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12-02-2010, 02:56 PM | #1 | |||
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Wisest Elder Ever
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This is going to be a long post. This is a very large subject.
IVIG stands for Intravenous Immune Globulin. Here is a good link that explains it: http://www.cidpusa.org/ivig.html IVIG is discussed here on the PN forum below this subforum area, very often. I did a search today and there were 422 threads, and they will continue to grow in number. I often call IVIG , "the big guns"... because it is very sophisticated, very expensive, and very effective for certain types of PN which are autoimmune in nature. That means antibodies in the patient attacking the patient's nervous system. Dahlek, a member here has contributed some help in gathering the links I am going post here. And she is very experienced with IVIG and often posts here with her knowledge and links she has gathered. Here are some links for overview: http://www.news-medical.net/news/2006/08/03/19244.aspx there are two pages to this link, which has alot of ads, I apologize for, but be sure to read both pages. Criteria for patients to meet that some doctors use before deciding on IVIG: http://journals.lww.com/neurotodayon..._Raise.11.aspx This link is to the I.G. Living magazine which is a very good resource: http://www.igliving.com/AboutUs.aspx This is another link for guidelines for use: http://www.hss.edu/conditions_14271.asp And this PDF explains the process and what to expect: http://www.ashp.org/s_ashp/docs/file...Admin-Utah.pdf details about infusions, side effects, and how they may be administered. The following two links list the manufacturers names and types of IVIG: http://www.fffenterprises.com/Email/...VIGSupplyIndex this link gives phone #s if you need to call one: http://www.pptaglobal.org/patient/ivig.aspx The following three links to our PN forum have discussions that most new patients would find useful: costs, insurance, administration of infusion details, etc: http://neurotalk.psychcentral.com/sh...highlight=IVIG http://neurotalk.psychcentral.com/sh...highlight=IVIG http://neurotalk.psychcentral.com/sh...highlight=IVIG IVIG is being used more and more often now for many autoimmune conditions. Here is a link to a list: http://www.cidpusa.org/disease.html Rapidly progressing PN, and CIDP, and GBS are the 3 most often seen here. But we have posters on Multiple sclerosis forum, Myasthenia Gravis forum, and Autoimmune Forum also using IVIG. There is even a new experimental treatment for RSD now using weaker concentrations of IVIG. http://www.healthcentral.com/chronic.../promising-rsd http://journals.lww.com/neurotodayon...l_Pain.10.aspx The proper diagnosis of a patient's neuropathy is important therefore when autoimmune factors are suspected. IVIG may be helpful for some patients if they qualify for this treatment. Patients curious about how others fared on this treatment can search each of the forums I listed above and find those threads. Over the years more and more people are using IVIG and so there are many who come here to share that experience.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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06-06-2015, 12:43 PM | #2 | |||
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Wisest Elder Ever
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This link is to a good post that explains some of the newer
brands of IVIG and what is different about them: http://neurotalk.psychcentral.com/post1146656-2.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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