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-   -   Medical Marijuana advice.... (https://www.neurotalk.org/chronic-pain/227094-medical-marijuana-advice.html)

Diandra 10-07-2015 05:04 PM

Medical Marijuana advice....
 
Hi All,
I was just authorized by my pain doc to receive medical marijuana.

I asked him how it will be supplied, a pill or what. He said he just gives the authorization and I have to go to the dispensary and discuss with the pharmacist and he/she will suggest the best method. Pain doc also said it come in two kinds. THC and CBD, and I should make sure I get the CBD as it is more effective for chronic pain. I have no idea what that means but I am just about to research it.

I was wondering, for those of you who use medical MJ, how was it supplied to you(pill, vapor, edible, etc) and did you find it effective for pain or neuropathy.

Thank you.

EnglishDave 10-07-2015 05:39 PM

Hi Diandra,

Being over here I cannot help much more than point you in the direction of:

https://www.leafly.com/

For advice about strains and use.

Hope this helps and you get some much deserved relief.

Dave.

St George 2013 10-07-2015 09:43 PM

Quote:

Originally Posted by Diandra (Post 1176201)
Hi All,
I was just authorized by my pain doc to receive medical marijuana.

I asked him how it will be supplied, a pill or what. He said he just gives the authorization and I have to go to the dispensary and discuss with the pharmacist and he/she will suggest the best method. Pain doc also said it come in two kinds. THC and CBD, and I should make sure I get the CBD as it is more effective for chronic pain. I have no idea what that means but I am just about to research it.

I was wondering, for those of you who use medical MJ, how was it supplied to you(pill, vapor, edible, etc) and did you find it effective for pain or neuropathy.

Thank you.

I so wish we had this in GA !

THC is the part that makes you high......a little too much smoking in my earlier years ! The CBD part is what helps with the pain. It's my understanding that when going with a product high in CBD you don't feel high at all. I wouldn't know...just what I have read.

Please keep us posted on how you get along with it.

My son is a narcotics officer and my sweet Bubba would always say "Hey....get your mama some of that stuff while you're at the office"....too funny.

Good Luck my friend :)

Debi from Georgia

Diandra 10-08-2015 07:03 AM

Dave and Debi..thanks for your input. I am traveling a path new to me and I am trying to be positive and thinking, perhaps this is the pain relief and answer I have been praying so hard for.

I have been looking for an alternative to Lyrica for my neuropathy and seizures.
I don't like what it does to my brain and personality and I think it adversely affects my cognitive issues. I'm not saying MJ is the solution or right answer but I am happy to have a new option to try.

I will let you know...you are both dear to me and your kindness, compassion and friendship means the world to me. We all know how isolating pain is...it is so special to have my forum friends. Thanks, D.

eva5667faliure 10-08-2015 08:56 AM

Quote:

Originally Posted by Diandra (Post 1176201)
Hi All,
I was just authorized by my pain doc to receive medical marijuana.

I asked him how it will be supplied, a pill or what. He said he just gives the authorization and I have to go to the dispensary and discuss with the pharmacist and he/she will suggest the best method. Pain doc also said it come in two kinds. THC and CBD, and I should make sure I get the CBD as it is more effective for chronic pain. I have no idea what that means but I am just about to research it.

I was wondering, for those of you who use medical MJ, how was it supplied to you(pill, vapor, edible, etc) and did you find it effective for pain or neuropathy.

Thank you.

i can tell you from personal experience
it works
awesome for nausea
calm
my hands and feet get a slight relief
upper right back fibromyalgia that is killing me slowly
my headaches
and other subtle calms
a short term relief
but this body does get help from it
i have had dispensary a BUSINESS
removal of the thc causing a feeling of high
mild mellow relaxed feeling when one has no ailments
BUT, for those that do have problems
IT HELPS!
this my personal experience and opinion
with much love
me

Diandra 10-08-2015 09:55 AM

Quote:

Originally Posted by eva5667faliure (Post 1176316)
i can tell you from personal experience
it works
awesome for nausea
calm
my hands and feet get a slight relief
upper right back fibromyalgia that is killing me slowly
my headaches
and other subtle calms
a short term relief
but this body does get help from it
i have had dispensary a BUSINESS
removal of the thc causing a feeling of high
mild mellow relaxed feeling when one has no ailments
BUT, for those that do have problems
IT HELPS!
this my personal experience and opinion
with much love
me

Thanks so much for your input Eva.
I am so happy to hear you get some relief from it.
Do you mind if I ask, did you take pills or edible or ????
Thank you my friend,
D.

eva5667faliure 10-08-2015 01:18 PM

Quote:

Originally Posted by Diandra (Post 1176327)
Thanks so much for your input Eva.
I am so happy to hear you get some relief from it.
Do you mind if I ask, did you take pills or edible or ????
Thank you my friend,
D.

not at all
it is smoked
i not wanting to worsen
the emphysema
it is the lesser on the pocket
all doctors are informed
and am not discouraged
infact my pain specialist
is also aware of my recovery
i do not take anything lightly
it is now a medicine
not a high
it helps
hope this helps
love
me

PamelaJune 10-09-2015 10:10 PM

Hi D, I'm pleased for you, I wish you all the very best with it. Some states here agreed to participate in trials but it is unlikely ever to be approved for chronic pain. MJ is an S9 here, oxy is an S8.

THC supposedly gives euphoria, pain relief and increases the appetite, CBD will only deal with the pain. From what I can glean the pill format seems to be THC.

Cannabis vaporizers gained popularity because of peple declining to smoke it and the dose is unpredictable. Cannabinoid medicines are available in pill form in the US apparently, (dronabinol and nabilone) and liquid extracts formulated into an oromucosal spray (nabixinols):hug::hug:

bluesfan 10-11-2015 02:36 AM

Hi Diandra

All the best for your foray into medical marijuana. I hope you are able to find some type that gives you pain relief.

I don't know if you've been following the recent thread on this topic started by icelander who's trying CBD oil. Here's the link:

http://neurotalk.psychcentral.com/thread227130.html

KnowNothingJon 10-16-2015 12:03 AM

Well, it will depend a lot on you Diandra.

Edibles take longer to take effect, though last longer. CBD is thought to lower the "high" of THC, or perhaps is proven <woke up due to this fine weather change> so perhaps a hybrid will suit you well to offset any disagreement to that feature. I never minded it myself in the past...

Hoping that when NYS passes I fet the choice, though I am happy you have it now. Talk it over with dispensary personnel.

When we were in Colorado and I was able to check out how it affected my pn it was limited, as most indicas I wanted to try were behind the medical wall for some reason (could have been the dispensary- I went to two). They have the higher CBD. Hybrids should bring both to the table, though usually are dominate indica or sativa (higher THC).

PM me or ask here, either one is fine. I've done some research during these morning hours and am happy you have more choices. Good for you!

My best,

Jon

eva5667faliure 10-17-2015 11:07 AM

Quote:

Originally Posted by EnglishDave (Post 1176205)
Hi Diandra,

Being over here I cannot help much more than point you in the direction of:

https://www.leafly.com/

For advice about strains and use.

Hope this helps and you get some much deserved relief.

Dave.

you go Dave!

eva5667faliure 10-17-2015 11:13 AM

Quote:

Originally Posted by KnowNothingJon (Post 1177820)
Well, it will depend a lot on you Diandra.

Edibles take longer to take effect, though last longer. CBD is thought to lower the "high" of THC, or perhaps is proven <woke up due to this fine weather change> so perhaps a hybrid will suit you well to offset any disagreement to that feature. I never minded it myself in the past...

Hoping that when NYS passes I fet the choice, though I am happy you have it now. Talk it over with dispensary personnel.

When we were in Colorado and I was able to check out how it affected my pn it was limited, as most indicas I wanted to try were behind the medical wall for some reason (could have been the dispensary- I went to two). They have the higher CBD. Hybrids should bring both to the table, though usually are dominate indica or sativa (higher THC).

PM me or ask here, either one is fine. I've done some research during these morning hours and am happy you have more choices. Good for you!

My best,

Jon

awesome stuff
thanks!

Diandra 10-17-2015 12:25 PM

Update
 
As with many things regulated by the govt, the wheels turns slowly.
There are all kinds of systems to sign into, applications to be filled out and oh but of course, a registration fee of $100.

Thanks for all your input as I am making a foray into an area I know nothing about.

Will let you know how things go after I go the dispensary, hopefully this week.

By the way, don't know if I mentioned. I was authorized, NOT because of chronic pain but because I am being treated for breast cancer. In CT, this is the list of specific medical issues that qualify(neuropathy or chronic pain are not included but cancer is). I was surprised to find it was such a limited list.

Medical Conditions include:
Cancer
Glaucoma
Positive Status for Human Immunodeficiency Virus or Acquired Immune Deficiency Syndrome
Parkinson's Disease
Multiple Sclerosis
Damage to the Nervous Tissue of the Spinal Cord with Objective Neurological Indication of Intractable Spasticity
Epilepsy
Cachexia
Wasting Syndrome
Crohn's Disease
Post-Traumatic Stress Disorder

As always, thanks for the help and support.
D.

donamel 10-17-2015 06:35 PM

Quote:

Originally Posted by St George 2013 (Post 1176239)
I so wish we had this in GA !

THC is the part that makes you high......a little too much smoking in my earlier years ! The CBD part is what helps with the pain. It's my understanding that when going with a product high in CBD you don't feel high at all. I wouldn't know...just what I have read.

Please keep us posted on how you get along with it.

My son is a narcotics officer and my sweet Bubba would always say "Hey....get your mama some of that stuff while you're at the office"....too funny.

Good Luck my friend :)

Debi from Georgia

What is the status of medical mj in GA?

DejaVu 11-01-2015 06:45 AM

((((( Diandra )))))
 
Hi Diandra,

I am happy to read you are open to trying some of the MMJ options.
My doctors are very strongly encouraging me to also explore these options; in fact, they seem to think it's potentially a much better choice than adding more pharmaceuticals.

My primary care used to be against this option; however, he has since witnessed a family member go through intractable pain and has see his family member consult with pain specialists, etc. After a few years without relief, his family member has found some relief in the MMJ options.

I, too, have my doctors' recommendations. My case must be reviewed by a regulatory panel. I expect approval. Intractable pain can be one of the conditions giving people access to MMJ options here. My medical records document more than one of the conditions qualifying me for legal access.

I have had approval in the past. We had no dispensaries then. While there was an MMJ option, it was still illegal to have possession then. (A catch-22.) I simply did not pursue this option, as I cannot tolerate smoke and there was no guarantee as to the strain of MJ. Even if using a vaporizer, it was a toss as to how much THC/CBD, etc. MJ can have effects which are not in the best interest of each individual. It was all too risky then and not appealing to me under those conditions.

It's helpful we now have dispensaries. I am told the staff at the dispensaries are very well-informed and are good at guiding choices, based upon individualized needs. It may take some time to find the best strain for you and the best method of delivery.

I know of people swearing by the oil, the edibles (the butter included).
I know of someone with severe neuropathic pain, having been hospitalized 4 times this year for severe pain; he has achieved significant relief with a topical MJ ointment. (I have sent a message asking if this person might be willing to talk with me about his experience and his topical MMJ.)

Jon and Dave have offered some good information.:)
I know some of the strains I am sure I do not want to touch. :eek: Lol.
I need to learn about some of the options more viable for me.

Like you, I am glad this option is available. Like you, I am hopeful; yet, not yet convinced this path is the answer.

I do hope you find any/all options most helpful to you.

I will be happy to share any information I learn, Diandra.

:hug:

DejaVu

St George 2013 11-01-2015 07:57 AM

Hey donamel :)
 
Quote:

Originally Posted by donamel (Post 1178137)
What is the status of medical mj in GA?

In GA only cannabis oil is legal. Eligible patients may possess up to 20 oz of low THC (high CBD) cannabis oil.

It's called Haleigh's Hope Act

So far only 8 conditions are listed:

Cancer
Crohn's
Lou Gehrig's
Mitochondrial disease
MS
Parkinson's
Seizure disorders
Sickle Cell

The catch is there is no where in GA that you can purchase this oil legally.

Looks like they are taking that up in 2016 Session.

From what I read families are more than happy to drive to a state that will fill the prescription for them. They will take the chance on getting caught during the drive. It's worth it for their kids, families.

Debi from Georgia

DejaVu 11-01-2015 05:12 PM

Quote:

Originally Posted by St George 2013 (Post 1180899)
In GA only cannabis oil is legal. Eligible patients may possess up to 20 oz of low THC (high CBD) cannabis oil.

It's called Haleigh's Hope Act

So far only 8 conditions are listed:

Cancer
Crohn's
Lou Gehrig's
Mitochondrial disease
MS
Parkinson's
Seizure disorders
Sickle Cell

The catch is there is no where in GA that you can purchase this oil legally.

Looks like they are taking that up in 2016 Session.

From what I read families are more than happy to drive to a state that will fill the prescription for them. They will take the chance on getting caught during the drive. It's worth it for their kids, families.

Debi from Georgia

Hi Debi,

These catch-22 laws are so strange, aren't they?
I am glad people can get what they need.

We just had a story done on a young lady, still in elementary school. She has intractable seizures. She has great seizure control by vaping the oil. While this state allows this, the school enjoys some federal funding. Her mom has to go to the school, take her off the school property and allow her to vape.
The school can lose any federal funding for allowing her to vape on school property. :rolleyes:

It's not even okay if the school nurse oversees her vaping the oil during the school day. Nobody likes this, including the school administration; yet, they also cannot afford to lose federal funding.

Love Ya, Debi. :hug:
DejaVu

St George 2013 11-01-2015 05:22 PM

Hey DejaVu
 
Quote:

Originally Posted by DejaVu (Post 1181004)
Hi Debi,

These catch-22 laws are so strange, aren't they?
I am glad people can get what they need.

We just had a story done on a young lady, still in elementary school. She has intractable seizures. She has great seizure control by vaping the oil. While this state allows this, the school enjoys some federal funding. Her mom has to go to the school, take her off the school property and allow her to vape.
The school can lose any federal funding for allowing her to vape on school property. :rolleyes:

It's not even okay if the school nurse oversees her vaping the oil during the school day. Nobody likes this, including the school administration; yet, they also cannot afford to lose federal funding.

Love Ya, Debi. :hug:
DejaVu

Just breaks my heart for these kids to have to go through this when it can be so much better for them.

I think we had 17 Georgia families that had the mother or father and the child move to CO in order for them to receive the cannabis oil.

It's my understanding some or all are moving back and will just make the trips as needed for the meds.

Hopefully in 2016 they will get off their butts and get it growing legally in Georgia for all the people, especially the children, that need this help.

Hugs to you too sweet Lady :hug: :hug:

Debi

vintagewine 11-04-2015 06:44 AM

Hi,

New York State is in the process of getting things up and running for medical marijuana.

If you check with the " Compassionate Care New York " website they are a wealth of knowledge. They are also on Facebook.

I also heard that the CBD oil is the one that helps with the pain

Good luck with your search.

Diandra 11-25-2015 10:53 AM

Well Ladie and Gents....I finally got my Medical MJ, just yesterday.
What a bizarre experience because getting into the building was like getting into Fort Knox. I later learned they only take cash or Debit card so have a lot of cash around and obviously they are worried about theft of MMJ as well.

I opted not to smoke or get the edibles.Most of the meds are blends of CBD and THC.

I have oils in vaporizers. There are ones blended for daytime and one specific for evening. I also got a blend on a piece of paper you dissolve on your tongue.
I was very fortunate that the waiting room was packed and I got to talk to many patients and learn from their experiences. Most suggested the vapdizers for the most even delivery and sustained dose. One gentleman with a degenerative nerve disease said he has not slept since the disease hit and now can sleep through the night with his vaporizer of a CBD THC blend.

After dinner, I took a hit on a "vape" that is called Cannabidiol 1:5 which is an oil that is CBD:THC . I did feel great relief from a daily headache I have had from my current cancer medication. It is only a hormone pill but the headaches have become wicked. The vape burned my throat and I was surprised because I did not take the buds you smoke in a pipe because I didn't want a burn. I called the dispensary to ask if it was a steam/water burn or a chemical burn and they said a chemical burn. They suggested taking a lighter "toke" and drink some milk. They said my throat would get used to the oil.

Will let you know how it progresses. I have to start cooking for Thanksgiving right now so too afraid to try anything until I am through cooking because an hour fter I took a hit yesterday, I fell into a DEEP sleep. My husband said I was snoring so loud he had to make the TV louder!!!!

Happy Thanksgiving everyone.
I am so thankful for all my lovely and supportive NT friends.
You are truly the best and I am inordinately fond of all of you.
Love, D.

EnglishDave 11-25-2015 06:16 PM

Hi Diandra,

Good to hear you were able to get first-hand advice and are seemingly reaping the benefits, even if it starts with a reduced headache and a loud slumber.

I wonder - will you have to prepare extra Thanksgiving food to stave off The Munchies, or does MMJ not have that side effect?

Dave.

DejaVu 11-28-2015 02:54 PM

((((( Diandra ))))))
 
Hi Diandra,

The "burn" sounds uncomfortable.

I hope you find the best product/method/mix for relief.
I understand it can take time to find optimal treatment.

I hope you have had a joyful Thanksgiving.

Love and Light,
DejaVu

Diandra 11-28-2015 03:20 PM

Quote:

Originally Posted by EnglishDave (Post 1185474)
Hi Diandra,

Good to hear you were able to get first-hand advice and are seemingly reaping the benefits, even if it starts with a reduced headache and a loud slumber.

I wonder - will you have to prepare extra Thanksgiving food to stave off The Munchies, or does MMJ not have that side effect?

Dave.

Hi Dave,
You hit the nail on the head !
Unfortunately, it does seem to have the munchies side effect. My husband reminded me I woke up from my hibernation-like slumber after my first "hit" and immediately asked for a brownie heated in the microwave with ice cream(something I RARELY eat but it was in the house for company). He thought that was hilarious that within seconds of waking up, that was what I asked for....he asked me if I needed anything and he meant like a glass of water!

Thankfully, I DID make extra food.

Hope everyone had a nice Tday.
D.

Diandra 11-28-2015 03:23 PM

Quote:

Originally Posted by DejaVu (Post 1185951)
Hi Diandra,

The "burn" sounds uncomfortable.

I hope you find the best product/method/mix for relief.
I understand it can take time to find optimal treatment.

I hope you have had a joyful Thanksgiving.

Love and Light,
DejaVu

Hi DV,
I got over the burn but do wish I had been warned.

It is taking some trial and error but, in the good news dept, it has helped with
headaches that have been caused by another med.

I had a nice Tday....hope you did as well.
D.

eva5667faliure 12-09-2015 05:38 PM

Quote:

Originally Posted by St George 2013 (Post 1181006)
Just breaks my heart for these kids to have to go through this when it can be so much better for them.

I think we had 17 Georgia families that had the mother or father and the child move to CO in order for them to receive the cannabis oil.

It's my understanding some or all are moving back and will just make the trips as needed for the meds.

Hopefully in 2016 they will get off their butts and get it growing legally in Georgia for all the people, especially the children, that need this help.

Hugs to you too sweet Lady :hug: :hug:

Debi

my eldest daughter Sara
an epileptic
had occopital lobe surgery hoping to
eradicate the seizures
idiopathic
is genetic
is blind in right eye
price of surgery
it failed
to close to the surrounding lobes
back on a crap load of meds again
first grand maul in april 2003
and still suffers them daily
now 34
she too smokes it
and the thc
not a problem for me
i enjoy the munchies
after the reliefs i get from it
and after the amount of weight loss
not knowing it was my cancer
i welcome weight
it too help my daughter with her seizures
hope this helps
love
me

JoanB 01-11-2016 06:54 PM

Hi all,

Was wondering if there were any updates on experiences with MMJ and pain relief. I have been searching for an answer to my neuropathic pain (I have MS) for about eight years, and after all that time, I've tried everything. I guess I'm looking at this as my last hope. Since it's not legal yet here in PA, I've tried this option "off the grid" so to speak, but it didn't turn out well. I couldn't wait for the effects to wear off--and to think that it seemed like so much fun back in the 70s!

I'm just hoping it would be better more refined strains, especially something with higher CBD and lower THC (my, the stuff they have these days is so much heavier on the latter than when I was a kid!) But isn't it ironic that with them keeping it illegal, someone who doesn't want to get high can't find the stuff that won't zonk them out?:confused:

eva5667faliure 01-12-2016 08:46 AM

I believe your assessment
 
Quote:

Originally Posted by JoanB (Post 1192715)
Hi all,

Was wondering if there were any updates on experiences with MMJ and pain relief. I have been searching for an answer to my neuropathic pain (I have MS) for about eight years, and after all that time, I've tried everything. I guess I'm looking at this as my last hope. Since it's not legal yet here in PA, I've tried this option "off the grid" so to speak, but it didn't turn out well. I couldn't wait for the effects to wear off--and to think that it seemed like so much fun back in the 70s!

I'm just hoping it would be better more refined strains, especially something with higher CBD and lower THC (my, the stuff they have these days is so much heavier on the latter than when I was a kid!) But isn't it ironic that with them keeping it illegal, someone who doesn't want to get high can't find the stuff that won't zonk them out?:confused:

Is something a person should not have to if the high can be taken out for those who experience it in a negative way because of the THC SHOULD NOT HAVE TO BE SUBJUCTED TO the "high"
for many it help calm them too
It help me want to eat I seem to forget and I can't afford that
Worried about everyone else but ME
It should be available without the THC
A patient should have the choice to choose
My daughter and her team of doctors are all on board with her
use of it

There was a program not to long ago
Of persons who seek the medicine for the young child
he was risking his life for as it isn't legal yet and this baby was suffering over three hundred seizures in a day
Where he was on a farm like land where the THC is not in the herb
Why wouldn't the big brothers be on top of something they know without DOUBT it WORKS
Any relief I welcome as I cannot take any of the medicines to take for the nerve related problems
The fibromyalgia on my upper right back
A direct result of my cervical neck surgeries
Oh jeez I'm getting angry remembering the days I was once able to do the things I love such as cook GONE
CAN'T stand for to long
CAN'T sit for to long
Can't walk for to long
Can't lie on my right side
CAN'T HUG OR BE TOUCHED
It hurts and burns so badly I want my skin pulled from my back
Going on three weeks now
No indication of letting up
Pray weather will get better it has much to do how my body will behave though I must say I do get some needed relief
What else is left
Me

JoanB 01-16-2016 03:52 PM

Thanks, eva. I did a little more research on the status of the MMJ bill in PA, and it's very discouraging. A bunch of idiots are trying to add tons of amendments to it that will make it impossible for it to ever work. For example, it must be prescribed, but anyone like a doctor or nurse who prescribes it has to have a reserve of $2 million in cash for liability or something. And it has to be FDA-approved MMJ, and of course, there is no such thing!

As for just getting it passed in any form, the PA Speaker of the House refuses to even bring it up for a vote. If they'd just vote on it, it would pass, but he won't let them. He's got some personal bugaboo about it--I read he had a melt-down in a meeting where he broke down sobbing (http://www.politicspa.com/medical-ma...o-tears/70855/). :eek:

Then, even if they ever do get around to passing it, it probably won't go into effect for another few years. All I want is to stop feeling like bees are stinging my feet 24/7. Why is that so terrible? What is wrong with these people? Arrrgggghhh!

I did read something the other day about a cannabinoid chewing gum that might be available by 2017 (I know, still a long way off) http://multiplesclerosisnewstoday.co...in-spasticity/
Maybe it will be helpful for other conditions too!

JoanB 01-16-2016 03:56 PM

Oh, and I hope your pain lets up for you, eva. I'm so sorry that you hurt so much.:icon_cry:

eva5667faliure 01-27-2016 07:35 AM

It hurts so badly
 
I am lost in my pain
It's one thing not able
Or rather just couldn't do anymore
trial and error
My use of MM
Is the only thing that keeps my mind from snapping
My pain is so great right now and in the last six weeks a flare up
my upper right back
I have been without a shirt or anything for that matter
My lower back just not worth talking about
But the pain is so great I just want to die
There is another seven minutes before I start my med intake
I have been on the same time upon intake
I feel once I begin messing with my clock my body has become used to regimen
I do not like having to take any
The withdrawal alone is freighting in itself
I am under medicated only because I fear becoming a zombie
It makes me so bloody angry
I just want to die
Just knowing my nerves are not calm
They are just burning this body up without fire
My waist just cut me in half
My hands feet just cut them off they do not work upon command
I drop everything
My neck and base of my skull
Someone please just bite it out
Just as a animal who hasn't eaten in weeks
Rip it out please
Just rip it out
MM has allowed me some respite
I cannot imagine not having it if need be
And I need be
Being a recovering alcoholic for twenty four years now
just drives me nuts
Alcohol the culprit for many
And there are many who do not loose their privileges to a few drinks
To have to know take opioids to give me some relief for my mechanical problems my spasms the small nerves like biting ants all on my back feet hands
Taking my meds is a huge mental battle
I have no choice in the matter
And to think I WILL go through severe withdrawals if I did not have them
And yet "I" know there sits a bottle on the shelf
Just three shots just three
And that numbing feeling just comes over you

Twenty four years for what
I am screaming in pain
Just kill me please
And yet I'm not ready to give up the fight yet
It is getting harder and harder
I have a couple of years left taking my tamoxifen
for having the breast cancer
That just hit me
I still can't believe I had my breasts taken off
to eradicate my disease
But why do I still feel like I am slowly dying
This is not how one should feel
Oh if I could explain the horrible feeling I have in my gut
It never fails me
I know something underlying is going on
I still have no explanation as to why the veins in my hands and feet swell burst and cause bruising
Go figure
No blood runs to the tips of my fingers
Or the tips of my toes
Only my maker knows my pain
And I am scared
Me

PamelaJune 01-27-2016 07:50 PM

Eva, I so wish I had a magic wand for you. I hate to read how poorly you are and the daily challenges your family put before you. Sadly we can do little to influence family or their thoughts and actions. Thinking of you and wishing you some answers soon :grouphug:

Marie33 01-27-2016 08:29 PM

[QUOTE=Diandra;1176201]Hi All,
I was just authorized by my pain doc to receive medical marijuana.

I asked him how it will be supplied, a pill or what. He said he just gives the authorization and I have to go to the dispensary and discuss with the pharmacist and he/she will suggest the best method. Pain doc also said it come in two kinds. THC and CBD, and I should make sure I get the CBD as it is more effective for chronic pain. I have no idea what that means but I am just about to research it.

I was wondering, for those of you who use medical MJ, how was it supplied to you(pill, vapor, edible, etc) and did you find it effective for pain or neuropathy.

Hi Diandra i was just reading your post from Oct. I was wondering have you gotten any response yet and have you tried the MJ yet? and if so, did you try the CBD and did it make you feel high? and did it help your pain?
what type of pain do you suffer from? I suffer from small fiber neuropathy, I am in NY, they legalized it here and i am hoping to find this to help me with my pain. thanks

Marie33 01-29-2016 08:08 PM

Quote:

Originally Posted by eva5667faliure (Post 1195811)
I am lost in my pain
It's one thing not able
Or rather just couldn't do anymore
trial and error
My use of MM
Is the only thing that keeps my mind from snapping
My pain is so great right now and in the last six weeks a flare up
my upper right back
I have been without a shirt or anything for that matter
My lower back just not worth talking about
But the pain is so great I just want to die
There is another seven minutes before I start my med intake
I have been on the same time upon intake
I feel once I begin messing with my clock my body has become used to regimen
I do not like having to take any
The withdrawal alone is freighting in itself
I am under medicated only because I fear becoming a zombie
It makes me so bloody angry
I just want to die
Just knowing my nerves are not calm
They are just burning this body up without fire
My waist just cut me in half
My hands feet just cut them off they do not work upon command
I drop everything
My neck and base of my skull
Someone please just bite it out
Just as a animal who hasn't eaten in weeks
Rip it out please
Just rip it out
MM has allowed me some respite
I cannot imagine not having it if need be
And I need be
Being a recovering alcoholic for twenty four years now
just drives me nuts
Alcohol the culprit for many
And there are many who do not loose their privileges to a few drinks
To have to know take opioids to give me some relief for my mechanical problems my spasms the small nerves like biting ants all on my back feet hands
Taking my meds is a huge mental battle
I have no choice in the matter
And to think I WILL go through severe withdrawals if I did not have them
And yet "I" know there sits a bottle on the shelf
Just three shots just three
And that numbing feeling just comes over you

Twenty four years for what
I am screaming in pain
Just kill me please
And yet I'm not ready to give up the fight yet
It is getting harder and harder
I have a couple of years left taking my tamoxifen
for having the breast cancer
That just hit me
I still can't believe I had my breasts taken off
to eradicate my disease
But why do I still feel like I am slowly dying
This is not how one should feel
Oh if I could explain the horrible feeling I have in my gut
It never fails me
I know something underlying is going on
I still have no explanation as to why the veins in my hands and feet swell burst and cause bruising
Go figure
No blood runs to the tips of my fingers
Or the tips of my toes
Only my maker knows my pain
And I am scared
Me

I am so sorry for your pain. I know how horrible burning pain can be. I suffer with "Idiopathic" small fiber neuropathy. Mine has progressed to all over my body. Buzzing, tingling, stabbing, burning all over. I developed a horrible tinnitus. I wish I could give you a big hug. :hug: What do you take for your burning pain?
Please stay strong. ((Hugs))

Marie33 01-29-2016 08:29 PM

SFN Pain & Cannabis
 
[QUOTE=Diandra;1185955]Hi Dave,
You hit the nail on the head !
Unfortunately, it does seem to have the munchies side effect. My husband reminded me I woke up from my hibernation-like slumber after my first "hit" and immediately asked for a brownie heated in the microwave with ice cream(something I RARELY eat but it was in the house for company). He thought that was hilarious that within seconds of waking up, that was what I asked for....he asked me if I needed anything and he meant like a glass of water!

Thankfully, I DID make extra food.

Hope everyone had a nice Tday.

Hi Diandra i was just reading your post from Oct. I was wondering have you gotten any response yet and have you tried the MJ yet? and if so, did you try the CBD and did it make you feel high? and did it help your pain?
what type of pain do you suffer from? I suffer from small fiber neuropathy, I am in NY, they legalized it here and I am hoping to find this to help me with my pain and burning skin and feet . :( thanks

eva5667faliure 01-31-2016 09:35 PM

[QUOTE=Marie33;1196278]I am so sorry for your pain. I know how horrible burning pain can be. I suffer with "Idiopathic" small fiber neuropathy. Mine has progressed to all over my body. Buzzing, tingling, stabbing, burning all over. I developed a horrible tinnitus. I wish I could give you a big hug. :hug: What do you take for your burning pain?
Please stay strong. ((Hugs))[/

Hello dear friend
Pain kills this person
And many here
My story in short
My mechanical pain is being treated with opioids muscle relaxers
My neurological pain I do not take any medicine for
We have tried at least ten or more
Nothing is working finding me the right medicine that does not harm me as they do
And I am tired of the trial and error of it all
I have been coaxed so in it all failed to find anything that worked
Hence the invisible pain
That you talk about
The burn that kills like someone took a piping hot iron to my body and nothing to take for it to make it stop
Smoking helps on several levels
And that is my experience
You take good care
Me

JoanB 03-28-2016 04:21 PM

MMJ law passed in PA
 
Don't know if you guys heard, but they finally passed the MMJ law in Pennsylvania a few weeks ago. Unfortunately, estimates are that it will be 18 months to two years until the dispensaries are up and running, but at least it's a start.

eva5667faliure 03-30-2016 07:33 AM

Quote:

Originally Posted by JoanB (Post 1206243)
Don't know if you guys heard, but they finally passed the MMJ law in Pennsylvania a few weeks ago. Unfortunately, estimates are that it will be 18 months to two years until the dispensaries are up and running, but at least it's a start.

Good to read
And to have it for the children
And my epelectic daughter
A MIRICLE DOCTORS ARE SUCKING OUT WHAT IS NEEDED
TO HELP ONE WITH THEIR AILMENT
Thank you for the info
Me

bddouglas 04-10-2016 12:14 AM

There is CBD oil that is supposed to be 100% THC free, it is made from hemp. It is legal in all 50 states from what I have learned. I am considering discussing it with my PCP, neuro, and rheumy. I really feel I need some kind of relief. I do not take anything stronger than Tramadol, it is my preference. I do not wish to be getting addicted to any meds and there may come a time that a stronger med will be needed. Percocet is like taking candy, Demerol is one I am allergic to so that closes the narcs that work for me. I also saw that the FDA will make a decision (during the first half of 2016) about making marijuana medically available (class ll-lV) instead of keeping it listed as a class l, highly addictive and not medically useful. There may be some hope in the future after all.

eva5667faliure 04-13-2016 06:51 AM

Just waiting
 
It is a sad place
for some to live for someone who needs it
in their infant lives suffering seizures
My child an epileptic
It for array of helpful uses how it kicks nausea
and helps circulation and on and on glaucoma
and on

Now for some reason I am loosing weight again
for no known reason
It is not a good sign
Have a doctors appointment with pulmonary specialist
who can also be used as a general practitioner
This I need on my train
Point
Something brewing
This is a good thing in my opinion
A GOOD THING

Jazzelise 04-29-2017 09:40 AM

Medical marijuana
 
Quote:

Originally Posted by Diandra (Post 1176201)
Hi All,
I was just authorized by my pain doc to receive medical marijuana.

I asked him how it will be supplied, a pill or what. He said he just gives the authorization and I have to go to the dispensary and discuss with the pharmacist and he/she will suggest the best method. Pain doc also said it come in two kinds. THC and CBD, and I should make sure I get the CBD as it is more effective for chronic pain. I have no idea what that means but I am just about to research it.

I was wondering, for those of you who use medical MJ, how was it supplied to you(pill, vapor, edible, etc) and did you find it effective for pain or neuropathy.

Thank you.

I have been on CBD and all it,does is make me sleepy. AFter 23 years on men's. I tried mm and the vapor helps my pain to the point I can start decreasing my pain mess. My gold is pain relief and no opioids. Hope I can do it. WIll let you know But if you are new to this like me start low and increase as needed. I take 10 mg of THC twice a day and it really helps, relaxes my muscles and decreases my symptoms which you all know about. Jazzelise


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