will new s c s stim drive me nuts????
 

Hello, I am new to these spinal cord simulators. I need to make the decision very soon if I should put the permanent one in. When I turn the stim. off I feel this feeling of great relief. Is this going to be an obnoxious feeling that I unconsciously or consciously drive me nuts????
On the other side I am doing so much more than I was doing before I had the stimulator put in. I have it at a relatively low frequency; 1.75.I would say it helps me 65% opf the time.
Any I dears or suggestions???
Thanks,
Moira Joyce

I thought it would me. I can't stand scratchy tags, things out of line, etc lol. The stim feeling never bothers me. I've only had mine a week, though. I love it!

Good Luck!
 

Hi Moira,

Welcome! I'm also new and waiting for the trial, which starts a week from tomorrow (the 24th). Thanks so much for posting. You brought up a question that I've had, too. I am SO hoping that this will be the answer to some of my pain and will provide opportunities for me to do some things that I haven't been able to do for quite some time, like go for walks and play music with my bluegrass buddies. At this point I'm starting to get kind of nervous about the whole thing!

I'm thinking that if this has helped you to be more active so far and has giving you some decent relief, that's a GOOD thing! Maybe as time goes on you will get used to the sensations from the SCS and it will become more tolerable. The good thing about this treatment is that if you really hate it, you can always just have the implant removed.

Hang in there....you are in my prayers!
Jan :winky:

Jan,
 

The trial is easily removed. Not too sure about the permanent implant though. The leads will eventually scar in (which is what they are suppose to do). This is the reason it is so important to not bend or twist for some months to keep the leads from moving from their original position.

I'm sure there or those with more info on implant removal tho.


(Gerry)

Howdy Moira
 

Welcome with your questions ALL!!!

I am a two year old Stim Implantee, of the Boston Scientific Precisions Plus SCS tribe. AND I AM THRILLED TO THE MAX WITH IT!!!! Sure, I had trepidation at first whether this was the thing to do, becuase once implanted, it would be heqq to remove after scar tissue developed to hold it in place. Even so, I have been able to resume my profession and would NEVER have been up to the rigors of work had it not been for this BLESSING for which I give thanks to God every day!! I am goin gto have to look up Jan's band, because among the things I absolutely thrill to do is sing, and I am truly good to go with that wondrous means to bring joy to people's faces.

Sure, I am dealing with other debilitating pain for the time being [crushed disc at C6C7] and I wawit fusion to fix that little annoyance, becuase the pain of typing these words is more than enough to send me into orbit.... so this post will bbe short......

Even so, I would NEVER regret having had my permanent implant. It has brought the means to all pain management to me with te flick of a control, for thereafter I successfully withdrew from all pain meds. Once this neck thing is behind me, I fully expect to be there "once again."

Prayin for ya, Moira,
Mark56:grouphug:

Questions
 

Hi I am one of the older "vetrans" of the SCS user. I found there was more room to adjust the permant unit and you will find through expermintation what feels best to you. I have found If the pain is getting to me I turn up the unit to almost "unbearable" for a time and rest quietly, then I can return to my normal settings later.
Just a small warning when they take out the trial unit the pain will return with a vengance so be prepared. I hope your permant unit will be install soon after your trial is finished.
You can look up Mark's original thread and read through it to see his journey. (I would post the link but I dont know how to)
:hug:z

Sorry Pooh
 

Here it is. It has fallen into oblivion due to having reached near a thousand posts........ so I started the thread with 2 at the end of it to continue the journey.

The original is http://neurotalk.psychcentral.com/thread117854.html

Yup, and it talks about going through almost everything.
Yup,
Mark56:grouphug:

Mark,
 

[QUOTE=Mark56;898224]Welcome with your questions ALL!!!

I am a two year old Stim Implantee, of the Boston Scientific Precisions Plus SCS tribe. AND I AM THRILLED TO THE MAX WITH IT!!!! Sure, I had trepidation at first whether this was the thing to do, becuase once implanted, it would be heqq to remove after scar tissue developed to hold it in place. Even so, I have been able to resume my profession and would NEVER have been up to the rigors of work had it not been for this BLESSING for which I give thanks to God every day!! I am goin gto have to look up Jan's band, because among the things I absolutely thrill to do is sing, and I am truly good to go with that wondrous means to bring joy to people's faces.

Sure, I am dealing with other debilitating pain for the time being [crushed disc at C6C7] and I wawit fusion to fix that little annoyance, becuase the pain of typing these words is more than enough to send me into orbit.... so this post will bbe short......

************************************************** ***********************************************


Hopefully the pneumonia is almost gone and you are feeling much better in that area. Any time frame for the C6C7 fusion? Will there be a trial before doing an implant?

Prayers for you, as well as those dealing with the stim trials/implants.


(Gerry)

Fusion
 

On 23 July- We are supposed to pester Doc for a surgical consult appointment to give me max time to get beyond the pneumonia. My lungs are clear now, and I have another blessing to acknowledge--- a robust immune system.
Mark56:grouphug:

Hi Moira
 

I thought the constant tingling would drive me crazy when I first began the trial...then I realized it felt good. I had both cervical and thoracic St Jude stimulators implanted in June 2011 and the stim doesn't bother me one bit. It is such a great comfort. There are different settings and frequencies that I didn't feel as comfortable with, it takes some programming and playing with them to get that good, ahhhh feeling :)

I am so happy that I got both of mine!!

Nanc