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Old 05-04-2013, 05:48 PM #1
clifford1 clifford1 is offline
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Default nortriptylene for neuropathy

I cannot tolerate either lyrica or Neurontin, so now I am starting on nortriptylene. Only on 23mg so far, but coming off the nerontin brought all my pain back in a hurry. Anyone taking nortriptylene for neuropathy. Any side effects. How much mg's before you got some relief, if any?
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Old 05-06-2013, 05:00 PM #2
groucho groucho is offline
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Quote:
Originally Posted by clifford1 View Post
I cannot tolerate either lyrica or Neurontin, so now I am starting on nortriptylene. Only on 23mg so far, but coming off the nerontin brought all my pain back in a hurry. Anyone taking nortriptylene for neuropathy. Any side effects. How much mg's before you got some relief, if any?
I would be curious as to how you got to 23mg. I know they have 10 & 25 mg capsules. I started with 25 mg of Nortriptylene about 3 months ago, but I emptied out about half the contents of the capsules, and took the partial caps for 5 days, then onto the full 25 mg capsules.

I started feeling the capsules just a few days after starting 25mg, but have heard others say it takes weeks to achieve results. 25mg seemed like it was wearing off several hours before my evening dose after I was on it for a couple of weeks. I'm on 50mg now once daily now & it isn't a cure all & won't relieve symptoms altogether. The gabapentin (neurotonin) made my head much foggier, as I went up to 600mg 4x a day by the end of 8 months. I then asked for the Nortriptyline, and I am not sorry.

As a matter of fact, this stuff has caused me to lose 4-5 pounds (curbs my appetite somewhat), but it makes me anxious & jittery, which has settled some, but not entirely. It also gave me insomnia until I hit 40 mg. I've had other side effects, but you should find out for yourself, what it does to you, and not look for something that might not happen. If you look around at medical websites, you'll find it has almost every side effect imaginable, so it would be easy to convince yourself of one or more of them. LOL

I'm guessing you just started the Nortrip & wonder why it's not affecting you as quickly as the Gaba, but it's the nature of the beast. Give it a fair chance. I have an old Navy buddy who started it a few months before me, which gave me a preview, but my side effects are a bit different than his.
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Old 05-08-2013, 08:53 PM #3
clifford1 clifford1 is offline
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Default nortriptylene for neuropathy

Quote:
Originally Posted by groucho View Post
I would be curious as to how you got to 23mg. I know they have 10 & 25 mg capsules. I started with 25 mg of Nortriptylene about 3 months ago, but I emptied out about half the contents of the capsules, and took the partial caps for 5 days, then onto the full 25 mg capsules.

I started feeling the capsules just a few days after starting 25mg, but have heard others say it takes weeks to achieve results. 25mg seemed like it was wearing off several hours before my evening dose after I was on it for a couple of weeks. I'm on 50mg now once daily now & it isn't a cure all & won't relieve symptoms altogether. The gabapentin (neurotonin) made my head much foggier, as I went up to 600mg 4x a day by the end of 8 months. I then asked for the Nortriptyline, and I am not sorry.

As a matter of fact, this stuff has caused me to lose 4-5 pounds (curbs my appetite somewhat), but it makes me anxious & jittery, which has settled some, but not entirely. It also gave me insomnia until I hit 40 mg. I've had other side effects, but you should find out for yourself, what it does to you, and not look for something that might not happen. If you look around at medical websites, you'll find it has almost every side effect imaginable, so it would be easy to convince yourself of one or more of them. LOL

I'm guessing you just started the Nortrip & wonder why it's not affecting you as quickly as the Gaba, but it's the nature of the beast. Give it a fair chance. I have an old Navy buddy who started it a few months before me, which gave me a preview, but my side effects are a bit different than his.
I made a typo. I am taking 25mg or one capsule a day. After being on 600mg of Neurontin and not having it help much at all, but causing terrible stmach distress( which was the problem on lyrica, only that was even worse), I had to change doctors. The 1st one wouldn't take me off the Neurontin and sent me to see a gastroenterologist who said" Get off the Neurontin or take another prescription for the intestinal problems" The burning came back almost immediately and hasn't subsided after a week on the new meds. I am struggling with the side effects, mostly intestinal, again. I have been on plenty of meds like nortriptylene over the years for other problems, and didn't have these same side effects. Maybe I'm just getting older and more sensitive, but I was taking 4 meds for depression and anxiety and am now off of them. I think the neuropathy was abated by the other meds, and I didn't feel the full force of it until I got off clonipin, mirtazipene, trazodone, and vistoril. I can survive with the stomach distress if the meds are going to work on the neuropathy, but on the other two I had the side effects and it wasn't giving me much relief either. Anyone having side effects on the nortriptylene?
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Old 06-30-2013, 07:28 AM #4
TriGuy TriGuy is offline
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I am taking 600 mg Neurontin three times a day and 60 mg Nortriptyline with no side effects. Has my pain pretty much under control.

Do you know the cause of your small fiber neuropathy. I have been tested for all normal causes. I still feel that until I can treat the underlying cause, the drugs like Neurontin and Nortriptyline just blunt the pain, so it is hard to know if the condition is getting better or worse or still the same.
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Old 06-30-2013, 05:37 PM #5
mspain mspain is offline
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Quote:
Originally Posted by clifford1 View Post
I cannot tolerate either lyrica or Neurontin, so now I am starting on nortriptylene. Only on 23mg so far, but coming off the nerontin brought all my pain back in a hurry. Anyone taking nortriptylene for neuropathy. Any side effects. How much mg's before you got some relief, if any?
What problems do you have with Neurontin?
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Old 07-23-2013, 10:17 AM #6
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I was also on Lyrica and neuronton and neither has helped my situation. Now will be trying sub lingual B12 methylcobalamin. MrsD. Mentioned how statins have very dangerous for nerve damage. I have been on statins for a very long time. Had no problems till few years ago.
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Old 09-06-2013, 10:15 AM #7
Bluebelle Bluebelle is offline
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Smile Hello, thought I`d just drop in here

Quote:
Originally Posted by mspain View Post
What problems do you have with Neurontin?

I got cotton-mouthed the first few days, but that symptom is almost gone, now. No other side effects here.
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