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12-26-2012, 04:59 PM | #51 | ||
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Junior Member
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Doctors did not have me on any antibiotics. B 12 level is at 738. CSF had WBC one yr. after I got sick, they were at 9 and the doctors like WBC to be 5 or below. I don't know why they didn't do anything about the elevated WBC one yr. after being sick. I am not a pre-diabetic either. I was in a Third world country - had explosive diarrhea, jab of pain way up high inside my nose/sinuses, then waves and waves of pricks all over my entire body head, face, my entire body. Now 10 yrs. later, still abnormal sensations, constant 24/7 thickened post nasal drainage from right side, watery eyes, even though I have dry eyes. No Sjorgen disease, I had lip biopsy. I had one biopsy on my face under my right eye area, right calf area. Came back as SFN.
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12-26-2012, 05:02 PM | #52 | ||
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Junior Member
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Oh by the way - doctors took me off Pravachol (statin) for months- didn't do anything. Doctors think post infectious. Virus- The elevated WBC in spinal tap, doctors wrote CNS inflammation, but one year after the intial sickness???I am at wits end.
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12-26-2012, 05:16 PM | #53 | |||
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Wisest Elder Ever
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So you are back on pravastatin? Not a good idea for anyone with nerve problems. Statins are known PN causers (among other things).
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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01-04-2013, 10:02 AM | #54 | ||
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Junior Member
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All my vit. levels came back fine- normal. I do not have diabetes or pre-diabetes. My Small fiber sensory peripheral neuropathy came after I had as the doctors say "post infection" viral. 10 yrs. now and no help with any type of medication. I do not have pain, I have all abnormal sensations, tingling, rippling etc. and also my sinus secretions have changed as well- 24/7 chronic post nasal drainage on right side. That is the side way up high inside my nose is where I got a jab of pain, then the secretions ran down my throat like water, then after 5-7 seconds later it stopped and thickened up behind my nose and has gotten worse, especially after total ethmoidectomy, and maxillary antrostomy. ENT also cut off posteriorly on inferior turbinate a mulberry tip as he calls it, a enlarged inflammed sac of blood or inflammation - I don't know which it is. ENT did this surgery thinking it might help - made things worse. I had 3 sphenopalantine nerve blocks where they go through my face and up into the sphenopalantine nerve. Didn't help either. I am still thinking its from my autonomic nervous system. Any ideas anyone???
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01-09-2013, 10:04 AM | #55 | ||
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Member
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I went back to taking R-Lipoic. I dont say it helps my PN but being an antioxidant, I think it will help me with my immune system.
Another reason why I take it is because it says in the label that it can help maintain a healthy blood sugar level. Since August of last year, my sugar has been elevating with no changes in my diet. Although, my last AIC was 5.6 and fasting glucose is 91. But, at one time, my fasting blood su gar was 126. Still the endoc did not seem worried but I am. So, I am doing what is necessary to avert it. |
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"Thanks for this!" says: | mrsD (01-09-2013) |
01-09-2013, 11:13 AM | #56 | |||
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Member
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Yes, Alpha Lipoic Acid and Benfotiamine are so good for that and many reasons.
Exercise also. I add cinnamon to oatmeal and that is good also. Lots of good things to help. I have no problems but I am careful so it stays that way.
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01-09-2013, 02:23 PM | #57 | ||
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Quote:
Me too, I put ground cinnamon in my oatmeal together with medium sized banana and 1/4 cup of frozen blueberries. |
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03-12-2013, 11:43 AM | #58 | ||
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Junior Member
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Instead of Acetyl-L-Carnitine 500 mg
alpha-Lipoic Acid 200 mg. (both are in 1 cap) 3 x daily Change to R-Lipoic Acid. 100 mg 1 x daily ? Is this correct ? What I read was alpha-Lipoic Acid needs to be 600 mg. daily But I can't find a conversion over to R-Lipoic Acid. Thanks ! |
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03-12-2013, 12:00 PM | #59 | |||
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Wisest Elder Ever
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100mg of the active R form is very absorbable, where as the
old mixture is not, and is only 1/2 active. The new R stabilized form, gives much better blood levels. It is called NaRALA. Doctor's Best makes it, and so does LEF. It removes the need for high doses of the old ALA.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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02-16-2016, 11:52 PM | #60 | ||
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New Member
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MrsD mentioned this new formulation but I cannot find the Nala version of Dr. BEst to buy.
Anyone with any clue? |
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