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02-27-2014, 07:54 PM | #1 | ||
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Marie I amtaking same amount of the supplements as you tried, 100mg r-lipolic and 150mg of benfotmine. My pained has decreased , but not gone , at a level that I can manage. I was on Lyrica, the last med I tried, had bad side effects and a hard time during withdrawel. Dr. had said some people it helps and some just cannot tolerate it, I was among latter group sadly.
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02-27-2014, 07:56 PM | #2 | ||
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And im not a diabetic, just idopatic
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03-01-2014, 01:04 PM | #3 | |||
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Thank you for responding. Do you have Idiopathic SfN? Its amazing that you are getting relief with only the R lipoic Acid and Benfotamine. Do you take any other type meds for your pain? I have SFN , over two years it has progressed to my arms, hands, mouth and torso. They called it length-dependent (started in my calves & feet) but I have it widespread now. I take 325 mgs Lyrica, I tolerate it ok but I still have so much pain. I get mostly tingling, buzzing, tightening, lancing pain in my arms, legs and feet. Some-days my skin burns all over including my face and lips. This is a horrible , miserable disease to have. The lyrica does not help as much as it should. How much were you taking and and how long did it take you too withdraw? Withdrawal scares me so much. What kindof Neuropathy do you have and what else do you take for your pain? Do you have the same symptoms I have. Sorry for all the questions. Thanks Marie |
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03-01-2014, 03:55 PM | #4 | |||
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Quote:
Ron |
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03-06-2014, 08:42 PM | #5 | ||
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Marie, it took me 6weeks to withdraw off Lyrica, but it was still worth a try, it just took me too long to realize how bad my side effects were. I have idiopathic neuropathy. I already was on an antidepressant , brought on by a bad time with 3 different cancers at once, Wellbutrin, I still have pain but reduced enough that I can do ok, not wanting to do more meds, Dr says only 2 more to try and steroids. THe ones left have possible heavy side effects, so for now grit my teeth and sometimes take a Xanax to calm down. Good luck
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07-22-2014, 08:40 AM | #6 | ||
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07-22-2014, 02:23 PM | #7 | |||
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[QUOTE=peralta 600 mg of alpha lipoic acid and 1000 mg of acetyl l carnitine are recommended together. Supported by the national institute of health
Hi Peralta I started taking 100 mgs of R lipoic Acid, I hear its just as good , maybe better. I took it for a few mos, did not notice a diff, I stopped bc it was very stimulating. I also can not tolerate 1000 mgs of A L Carnitine. That seems like a very high dose. I heard a few mos ago that ALC was harmful to the body. I do not know how true this is. Do you still take that high dose of ALC. Are you still doing well with just these two supplements. You didn't mention what kind of Neuropathy you have. Would you mind telling us what kind of pain you have? Thank you in advance for any advice or suggestions. |
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