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-   -   CCSVI-I can't help but think that there actually my be something to this! (https://www.neurotalk.org/multiple-sclerosis/107595-ccsvi-cant-help-actually.html)

Riverwild 11-08-2009 07:00 PM

CCSVI-I can't help but think that there actually my be something to this!
 
I know that this has been posted on here before but I never actually read everything about it until now.

zapalicious posted back in June: http://neurotalk.psychcentral.com/sh...ighlight=CCSVI

Someone recently asked me for my thoughts about this and I decided to look into it a bit. I went and read every darned link out there. I probably need to absorb it more, and I will. For me this means re-reading everything again, following up on all the scientific stuff, anatomical stuff, medical terminology, asking questions to every person in and out of my family who is a healthcare provider that I know, and just immersing myself in it until I am sure I have it in my head, sort of like I did with Tysabri when it was prescribed to me back in 2005.

I know that we have been around the world on new stuff going on and that there's all sorts of theories out there and we have digested and debated them over and over. Most of the stuff that comes down, I take with a shovelful of sand, rather than a grain, but I cannot help but think they may be onto something here.

I'd welcome a sane, educated dialogue here for this procedure. We have some of the best brains on the planet right here. If we put them together maybe we can make some sense of it, pros and cons, for people who are interested in this procedure. I'm not interested in bashers, new people coming in and shoving stuff down our throats and argument, just an open room forum to discuss it.

Anyone for a swim? Pool's OPEN! :D

SallyC 11-08-2009 07:19 PM

Immma gonna have to look it up and mull it over in mah wittle brain.....be right back...:D

gonnamakeit 11-08-2009 08:00 PM

The findings for this Italian research are supposed to be published this month. I am eagerly waiting to read it when it is available.

gmi

Debbie D 11-08-2009 08:08 PM

hmmm...I will have to do some research...what's the temp of the pool water? Not. too hot, I hope

tkrik 11-08-2009 08:43 PM

RW - I'll have to do some more reading up on this. I do find it interesting both this thread and your "Real-Time Observation . . ." thread have to do with the vascular system. Are the T-cells the "obstruction" they are describing in the CCSVI article? After reading your other post, I did wonder about some sort of blockage - kind of like blood clots/strokes. Then to see this post, now I am really starting to wonder . . .I'll do some reading and try to write a more intelligent response. :p

ewizabeth 11-08-2009 08:53 PM

Well, from the little I've read about it... it makes sense in a way. We know that patients respond well to a heart healthy diet like the Swank diet. Anybody responds well to a heart healthy diet because it's good for you.

If you take fish oil, it can make you feel better. Doesn't it help circulation as well?

So if you do something to improve circulation in a certain spot, wouldn't it follow along those lines?

When I eat healthy, I feel a lot better, MS wise. That's my totally off the cuff view for now. ;)

SallyC 11-10-2009 11:11 AM

Well, I don't know, River. I'd have to be pretty dang sure it would work, before I'd have a risky operation, to have stents or balloons parked in my veins.:eek:

I'm waiting for the big definitive report..

Thanks for bringing this up for discussion, River.:cool:

Lady 11-11-2009 01:37 AM

Chronic cerebrospinal venous insufficiency in patients with multiple sclerosis
by: Dr.Zamboni

http://www.youtube.com/watch?v=yGFe-3h26Vs
There used to be voice, just video..so now you can watch what occurs.

Natalie8 11-11-2009 01:49 AM

There is a Facebook page with links to latest research and publicity. In google just type in CCSVI Facebook.

dmplaura 11-11-2009 08:44 AM

Quote:

Originally Posted by ewizabeth (Post 587577)
Well, from the little I've read about it... it makes sense in a way. We know that patients respond well to a heart healthy diet like the Swank diet. Anybody responds well to a heart healthy diet because it's good for you.

If you take fish oil, it can make you feel better. Doesn't it help circulation as well?

So if you do something to improve circulation in a certain spot, wouldn't it follow along those lines?

When I eat healthy, I feel a lot better, MS wise. That's my totally off the cuff view for now. ;)

Couldn't agree more!

Thanks to RW and all for the great information!


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