipoic is more potent than alpha type, which the 600mg would be more appropriate. I wouldn't go over 100mg a day of r-lipoic at this time.
These have questions
D3 5000 IU/day ?
If you get no sun at all in Mississippi, then 5000 IU is probably okay, but if you do get sun, I'd get tested to see exactly what dose you need. Most of the new recommendations on Vit D3 are you can start at 2000 IU safely without testing.
curcumin ? epic5health - Curcugel 500
one or two a day. You can start at one, to save some $$
CoQ10 ? ?
This can be expensive, so start at 100mg a day of enhance absorbing type..called Q-sorb at Puritan's

zinc ? ?
if you don't eat meat or seafood, then yes. But you won't need this if you are eating well and are not a vegetarian. OptiZinc is the best at one a day if you decide to use it
calcium ? ?
I just saw a new recommendation by a cardiologist who says taking high doses of calcium is not necessary and may not be safe when using high dose D3. So if you eat dairy and veggies, you may not need any calcium extra...if you take some don't go over 600mg at this time.
glucosamine ? ?
I don't see much benefit with this, save your $$ at this time. Studies do not show much value today.
omega-3 fish oil 1200 mg - 2 doses ?
d-ribose ? Puritan's PrideI'd save this for later...I am still trialing it for various effects. So far I find it helping with stamina and sleeping. But since it is expensive, save it for later, as you may not need it.

I have not had any labs done on these levels - I am scheduled to meet Friday with the nurse practitioner of one of the two local neurologists who I have been told works with Neuropathy - can't get an appt with the dr until Oct.
I am in Mississippi. Do you have knowledge of doctos/centers in the Southeast - someone to recommend? I have read of Dr. Norman Latov in NY on this website. I want to take the best steps I can in dealing with this - these neuropathic symptoms of burning and pins and needles started within the last two months and it has taken a toll on my life. I am so grateful for this website - you have all given me hope and inspiration - thank you.

I don't know of any doctors to consult ..others here may have ideas about that.

If you are postmenopausal, I'd use a vitamin product without iron. I don't know what is in your product, but there are many "senior" type products now, with minerals without iron. If you take a multi-- you probably won't need extra zinc.

sojourner777 07-06-2010 10:20 AM

Thank you! I just watched the vit D video you mentioned in another thread - it was very informative.
Thank you again!

caldeb1 07-12-2010 03:47 AM

I am a new user how do I post a question to this site.
 
I am a new user with perpherial neuropathy but I cannot figure out how to post a question to the site.
Debbie

Koala77 07-12-2010 04:19 AM

You're doing just fine caldeb1, but you're in the 'tips' section at the moment!

Under here I've provided a link. If you click that link it'll take you to the main PN forum, and you can either reply to a thread already commenced, or start one of your own.

http://neurotalk.psychcentral.com/forum20.html

Towards the top, on the left you'll see new thread or post reply, depending on what page you brought up.
Click on that one and you're away!

Good luck, and let us know if you need any more assistance.


All times are GMT -5. The time now is 06:29 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.