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03-11-2011, 04:04 PM | #1 | |||
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Wisest Elder Ever
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If you had chickenpox as a child, you can have pain, generated by the latent virus. It does not always make vesicles or rash.
I am also of the opinion that herpes can do it too, since they are related. If the lysine works for you, I'd take that as a sign! There is a diet to balance arginine/lysine. http://www.herpes.com/Nutrition.shtml One wants to keep arginine lower in ratio to lysine if one has a history of any herpes.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Nervous (03-11-2011) |
03-11-2011, 04:08 PM | #2 | ||
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Quote:
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Is it possible that my small fiber neuropathy symptoms are, in fact, shingles symptoms? Or is shingles a kind of SFN? Last edited by Nervous; 03-11-2011 at 04:29 PM. |
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03-11-2011, 04:59 PM | #3 | |||
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Wisest Elder Ever
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Shingles is a form of neuropathy. I believe it lives in the dorsal root ganglia in the spinal cord.
It is called Post herpetic neuraglia. http://www.mayoclinic.com/health/pos...ralgia/DS00277 I have had shingles down my right arm, and I still get pain from it now and then. It can occur anywhere from the distribution of the chickenpox you had when younger. I believe it is called a ganglionopathy: http://www.ehow.com/facts_6388067_ga...uropathy_.html If you suspect shingles you can have blood work for the titres of the antibodies to the virus. Several ones can be done. I had both simplex and zoster run when I had my shingles because they were in an odd place (usually it is across the torso chest back area). My zoster titres were very high, but simplex low. So I took antivirals for quite a while, and also during 2 severe pain outbreaks. That was a decade ago.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Nervous (03-11-2011) |
03-11-2011, 07:56 PM | #4 | ||
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I was tested in 2008. My titres showed that I did not have simplex, and I do not recall that anyone said anything about zoster-specific titres. I had neuralgia, but my symptoms were atypical of shingles. In spite of this, and having no better diagnosis, they said it was shingles and called it a day. Two years later, I had a new and different un-diagnosable pain in my foot. Upon examination of the foot issue, a rheumatologist diagnosed me with small fiber neuropathy. Since the prognosis and treatment for shingles and the prognosis and treatment for SFN are about the same, I am wondering whether it makes a practical difference what I have. |
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03-12-2011, 05:03 AM | #5 | |||
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Wisest Elder Ever
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Well, the antiviral drugs do work. We had a person here way back in the early 2000 on our old board with severe pain in the back/chest. She finally had testing and got Famvir for it, and it cleared the pain for her.
So if you have been tested and show high zoster titres I think trying the antiviral may give you some pain relief. Zovirax, Famvir or Valtrex are the typical antivirals used. Otherwise all you have is high dose l-lysine.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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03-12-2011, 09:26 AM | #6 | ||
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I was on Valtrex for a full course, without result. How "high" a dose of L-lysine are you suggesting? Thanks! |
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03-12-2011, 09:53 AM | #7 | |||
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Wisest Elder Ever
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I would start at one gram a day, and work up to 2. Take 2 grams a day for a month and see what develops for you.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Nervous (03-12-2011) |
10-03-2017, 10:35 AM | #8 | ||
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Magnate
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Mrs. D,
I suffered from outbreaks of cold sores since childhood. The familiar throbbingi would give me warning.....for some time I took an over the counter gel (can't recall the name). While at work one day, a co-worked mentioned his aunt worked in an area of supplements and mentioned L-lysine. Also mentioned I should take for preventative of coldsores and to take as soon as this feeling starts. It really help in most instances stop the coldsore from coming on. I took 500 to 1000 mg tablets. Still have a bottle in my cabinet. Eventually got a prescription for Denavir which worked very well and would apply as soon as the throbbing started which usually stopped the coldsore from coming up. Since that worked so well, I eventually stopped using the Llysine. For the past few years, my outbreaks have lessened. I still carry a small tube of Denavir with me for just in case purposes. I get a flu shot but always decline getting the one for Shingles. I fear that I will activate the virus and don't want to take the chance this will start a series of problems or even cause the Shingles. I deal with Peripheral Neuropathy and take pain meds; but never really considered the L-Lysine as a supplement. Now am wondering if I should start taking the Lysine on a daily basis. Would appreciate any suggestions. Gerry |
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10-03-2017, 12:55 PM | #9 | |||
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Wisest Elder Ever
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I think it is really up to you.
The vaccine as I recall is only effective in about 50% of patients anyway. I think you would need at least 1000mg of Lysine (maybe more). I would use it 500mg in the morning and 500mg at night.(divided doses) There are really no serious issues with it and it is pretty safe. I had a herpes panel done, back when (over 20 yrs ago) when I had shingles when I was still working. My doctor was surprised that my herpes I was very very low. The lowest she ever had seen. But my shingles titres were very high. I use NOW or Puritan's for my lysine. Last few years I've had fewer warnings of an outbreak. I keep a low easy lifestyle after retirement, which helps.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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