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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Had my sympathetic nerve block (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/218941-sympathetic-nerve-block.html)

carolinarose79 04-17-2015 09:38 AM

Had my sympathetic nerve block
 
WILL NOT EVER DO THAT AGAIN!!!!
Unprofessional doctor, and they hit a nerve in my hip, which now feels like the joint will explode while the surrounding muscles are one huge knot. No offer of explanation of what was going on during the procedure or why I was feeling what I was feeling. So ready to get home and in my bed to rest, but so hate having to miss the time with my lil one. Ok rant over.

Peace, Love, Hugs, And low pain fellow spoonies. [emoji257] [emoji171]

Littlepaw 04-17-2015 03:14 PM

Ugh - sorry you had to go through that. Thanks for letting us know.

Sending Healing Love, Littlepaw :hug:

Jerie 04-17-2015 06:46 PM

They gave you a sympathetic in your hip not your spine? What was they name of your nerve block?

carolinarose79 04-17-2015 07:05 PM

Quote:

Originally Posted by Jerie (Post 1136412)
They gave you a sympathetic in your hip not your spine? What was they name of your nerve block?

The name I was told was a right sympathetic nerve block. That's all I know. After resting for most of the day with movement limited to bathroom breaks and attempting to change sides in bed (hurts to lay on right side) my lower right back and hip feel as if I was in a car accident. The hip joint itself still feels as though there is something in it but the pain with movement has subsided somewhat.
I promised to give different treatments a try, I gave this one a shot (ha ha) not a good experience definitely won't recommend it to anyone else. I do however have some minimal relief of my RSD pain for the moment but of course it is overshadowed by the botched procedure.

Jerie 04-17-2015 07:27 PM

Carolinarose, just remember results are sometimes realized later. I always flared up for a month after most of my procedures. I don't know why they just didn't give you a lumbar sympathetic nerve block. Spread to the other leg is common. Maybe they just wanted to do a diagnostic. Do you still have that red skin stuff and swelling in your right leg? Sometimes they like to see if you have warming of the limb with a block or change in appearance or see if the pain is sympathetically driven. Hope your doctor knows what they are doing and the side effects are temporary and results end up therapeutic. Sometimes blocks have to be repeated 2 or three times to hold a while.

carolinarose79 04-17-2015 08:41 PM

Quote:

Originally Posted by Jerie (Post 1136433)
Carolinarose, just remember results are sometimes realized later. I always flared up for a month after most of my procedures. I don't know why they just didn't give you a lumbar sympathetic nerve block. Spread to the other leg is common. Maybe they just wanted to do a diagnostic. Do you still have that red skin stuff and swelling in your right leg? Sometimes they like to see if you have warming of the limb with a block or change in appearance or see if the pain is sympathetically driven. Hope your doctor knows what they are doing and the side effects are temporary and results end up therapeutic. Sometimes blocks have to be repeated 2 or three times to hold a while.

They checked the temps of my feet afterwards and both were in the mid 80's the nurse couldn't believe it and just kept rechecking them. The red bloches are still there but the swelling has come down some and the sensitivity to touch has eased off. What gets met is the pain in my hip joint. That is where I felt everything during the procedure once they went in after numbing. And the pain is still there. From what I can find only that isn't normal.

Dubious 04-17-2015 08:50 PM

Quote:

Originally Posted by carolinarose79 (Post 1136455)
They checked the temps of my feet afterwards and both were in the mid 80's the nurse couldn't believe it and just kept rechecking them. The red bloches are still there but the swelling has come down some and the sensitivity to touch has eased off. What gets met is the pain in my hip joint. That is where I felt everything during the procedure once they went in after numbing. And the pain is still there. From what I can find only that isn't normal.

Did they do it under fluoroscopic guidance?

carolinarose79 04-17-2015 09:11 PM

Quote:

Originally Posted by Dubious (Post 1136459)
Did they do it under fluoroscopic guidance?

I think so. They told me x-ray. he did take alot of pictures, like I said they barely talked to me during the procedure. I was not sedated at all.

LIT LOVE 04-18-2015 03:31 AM

Quote:

Originally Posted by carolinarose79 (Post 1136466)
I think so. They told me x-ray. he did take alot of pictures, like I said they barely talked to me during the procedure. I was not sedated at all.

I'm still confused. Did he go into your spine or just your hip?

Littlepaw 04-18-2015 07:28 AM

What did your doctor say about the hip pain?
The spinal nerve roots and the sympathetic ganglia are close to each other and feed into the same nerves. If they were aiming to affect the nerves of the leg and foot they would be going for the sciatic, which runs by the hip joint. Did they think it was referred pain from pressure in the area since you felt it right away? Nerves do such funny things...


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