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Results- I have to crow!
I had my one year neuro appt. since going on Tysabri.
The doc did a full exam, listened to my chief complaint (still spasticity) and prescribed an increase in Baclofen ( 20 mg TID from 10 mg TID) He is pleased with my progress and so am I! Everything appears normal! Who knew that a real doctor would EVER say I was normal! :yahoo: All tests from my last appt came back normal, LFT normal, everything right in the correct ranges! I have been taking 2000 mg of Vit D all winter and he was semi concerned about that, but I reminded him that I work a long night shift and don't SEE the sun for months, and since the levels were within normal range He said keep it up and we will check again in 3 months. I started the Baclofen yesterday and as I posted on another thread, I was able to put my socks on without a struggle! I went to work last night and I made it ALL night without having to HOIST myself out of the chair and wait before I walked! I just got up and walked when I wanted to. I got stiffer as the night ended and when I came home this morning I was ready for more, so I took the last dose with my tizanidine and went to bed. This afternoon I got right out of bed without stretching!!! ( I had to go reaaally bad!) I went back to bed just to do the stretches because it's routine now, but I FELT like I could have skipped them. One thing we noted is that I haven't been SICK even once during this whole year! No colds, no infections, no blurting, no rashes, no NOTHING! I don't get sick much anyway but it's strange not to have even had a cold, especially with the population I work with coming down with everything under the sun in the past few months! Just this last month it's been diarrhea and vomiting non stop at work!!:eek: I am glad that we have drugs. I was NEVER a pill popper, always worked through illness, hardly even took aspirin except for menses pain. I've even gone off the Tylenol 3 I took for that! (Could Baclofen work on mens. cramps??) Now I am willing to try what my doc suggests when I DO have problems. If it doesn't work I can always quit, but things are better with drugs! I guess ya live and learn, huh?:D I feel like I have been waiting for the other shoe to drop for the past year and something bad to happen. Now if it does, I can bend down and pick it up!! Infusion # 14 on May 22! Onwards and upwards! :mf_swordfight: |
Yeeee Haaaa !!!:D
Good for you !!!! |
River glad everything went well for you that is awesome!!!!
I can't take baclofen because it doesn't work for me..I take zanaflex and YES I have used it for menstrual cramps and it works great! So I say try it and see! :Dancing-Chilli: |
Oh my friend I am sooooo very happy for you! As you know I take Baclofen and wouldn't go without it! Did that once and won't ever do it again. I am now taking the 20mg 4x a day. There are some days I only take it 3 times but I won't go without....
Congratulations now I want his number so I can get into him! ;) |
Glad to know that everything is going so well!
Whoo hoo!!!! I would call it the Tysabri superhero solution. (TSS) :) |
Congrats RW! I can't compare like these girls, I'm just a caregiver. LOL
I love good news and thanks for sharing yours! |
Oh, I love to hear good news, like this. WooHoo!!
Congrats!!:hug: |
Great news!!!
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That's great RW. It's always nice to get some good news once in a while, isn't it?! :)
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Wowwweeeeeeeee!!!!!!
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