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04-05-2015, 06:29 PM | #1 | ||
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Junior Member
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Every few years, I think I'll see if a vitamin regimen would be helpful and then don't do anything about it. Maybe this time I'll get on the program, because various symptoms are getting worse.
I don't have PN but CIDP -- not much pain, but big fuzziness in my feet, now my calves and most recently my fingers. Lots of muscle atrophy in legs and fingers. Bad balance -- but I go stand-up-paddle surfing every day, so it's not as bad it it could be, I suppose. Don't take any meds specifically for my CIDP, though I do take synthroid for hypothy. issue; an antidepressant; antabuse, to keep me from drinking; and 5mg Adderall daily, just to keep me moving. Last time I thought about supplements, this is what I was thinking about: 300 mg benfotamine b1 200 mg R-lipoc (is this the same as ALA?) 4000 mcg Methyl B-12 Fish oil This sound right? Am I missing anything for a basic protocol? Should I be looking at allithiamine instead of benfot. for my B1? What about curcumin? Previously, I'd thought about also taking Centrum Silver and Janos B complex, but the thought of adding more pills to my already over-pilled world is not a happy one. Maybe I should just go with one of those Nerve Support Formulas that people talk about and supplement it fill out the roster. Thoughts, anyone? p.s. -- if i wanted to just start with two supplements, which two should it be? |
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04-06-2015, 08:13 AM | #2 | |||
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Wisest Elder Ever
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Well at first glance that Antabuse (disufiram) can be very problematic. I'd suggest not using it.
Type into Google "disufiram neuropathy" and you'll find many sites explaining. This one is pretty good: Disulfiram neuropathy - MedLink www.medlink.com/web_content/MLT000M5.asp Disulfiram produces a dose- and length-dependent axonal sensorimotor ... Symptoms and signs of disulfiram neuropathy are typical of many other toxic axonal ... Click on the bolded link.. this is a site that when you go there does not have an address on the page requested. So I had to copy the whole link of Google this way. Your supplements look good. Make sure the R-lipoic is the Stablized form... as the older R- version is not well absorbed. NaRALA is its abbreviation on the product. Doctor's Best makes an affordable one. This form is solubilized for fast absorption from the GI tract. The Benfotiamine is critical for you since you took that Disulfiram. This drug interferes with aldehyde metabolism. Benfotiamine and Thiamine help with this metabolic issue.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 04-06-2015 at 08:28 AM. |
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04-06-2015, 08:43 AM | #3 | ||
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Junior Member
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Well, that's it for Antabuse. Will stop taking it today and try to figure out some other way to keep from drinking. Thanks for the (scary) link.
Will look for the Doctor's Best NaRALA. Are Benfotiamine and allithiamine interchangeable? here's a link to Allithiamine: http://www.amazon.com/Allithiamine-2...s=allithiamine . Some say it's better for crossing the brain barrier. what do you think? And, finally, if you would -- out the above list, are there two (or three) vits that i should get on asap, before the others? thanks! |
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04-06-2015, 09:07 AM | #4 | |||
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Wisest Elder Ever
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One should really get tested for B12 and Vit D. Along with magnesium, these are the BIG three for re-establishing healing.
Alcohol is a diuretic and over time would really deplete magnesium. SlowMag or a chelate daily would help in this regard. Avoid the oxide form, as it remains in the bowel and does not get absorbed into the blood stream. You would calculate how much Vit D to use from the test results. 1000IU D3 for every 10 points to raise up to about 50. Many people in the US are quite low in all three of these nutrients, even if they don't drink. If you are hypothyroid, you may not be converting betacarotene properly in the liver. This is dependant on T3 levels. So taking a Retinol form of A, extra may be helpful. No more than 8000 IUs a day. Many good multivits have some retinol in them. So read your labels if you use one. They have a mixture of retinol + betacarotene. Most recovering drinkers do well on a balanced B-complex. B-Right by Jarrow has a good formula to try. I'd still use the B12 separately however.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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04-06-2015, 07:44 PM | #5 | ||
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thanks a bunch. i ordered b1, R-ALA and b12. guess i'll start with them, on top of the four other meds i currently take.
haves anyone come up with a suave solution to the problem of opening up all those bottle caps every morning? right now, i just leave em open and exposed to the air, probably not good. thought about putting them into a bowl, but that's probably worse. in any event, i looked at pill despensers and none of them seems to do what i want. will keep looking. thanks again! |
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04-08-2015, 08:33 AM | #6 | |||
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Wisest Elder Ever
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A tablet dispenser may help. There are large ones...
Some stores have this type: http://www.ebay.com/itm/7-Day-Jumbo-...item2c7c0f549a
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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