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Fall & Temperature Changes
I know temperature changes have been mentioned before,
but I'm talking something different. Fall is here. :) As usual the temps are in the 60's at night and 80's during the day. Please don't hate me, because it doesn't matter. My body knows it is fall and it is cold. The goosebumps continue are are so painful on my burning arms and legs which of course leads to exhaustion and need / desire to stay in bed. :( Today at 86 degrees I had on a sleeveless top, a winter sweater and a raincoat and sat outside in the sun. The house is 75 degrees and I am freezing and hurt so much. But it is not cold. It is fall and my body knows it and is reacting to it like I live in New England. Suddenly I begin sweating and take it all off, but by that time I have chills and the cold feelings start all over again. It is dominating my day and painful to dress and undress. I don't think there is a solution, and I do think it is a symptom of autonomic nervous system dysfunction. What I'd like to know is AM I ALONE FEELING LIKE THIS ? And why do I have to have all these symptoms I can't prove & doctors are so ignorant about? (you don't need to answer that one :) ) Thanks, Hope |
hi hope you are not alone.............
we have had much cooler temps here in michigan..........brrr just down right cold.............even saw some flurries today...............
but, with two of us stuck with the darn rsd, it is havoc in our house.....frank is always hot, but starting to get cold feelings in his arm, and i am always cold, with some hot flashes tossed in.................our thermostats never coincide with each other............. the cold burning feelings just tend to stick around with all of us...........YOU ARE NOT ALONE. big hugs to ya...............ps. thanks for the thoughts of teddy......... |
YOU ARE NOT ALONE! You put into words exactly how I feel. Everytime the weather changes just a little... I know it well before it happens.
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I'm with you
I used to LOVE winter. Not now.
I was going over a recent glove selection at the opening of a Kohl's store the other day looking for any warm soft gloves with out a tight wrist band. They are hard to find! I found a pair with soft part cashmere lining that had some thinsulate and were knit on the outside! $10 on sale! I bought 3 pair! They were perfect! I've been wearing gloves on and off every other hour it seems since mid-August. I never know what to wear. A long sleeve T is not heavy enough - a full length sleeve sweater for all day at work and I'll be to hot at some point. I know my actual body temperature goes up and down at least 4 degrees every few hours. It will drop as low as 97 and go up to 101 on really painful days. No wonder I get hot and cold all day! Since sweaters are so hard to get on and off, a woman I know offered to crochet a couple "wraps" for me. One for summer and one for winter. The Summer one is made from cotton, the winter from some soft acrylic yarn she found. It is warmer. They are like extra wide scarves, and I can just throw them on or toss them off in a hurry. Another woman I know is making one for me but knitting it. It's going to be made from some special alpaca yarn I bought that is so soft and should be super warm. Since the knitted stitch she is using will be closer together than crochet stitched one, that will make it warmer too. They are so nice, I was thinking, it would be easy to make them from fleece type fabric - it's just a long straight piece. As long as your arms from fingertip to fingertip, and as wide as from your neck to your wrist. That is odd though, how your body knows it's almost November, so it's going to be cold, even though you are in a warm climate. Here, it's snowing outside! We have not had a frost yet, but it's snowing! It won't stick - at least I hope not, since it's 35 outside, and I don't think the ground is cold enough for the snow to stay frozen. brrrr. I think I will go make some hot chocolate. ;) |
It is snowing here as well. I cannot turn the heat up because I have to conserve fuel. Still, I will break out in a sweat and feel super warm and then will be cold again. I have been through hot flashes and this is not quite the same.
If you do not have someone to make a shawl for you and cannot sew for yourself, you can find some ready made. I get all kinds of mail order magazines - Harriet Carter, Miles Kimball, Walter Drake, Carol Wright, Dr. Leonard's. I have seen shawls in all or some of those. Some even had pockets to keep your hands warm. I imagine that they also have internet sales. Try going online - you may find something suitable. I found that when I am really achey a warm sheet from the dryer makes a nice cozey body wrap. Do any of you men have trouble with sweating or chills? Regards, Lil |
Welp, Michigan is FREEZING! I hate Michigan. Hate it hate it hate it!!!! I with it would fall into one of our "great" lakes!
It was 35 when I got up this morning and isn't supposed to get above about 43 today. Thing is, some of the medication I take makes me sweat at night. BUT I'M FREEZING COLD! So what's REALLY bad about that, is I'm cold...and wet...and being cold and wet makes you COLDER, then when the alarm clock goes off, and you have to get OUT of bed, out from under the nice warm down comforter, into the freezing cold bedroom (cuz you have propane heat and your SO refuses to turn on the heat until tis' ABSOLUTELY necessary!) it's HORRIBLE. Brrrrrrr! So I threw on my robe (which is vry, very soft....has to be!), my fuzzy slippers and ran downstairs to stand in front of the woodburning stove which is nice and toasty warm. Only, my body cannot handle TOO warm or TOO cold. In PT they realized I sense temperature changes so well, that even a SLIGHT one degree change makes a difference for me. So begins the act of "one step forward, or one step back....no, how about a HALF a step forward, two steps the the right, maybe a half to the left?" dance that I do to find the EXACT right position where my body feels comfortable. Only to have Bailey, my loving little Chow Chow, realize I'm awake and come running down asking to go potty...and I have to move from my "spot" to let her out! grrrr!!!!!!!!!!!!!!!!!!!!!! Hugs LisaM |
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I understand mine is caused by one of the medications I take. I "think" it's the topamax. My sweating is mostly at night, or at "times" during the day, usually when in a shopping mall, grocery store, or similar place, where it's warm, but not awfully warm...just too warm for ME. And when sleeping, I sweat so badly, I soak my sheets. Then when I move, the cold air gets under the covers and chills me, freezing me like crazy! At lest, that's what MY hot/cold is likr, and what it's caused from Hugs LisaM |
Hi ,
I don't have RSD, but TOS and myofascial pain. But the thread title caught my eye. And the heat/cold/barometer changes affect those conditions too. I'm sure you all have had your thyroid /hormones checked too? that could be playing a part too. {just curious about that} |
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I think the heat is WORSE than the cold, but the cold makes you tense, which is bad for the spasms.
Any rise in the heat makes me feel like my fingers are going to spontaneously start on FIRE. My hands are hot to the touch...when I touch people, THEY JUMP they are so hot. However, the cold BREEZES do hurt. And the cold AIR also - because if you think about it - very hot mixed with very cold makes a "tornado" - so very cold air touching my very hot hands causes pain - almost like - what the heck is that? Where if it's too long in the cold you lose your limbs??? DANG MED BRAIN!!! I know you all know what I mean. It's any change, but if there is a heat source, such as yes...a lightbulb, a stove, even a hot plate of FOOD that I am trying to eat off of, or a bowl of soup, even trying to eat a taco (first time I had taco's was the other night...and I had to hold it with a napkin....too hot for me to hold now with my rsd hands!). Even the slight rise in heat will be way too much. On the other hand, I don't like to take an icecube from a tray, grab a gallon of milk from the fridge, take the ice cream out of the freezer, etc. Any EXTREME is intolerable to me. Only in different ways. I can get CLOSER to the cold than I can to heat for some reason. I just "don't like" the cold...I can't TOLERATE the heat. Is that odd? LOL! Hugs LisaM pSST....***MEOW*** :) Here, Birdie, Birdie, Birdie! :) However, cold makes me shiver, which tenses me up, which does send me into a flare. I get muscle spasms really bad...and because of that, shivering is no good. NO tensing at ALL is good. And sometimes you don't even realize you are tensing. |
Hi,
It's hard and sweating makes me feel yucky. I sleep on 2-3 layers of doubled over draw sheets and sweat through to the last draw sheet sometimes. No wonder I don't feel rested, this wakes me up several times/night !! I have an outline of my body on my mattress, but if I bought another mattress, it would do the same thing. I glad there is no smell, which is another weird thing about it. And it evaporates so fast, I think that is why I get the chills so much. I sweat all day & all night long, hot or cold temps, makes no difference. I'm at home almost all the time day after day, but when I get up to bathe, brush teeth, that kind of activity, that brings on a sweat. Mostly it happens for no reason at all....except the REAL reason it happens. I did some reading and it is the autonomic nervous system that is out of whack, that is what RSD does. Messes with the autonomic nervous system. And that is what controls things like our heart rate, sweating, bladder and digestive system - that may be why tummy always feels so full :confused: daylil- Thanks so much for the idea about the shawl, I'll look into that today. I have tons of those magazines around. I don't go shopping. You're so right when you say how it HURTS putting on and taking off sweaters / jackets. Yesterday I wore both and it was hot! Long sleeves hurt when they touch my arms, hands, but I cover them with lidocaine patches. Even tho they only work slightly they protect my arms from touch. My skin tears easily now it is so thin and can't wear the patches when my skin tears :( The sweats get worse for me in cold weather:confused: And also when you said about moving the sheets and lettng in the cold air :eek: I had gone off the only med I take that could cause sweating and it continued..but I can tell you what cuts them down a lot - Xanax. I take it around the clock. It only lasts 3-4 hrs and I take a double dose at bedtime. After 4 hours I wake up wet. Otherwise, I'm drenched all night. My husband is good about peeling off the draw sheets. I had low thyroid 5 yrs before RSD and the levels are fine, but maybe someone else could benefit from having that checked - good thought ! lnteresting about having the nerve cuts stops the sweating. That is a sure way to know if it's meds or the autonom system. Have a dry day...and try to stay warm those of you in colder climates. If I could send some sunshine and heat your way, I would. Hope |
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Me too..well..kinda?
Hi all y'all.
I think that I am the odd man out in the thread here, as I am severely cold intolerant. I HATE FALL here in the South, as we really only have two seasons, one that is HOT, and one that is COLD. :rolleyes: LOL. Fall starts the COLD Season. (For an example of what I am talking about...just last week before last, we were hitting temps in the upper 80's. Then Fall fell on us for real, and we are now having trouble getting out of the 50's, and waking up with frost on the ground. BRRRRRR! Too cold for me! And, way too drastic of a temp change all at once. But, such is life down here in The Land Of Cotton. LOL). I do much better in the HOT seasons. My only troubles then come from the Humidity, but since that is something that I have to deal with all year long down here...I would rather deal with it in HOT weather than I would in COLD weather. Actually, I am very much looking forward to when I move back out West to the Warmer, DRYER climes, as I do so much better in those. :) Still hurt, and still have symptoms...but just do much better over all. I also have the sweating thing that you are talking about Hope. :o Not quiet as bad...but for some reason I seem to sweat MORE in the colder temps? The only thing that I can figure is because of the heavier clothing? I mean, I live in soft, thick (but VERY loose) hunting socks, sweat pants, and either sweaters or shirts of varying sleeve length....with my throw constantly at hand when I am in the house. I also have a couple of ponchos that my Mom made for me that work VERY well (you might check out using those? No sleeves at all to hurt arms? And...you can stick arms out, or pull them in and cover up as needed when your temp changes? Also, very easy to get on and off, as long as you make sure that they have buttons and not just neck hole, which can be kinda hard). :o No smell, either....which I am VERY glad about...but don't quite understand? I also agree with you and Flippinout about the sweat being an autonomic nervous system issue, because when I have a RF done the limbs that are affected are nice and dry for a while, until the nerves grow back together. Sometimes I even wind up with a nice dry hand or foot for a few days after I have just a plain old block done. Don't know why...but I am not complaining one bit! It does feel weird, though, to have one moist side and one dry side (when I can get my doc to do both upper and lower procedures for me during the same OR visit). I have also had sweating when I have stopped taking meds that would cause it, too. Have not noticed any increase in it when started them back? :confused: Very weird. But, that is RSD for you. LisaM...I did want to tell you...I also have been told I am SIP too. Have been for...well...years now (I have had RSD going on 10 years...and didn't get my first blocks until about 2, 2.5 years into this mess...). I have blocks done, both for upper and lower body RSD on my right side, and DO get relief from them. You might give them a try, and see if they give you ANY kind of help, because some help...even a little...is better than none. Sometimes it is all that is needed to calm down what has been, or what will turn into a horrible flare. If you have NEVER had a block done.....I wonder why? :confused: Anyway...I just wanted to add my hat into the ring here of folks that were not liking this weather change. I HATE it! But, then...I hate it being COLD at all, and cold to me is when it gets below 65. :) Damn cold is anything below 60, and freezing is...well....I don't even want to think about it! :D ROFL. Feel bad for my poor kids, because I cam constantly harassing them about having their coats...and PUTTING THEM ON...when I feel cold. They aren't small, little kids either, but are 17 and 19 years old. :rolleyes: ROFL. Needless to say, I get LOTS of eye rolling, and lots of tossing jacket/coat over arm to carry, only to shut me up (not that it works, because the Point is to PUT IT ON, not to Carry It! ROFLMAO!! OMG!!!! :eek: I have turned into MY Mother!!!!!) Oh well. I can't help it that I am Lizard Woman. :) I should have tried to change my name to that for this new forum, maybe. ;) LOL. I just know that I am already day dreaming about Nice HOT sun shiney Summer days, when I can go outside and soak up the heat and try to get these bones warmed up. Since bones are only 37 years old, I am wondering what is going to happen when they are older bones....and need more warming up? :confused: Hmmmmmm. Maybe I need to move to Equador or something! :D ROFL!! Hope that everyone has a WARMER (if they want it...or colder, if they prefer that..) and Drier day today, with lots less pain! Watch out for the weather changes, as there seems to be fronts zooming all across the country right now. *Sigh. :( Not a good thing for any of us, I think. (((Hugs))) Jose |
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I'm just doing what I'm told...just like the rest of y'all are...going with the program...which is about all we can do. LOL! Hugs LisaM |
Do I hear a Roar of some Tigers in the Birdie cage?
Sitting here way in the middle of the Pacific Ocean, brings in a new prospective. I actually keep my A/C on all the time. Keeping the thermostate at a constant 78 degree's removing the humidity from the air. BUT...Even though I can keep a constant temperature, and our weather is mostly good, I find my internal temperature levels flucuate from hot to ice cold and so does my pain levels. I have a tendency to watch the barometric pressure. This if anything seems to be the factor here in Hawaii.
What I managed to stop years ago was the sweating from my whole being and especially my RSD arm. This maybe just a timing factor w/ my RSD arm, as my atrophied fingers, arms and frozen shoulder began to move as numerous blocks and a continuous epidural started to work on me. But, I found out the major sweating problems were hormonal. I'm on meds for this now. So, as suggested here, it maybe a good idea to have a test done to see if your hormones are out of whack. Many have had children...many may be on or have been on birth control, so many things can throw our ladies systems off. Now....where's the Birdie? I think there maybe a Tiger or two in the house! Good Luck to ALL in todays game ....Let's PLAY BALL. :) |
All ready to order
I was ready to order some shawls when I realized, I won't be able to tolerate
the shawl rubbing across my arms. I am SUPER sensitive and could be wearing 6 layers and still I feel an air conditioner turned on. Even if clothing rubs it is painful. Lots of layers help, except when you need to take off fast. Just like putting on socks - having them on hurts. Shoes only make it worse. Thanks for the idea though. Imagine how excited I was to get a shawl. Still I may try one and keep my arms out. Jose, I can relate to what you say except even at 100 degrees my pain doesn't get worse. The cold, like you said is the killer. Is moving to Az the answer ? I might even be able to afford to live if I was there ! I find it strange after all these years on the forum I have never seen discrepancies in having blocks as a first line of treatment. Building on blocks was supposed to be the secret if there was any hope of remission. There must be new studies or information out there that I haven't read. :confused: Dana, You hit the nail on the head when you described the internal temp changes. I don't think my actual temp changes though, like someone mentioned. Changes in barometric pressure cause flares. I went through menopause at least 7 years ago; for me this is totally different. For some that may be the key. My PCP has a sub-specialty in endocrinology so he checks hormone levels frequently - even saliva levels of hormones. Everyone had their physicals???? Make sure the doc checks hormone levels. I have other things that are in no way related to RSD -- one just seems to know after a few years what is and what is not RSD. Dana, we may just lasso your island and bring you out of paradise for awhile & a little closer to us, You'll save on the A.C. bill :) Hope all have a good evening, Hope |
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As for the birdies and tigers...I was wondering if anyone was going to "get" that out of the "code" flippnout and I were speaking. LOL! GREAT detective work and all the way from HAWAII! :) If only Mother Nature would LET US play ball, I'm sure we'd be much happier. Hugs LisaM |
i caught the code too......
tonight the weather is supposed to be just as bad.//?? boo hoo.....but of course the tigers had cold weather for the series too.......
lisam, what part of michigan are you from? i am from downriver actually 15 minutes from the stadium.........have attended many a ballgame this year..................... and the red wings? what is happening with them? shanny deserted us...........and stevie is gone..................been to two games so far, but not too interested in them yet.....after baseball............................. |
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