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-   -   just cant do this anymore (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/146939-cant-anymore.html)

krank 03-19-2011 03:32 PM

just cant do this anymore
 
I just cant do this anymore...Im a shell of myself....I feel like a wolf caught in a trap...Im a burden to everyone....theres nothing left to try...all its doing is taking taking and taking some more...whats the point....I have nothing left to contribute....nothing left to prove as I become more and more irrelevent to my so called friends, family and anyone else...the fight is over for me...I lost my brother and I just lost my mother....and my poor wife has a huge battle going on with her own health problems..She has stopped going to the doctor to take care of me as I watch her hands start to deform from RA...She wont listen and all Im doing is getting worse fast....pretty close to full body with flares coming closer and closer together....its now affecting my inner organs..maybe i shouldnt write this here but i know that all of you would maybe understand..I just dont know how some of you make it as far as you do...I just dont have it in me... im sorry

birchlake 03-19-2011 05:31 PM

Krank,

There is still hope buddy. Us CRPS guys in MN have to stick together! This terrible six month winter that we've just gone through (and isn't giving up yet) certainly doesn't do much to help with our mood.

Find somebody that you can truly confide in. You need somebody that will listen. Not try to fix it, as you have obviously been trying to do that.

Trying to help some of the others on this forum can be therapy in and by itself.

One day at a time. Hang in there.

AintSoBad 03-19-2011 05:36 PM

Krank,
The folks here saved my life. It's a disaster when we start thinking the way you are.
Dig deeper, (there is ALWAYS deeper), find your faith, my friend. Someone, ALWAYS has it worse, and is smiling!
I'm not saying this to be mean, but, it's true. We get tested. Those that overcome, are accepted into God's kingdom!
And, so it goes.

I used to think that I had a right, to end it all. Why not?
Then, all the folks here, made me realize, that they loved me, and all my friends love me, and how much of an impact it would be, negatively, if I did the most irresponsible act possible, an act of TOTAL SELFISHNESS!

Forget all that, Krank. You've not yet reached your pinnacle. I've had this bastard RSD, with TOS for 27+ years. Was awarded 1.25 mil.
2nd wife, and an attorney, stole all of that.
I'm in the worst position of my life,
Yet,
Yesterday, just Yesterday,
I met with my attorney, whom I've been calling nasty names for a year out of shear frustration. A Friend took me, and another help to advocate.
I was able to get my ENTIRE point across, and guess what?
The guy is completely on my side again, more than ever.
And,
I FEEL BETTER THAN I HAVE IN A DECADE, Mentally and physically.

Because I have a TBI, and what is akin to PTSD, it's something like PTraumatic Head INJURY Depression.
I thought I'd be in bed for the weekend, nope. I was up at dawn and have been moving ever since.

So, keep the faith!
You never EVER know when God is gonna smile on you!

I smile on you, and pray on you!
I PROMISE, It will get better, just when it seems, it cannot get worse!

Love and Peace on you!

Pete

asb

cndangel 03-19-2011 05:52 PM

I know I am fairly new to the forum and to RSD (just recently diagnosed) and fortunately my pain is just in my neck/shoulder/arm area and has not spread yet. So I am not going to pretend that I understand what it's like to have full body RSD... as I can't. At the same time though I could just not read your post and not respond.

I am not going to try to offer you any suggestions on what treatments to try, nor am I going to pretend things will be better tomorrow for you. What I can offer you though is my ear if you need to scream, yell, vent or cry. Feel free to message me anytime if you need to just talk... even if it doesn't make sense...just let it out.

A few days ago I had the worst pain yet due to my RSD. Never in my life have I felt anything like that. I thought it would never end. I was terrified and at the moment didn't think I could keep doing this if it is just going to get worse. So that night when my thoughts were swirling in my brain and the thought of ending it became comforting to me I broke down and called a local suicide hotline. I spoke to a very sweet lady who just listened. Didn't offer me advice on how to stop the hurt...as she has no clue how...but just listened to every word I spoke even through the tears when probably I was making no sense what so ever. After I calmed down we were able to have a 2 sided converstation.... we talked about how I felt like a burden to my family and friends and how frustrated and upset I was as I could no longer care for my 2 year old like I use too. That even the simple task of reading a story sent me to tears. She reminded me of something... That all the things my family and friends do, they do because they want to because they love me. I am not their burden but I am their love one in pain. They are not helping because they have too but because they want too. They have the ability to say No at anytime. That I need to let this guilt of burden go. She also reminded me if it was someone I loved dearly that I would do the same thing for them if the roles were reversed. For some reason when I went to sweep my kitchen floor as i was disgusted how dirty my house is getting yesterday...and when the pain hit me and stopped me and I threw the broom across the room and dropped to my knee's in pain and frustration...I was reminded of that conversation I had the with that sweet lady...and I dried my tears...called my oldest daughter (she is 18) upstairs and asked her "can you sweep for me?" she said "mom, I would love too.."
The lady was right....she did it because she wanted to help me, not because she felt she had too. Now maybe your needs are more then a floor being swept and trust me there are more then that for me as well...but just remember your family (wife) is doing all she can for you because she wants to and loves you. She wants you right there with her in your family home..she wants you to stay in her life and share her life with you. That is the good times and the worst times.

I really wish I could do more then just type words to you.... just please keep in mind that there is a women in Canada thinking and praying for you (hope the praying does not offend you) tonight and will continue too as long as you need to me.

Take care,
Karen

SandyRI 03-19-2011 07:36 PM

Krank and Karen,
I've also been there - Ain't So Bad Pete was one of the people here on this forum that helped me. Don't ever give up on trying to find the right combo of meds and treatments that will work for you.

Karen - my RSD also started in my shoulder, but it spread up into my neck and head. DON'T use your arms for anything too strenuous, like cleaning the floor. That is what causes the migraines, or at least it did for me. I would wake up at 3 in the morning vomiting after I exerting myself too much the day before. it was truly awful... try to get into the best Pain Mgmt or Neurology Clinic in your area as soon as you can. A series of nerves blocks may help you get into remission. for me, low dose ketamine infusions got me back on my feet after a year's sick leave from my job. Today is the 11 month anniversary of my first infusion.

Krank, the burden to your wife will be worse if she were to be alone. I'm sorry for what you are going through. have you asked your doctor about lidocaine or ketamine? Spring and summer are coming...!

please keep in touch -here are people here that understand and care.

XOXO. sandy

Lisa in Ohio 03-19-2011 11:11 PM

Krank, Please see a psychologist ASAP. you need someone to talk to about this with who is impartial and non-judgemental. Therapy has helped me so much, just to know that you have that crutch to take on your problems for a while. You and your wife need to take care of yourselves. Krank, you are not alone in what you are feeling or thinking, and it is OK to be down but not to give up. You are a valuable person and are here for a reason. Lisa

ali12 03-20-2011 07:08 AM

So sorry you are feeling this way, Krank.:hug:

I can totally relate. I have had RSD since I was 12 years old (now 16) and it is almost full body. I get depressed really easily and it has been a LOT worse then normal lately. Mums now had to lock my pain meds away and only give me what I need as I have been that depressed that I have wanted to end my life several times in the last few weeks / months. I'm now seeing a Psychologist for that and have 2 hospital appointments this week. I've been told that I may need anti-depressants ... not want I want but I seriously need to get out of this depression and fast!

Like you, I think my main problem is that I think of my past and how good it used to be and now look at my new life and remember how much I miss the old days. Nearly all of my friends left me when they found out I had RSD and couldn't do most things they could. That hurt me more than everything and I have spent the last 3 years sat in the house mostly. I have a boyfriend and he's been a great support. Been with me over a year and goes to hospital appointments with me so I think he understands some things. That helps a lot and I feel like I can tell him anything. Just last night I was crying because I missed my old life, going out socialising etc. He comforted me and told me that he would stick by me no matter what. I always get worried and think that he'll get sick of me and leave so it's nice to hear that he wont.

Please don't do anything stupid! Trust me I know how easier said than done it is! I've been undergoing Psychological support and thats helped me realise that I shouldn't do anything stupid as it would put my family (especially mum) through pure h*ll. I don't think I could cope with putting her through something so horrific. Don't get me wrong, I still am depressed but it's helped channel my thoughts a bit.

As the others have said, there IS hope. I know many times it doesn't feel like it but there is. New medicines etc that may help.

I think anyone with a chronic pain condition / illness will go through this depression at some stage. It's normal to mourn your past life etc. Please speak to your doctor and see if theres anything he can suggest.

Take care and know we are always here if you want to talk.:hug:

Alison

Swatgen27 03-20-2011 09:21 AM

Krank,
I'm soooooo sorry to hear that you have been having a difficult time with this horrid disease. Also, don't hold back with what you post here as we are a support group for eachother during the good times and the bad. I can't speak for the others in the group but I truly feel love for each and every member and their family in this group and that includes you. I'm sorry that your CRPS is progressing. I know that I to have felt like I can't possibly handle one more day of unrelentless pain. With that being said, each time I get to the point of ending it all, it is usually after the disease has progressed and my med regieme is nolonger effective. Have you tried a change in meeds. Have you considered going back to rush? I know the whole cathadar thing in the spine was worrisome, but at this point maybe the risk is worth it? It might slow the progression and give you the relief that is needed.
I to am nolonger the person I used to be, but everyone (even a person without CRPS ) changes in their life.
Having a spouse and CRPS is very difficult to manage and I often feel guilty that I'm not even close to the person I was when we got married. However, our spouses would much rather have us here on earth with them
Versed us just checking out. I know how much you and your wife love eachother and if nothing else hold onto that. Please feel free to im me anytime and don't feel the need to censor your feelings. You are not alone in this battle and I have been praying for you and your wife.
Sarah
Xoxoxo

Patti_Christmas 03-20-2011 10:04 AM

Hi there Krank! Guess what - you are not alone. You are not alone in your frustrations, your pain, your feelings of despair. I've been having a very, very rough week. On Tuesday, I underwent another epidural block which didn't help at all. I still can use stim minimal. I hate this crap - the sensations in my chest are pretty bad this week. It is burning and icy cold. My granddaughter stopped in last night - I went to hold her while I was standing up and I couldn't do it. I almost dropped her. I am only 41 yrs old and my life has been stolen from me. I've thought about "checking out", but I can't. I'm too afraid that with my luck it wouldn't work. That I would be even worse off then I am now. This monster went from my right knee and foot region to practically all over after I had my second implant surgery in Dec of 2010. It hurts to type (I used to be an office manager, and typing was my life!), I can't feel with my finger tips. There are days I hate myself, days that I hate happy people, days that I even hate my own family.

But, you know what - I pull up the "ole boot straps" and try to find something positive to focus on. Be it my kids, planning my son's graduation party (or hoping to be able to sit through the graduation ceremony), watching my 16 yr old daughter grow up - helping to guide her through the broken hearts and puppy loves.

I guess what I realized and understand now is that I am not just sitting on the sidelines of life, watching everyone else play, smile, laugh or cry. I am on the sidelines to cheer, to guide, to help and to love.

So, buck up little camper-we are all here for you!! :grouphug:

keep smilin 03-20-2011 12:21 PM

Quote:

Originally Posted by Patti_Christmas (Post 754622)
Hi there Krank! Guess what - you are not alone. You are not alone in your frustrations, your pain, your feelings of despair. I've been having a very, very rough week. On Tuesday, I underwent another epidural block which didn't help at all. I still can use stim minimal. I hate this crap - the sensations in my chest are pretty bad this week. It is burning and icy cold. My granddaughter stopped in last night - I went to hold her while I was standing up and I couldn't do it. I almost dropped her. I am only 41 yrs old and my life has been stolen from me. I've thought about "checking out", but I can't. I'm too afraid that with my luck it wouldn't work. That I would be even worse off then I am now. This monster went from my right knee and foot region to practically all over after I had my second implant surgery in Dec of 2010. It hurts to type (I used to be an office manager, and typing was my life!), I can't feel with my finger tips. There are days I hate myself, days that I hate happy people, days that I even hate my own famil.

But, you know what - I pull up the "ole boot straps" and try to find something positive to focus on. Be it my kids, planning my son's graduation party (or hoping to be able to sit through the graduation ceremony), watching my 16 yr old daughter grow up - helping to guide her through the broken hearts and puppy loves.

I guess what I realized and understand now is that I am not just sitting on the sidelines of life, watching everyone else play, smile, laugh or cry. I am on the sidelines to cheer, to guide, to help and to love.

So, buck up little camper-we are all here for you!! :grouphug:

Dear Krank many others,

I really must apologize for my distance from this supportive family we have here... Along with my RSD, I like Krank have lost my Mom this past November and just yesterday I carried my heavy heart thru our home of 51yrs. ...as we had to have an estate sale, selling all of my parents personal house items.. I wept all day!!!! I too have really been riding the waves of the emotions that come along with these sad times..But my reason for writing is truly not for my
distance but to say I have a large hole in my heart but to give you hope and faith, Krank...To say that you can do this..you can make it and live your life as God has planned and chose you for... Krank..you got us...I know, as well everyone here what you feel.... But like many here are saying...RSD is a bear to reckon with but each day presents a new front, a new chance to renew our strength and reaffirm that we are strong..Steiner than yesterday and tomorrow will be a gift...You'll see.. Take the time to appreciate those in your life and the love you share.. You'll see your pain and hopelessness will take a backseat to your blessings...You must see them thru just as I have to and everyone here who care about you!!!!

Bless you all...

Hugs, Kathy:grouphug:

Sonny1 03-20-2011 02:14 PM

Krank, I must respond also for a couple reasons. !st one being I have recently been diagnosed with CRPS, obviously not to the extent as you and many others here have had to live with. I searched on line for a long time to find answers, which I accept I will never find one that is acceptable, but then stumbled onto this forum and realized that maybe I really wasn't searching for answers, but just a place to belong. I have only been on here for about 2 weeks and try to engage in as much communication as I can because it is true, our family and friends can't imagine the daily ups and downs we face. Each day may bring a new feeling whether it be physical or mental or even both. I have shut down also and feel alone, but i think that is my own doing, not anybody elses. I try everything my doctors suggest, yet it does get tiring when failure is often the result. Do I feel like giving up? Sure, but I won't do that, which brings me to my 2nd reason for replying. I have suicide in my family. My mom found her father dead from suicide, when she was only 13 years old. To this day, her life is so messed up, so he not only did the selfish thing, he destroyed his children's lives as well.

There is hope beyond the pain and frustrations. Share what ever you want. Send private messages too. This is the place to come where people understand, do not judge and do not get tired of hearing about the illness. I have learned so much, even though only being here 2 weeks. Being here helps with the very bad days!

You are not alone~always remember that!!

debbiehub 03-20-2011 04:21 PM

Hi
 
I had my jacket on -keys in pocket and ready to Leave today. My husband stopped me...I am not sure if I would have gone thru with it but glad now that I did not. Thankfully i have a wonderful sister who talked me back into life...Just got so frustrated when I woke up this am and noticed the RSD had spread more- every day..so unfair. Unlike most of you I am not a believer so I have to think of my family and my son.....and this beautiful world.

nevadabound 03-20-2011 07:22 PM

dont be sorry for posting
 
Quote:

Originally Posted by krank (Post 754457)
I just cant do this anymore...Im a shell of myself....I feel like a wolf caught in a trap...Im a burden to everyone....theres nothing left to try...all its doing is taking taking and taking some more...whats the point....I have nothing left to contribute....nothing left to prove as I become more and more irrelevent to my so called friends, family and anyone else...the fight is over for me...I lost my brother and I just lost my mother....and my poor wife has a huge battle going on with her own health problems..She has stopped going to the doctor to take care of me as I watch her hands start to deform from RA...She wont listen and all Im doing is getting worse fast....pretty close to full body with flares coming closer and closer together....its now affecting my inner organs..maybe i shouldnt write this here but i know that all of you would maybe understand..I just dont know how some of you make it as far as you do...I just dont have it in me... im sorry

..........

DONT BE SORRY FOR LETTING OUT YOUR FEARS AND FEELINGS....... "
(quote)I have nothing left to contribute....nothing left to prove as I become more and more irrelevent to my so called friends, family and anyone else...the fight is over for me... >>
nothing is over for you- your wife needs you!!!!!!!!!:grouphug:

Millerprof 03-20-2011 09:36 PM

I am so sorry you are feeling this way. You are NOT irrelevant. Your wife needs you more than you realize. You sound like you are dealing with many stressors at the moment, which can really aggravate the pain and dampen our optimism. Sometimes the medications we take for RSD can also contribute to feelings of hopelessness and despair (I know after I started taking Lyrica I went into a severe depression; many of these meds have black-box warning labels on them now). Please talk to a professional about how you are feeling. And this may sound ridiculous, but is it possible for you to take your wife on a vacation somewhere warm for a bit? I thought I read in another post that you're from MN? I live there, too, and this has been the worst winter that I can remember in a long time.

daniella 03-21-2011 05:45 AM

Hi I am sorry for your loss of family members and your pain. I can relate to a lot of how you feel but we must try to find the smallest piece of hope left inside of us. Sometimes I have to take minute by minute to get through the day. If you want an email buddy I am here along with I know many others.Sending warm thoughts

lorigood243 03-21-2011 04:31 PM

Dear Krank

i cant add any more to what the wonderful folks who posted here before me.

i have internal rsd. i live with 80lbs of swelling on my abdomen, there is no way to reduce it. last weekend the pain over took me and i wound up in the hospital for 4 days to get me stable again. i had time to think. my husband who is my care taker was at home telling me how much he missed me ad how lonely he was without me.

i thought he would be happy to have a few days break from not caring for me. he has health issues too that cause him pain. i was laying in the hospital pretty depressed by my circumstance. i may never get out of this situation. a pain doctor came in to see me and lectured me on doing water exercises!! i thought i cant even get to the bathroom on my own and you want me to swim?
he explained that fighting this disease with exercise was the only way i could try to change my life. its the last thing i wanted to hear. but i guess if i want something different i have to try even though i know it will be hard to get to the pool, and i will be embarrassed because im very deformed...if i want a chance to change how i feel and maybe not be such a burden to my husband.....well its going to hurt, but i have to find the strength to try.

Im sorry for your losses and the struggles on your family!

Krank, find some way to do something different today to change whatever your normal day routine is. Just know that there are many more folks just like you who understand completely what you are living with and we need you here to help us go on. we do get strength from eachother here.
Just one hour at a time some days....
I care ...we all care
Lori

krank 03-21-2011 06:48 PM

Honestly I dont know how to thank you all...I just want to feel whole again...like I'm worth something...I really dont know how everyone hangs on....the death of my brother and then my mother in January...I just cant take it anymore...even though we were miles apart my brother and my mother and me were very close...they encouraged me and knew me so well that I felt I was worth something...Their gone and Im still here watching my body rot...Im not sure anyone knows just what I've done...I love the outside and I loved to go go go...If I wasnt doing something I was like a wolf in a cage...thats why I joined the Army...I was a combat engineer and then I wasnt satisfied with that so I went to Atomic Demolition school...When I was at Fort Belvior they asked me to take the honor of guarding the tomb of the unknown soldier...I just couldnt see myself walking in circles for four years...So they shipped me to Fort Hood Tx in the 8th engineer Battalion...I really didnt like that job because I just sat around and Drove Generals around base...the only thing I liked was carrying the Battalion guide on for the monthly Battalion run...I ran 5 miles carrying a 60 lb flag in front of me...I dont know why Im writing about this because thats all done...and no matter what Ive done ....I can no longer do...in my mind I cant slow down and with the meds im just in a fog....That day was a very bad day I almost hung myself...I dont know what stopped me...no matter how I tried I couldnt get the rope over the truss in my garage and the pain was absolutely insane...Im sorry for worrying everyone...but I found out that I have a family and its right here....thank you all...God Bless

lorigood243 03-21-2011 07:49 PM

Dear Krank

reading your new post made my day! We have to encourage one another...we all have days like you had...you just have to push on one hour at a time. I live near Ft Belvoir...Leesburg VA. I work from home selling office supplies to the govt. One of my dearest accounts is serving the Army at Walter Reed hospital.
Its my joy to serve those who serve our country. Thank you for your time of service!

We all live in our memories of what we use to be able to do. I use to be one of the top female office supply sales reps on the East coast. when i got sick everything fell apart, my business went down hill...i lost my home, then lost my job. now i live in an apartment and work from home and im trying to rebuild my business but just dont have the energy and ability that i use to. but i keep pushing on and try to get my sales up. my boss gave me 90 days to get my sales up starting jan 1st. i have 2 more weeks till he reviews me again. Going from being a top sales person to be given a 90 day warning is just unbelievable to me...like its not even the same person. that day i got the warning i wanted to die...i just wanted out. after talking it out with my hubby...i have just dug in and have tried my best...time will tell

thanks for posting
Lori

Lisa in Ohio 03-21-2011 08:31 PM

Krank, Thank you so much for your service to our country. I am sure glad that that rope trick did not work out for you. Sometimes, I think, you just have to take it minute by minute to get through the day. I really hope that you can find a psychologist that you can develop a rapport with, you might just be surprised how much just talking to someone else can help. peace to you my friend, Lisa

Millerprof 03-21-2011 09:54 PM

I've been thinking a lot about you, Krank, and I was very happy to see your new post. Please know that a lot of positive energy and prayers are being sent your way.

birchlake 03-22-2011 06:53 AM

Krank,

Good to hear back from you. Thank you so much for your service to our country. Can't stress that enough.

I used to be very active as well, now I'm happy if I can walk to my neighbors house without much pain! I used to be a competitive water skier, golfer, biker, hunter, walker, the list goes on. Can't do any of that any longer.

My days are spent working on keeping the CRPS contained and not angry/flared! It got out of control when I was diagnosed in late 2008, but with a combination of therapies, I've had some success 2.5 years out.

Hang in there. As mentioned, one day, one hour at a time. Find somebody to listen and find a way to laugh. Gotta have both with this monster in my humble opinion.

gramE 03-22-2011 09:09 AM

To Krank,from Cranky
 
Now I've only read the first page of responses and I can't keep my mouth shut. Do you know how much money you have already saved by letting out your true feelings here, instead of having your wife take you to a psychiatrist. TONS. But the important part of that is no one is wanting you to commit yourself to an institution, because they've all been where you are. I'm not even sure you could find a psychiatrist who could relate to how your feeling as well as these amazing people do. Did you ever notice that 90% of the time every response starts out with, "I'm sorry you are suffering with this."?

Aside from the comfort and consolation offered the wealth of info, experience, and advice is worth at least a diamond mine. If you go up to the Spiritual sanctuary, tenderhearted, full of God's spirit willing to help carry you burden people are just waiting to lift your name before the Throne of God.

No one believed me when I said how much pain I was in. Even my own personal physician who now agrees that I have CRPS in both feet, both ankles, going up my legs. I can't even remember how I got here, but i'm sure the Lord Himself sent me. Not one person here has ever questioned my pain or my rants. I went through a period where I was asking my husband to beg, borrow, or steal a chain saw to cut off my left leg. Ha, little did I know I would also want him to cut the right one off, but that is just about the time I was wandering around here and someone's dr was suggesting amputation. I quickly learned that wasn't the answer, but I also learned what to suggest to my dr or even learned to understand what I would submit to and what I wouldn't.

This place is a gold mine of tried, accepted and rejected, information

But more, much more than that it is a community of folks who know exactly how you feel, and 'this too has passed'. They will hold your hand until you see the light. But you must listen and believe when they say they've been there. And someone who's been there knows that there IS light at the end of the tunnel you are in. And I for one don't want my husband of nearly 43 years telling me I'd be better off without him. I know I wouldn't want to do this without him. I know that now instead of organizing and planning our entertainment/vacations/free time, I need a babysitter to entertain me! Now I know why God has thus far granted me ten of the most marvelous grandchildren in the world who are bothered in the least by the color of my feet, they just want to know if I have any new games to play or are we going to play scrabble. Or can help them make cookies? I don't have to move an inch to be energized more than I could have imagined. My four year old grandson, the last time I was able to sit with him while my daughter slept, was so distraught when said I had to go home, he told me to call G'pa and ask permission to stay over night because he didn't know what he was going to do if I went home. I told him I had to go home to take my medicine, and he said in his four year old smart,quick thinking, "no you don't, we got plenty of pills here!"

Now what would it do to this little guy, let alone all the rest of the nine of them to know that I just couldn't take the pain anymore. That hurts as much or more than the pain. I have a friend whose grandson saw his dad hanging from the rafter in the garage. That precious little soul will never get that pic out of his mind, nor will that man's mother who is struggling to help care for his two children when she gets the opportunity to see them.

It is not the answer Krank, and that is from a cranky old woman who is tired of work comp telling her the auto accident she was in while delivering the mail didn't cause her RSD because her dr isn't wording his letters exactly according to her wishes.

My life is 180 degrees different than Dec '09. But I'm learning that it is still good, and I'm still learning ways to incorporate 'fixes' to help me even more. Yesterday I read on here about a woman whose friend has extensively gerry-rigged her shower so she could wash her hair. What a precious gift. But Krank,we need you 'cause when you get passed this, there is going to be someone behind you who is going to need your hand, or words, or shoulder to lean on to lead the through the tunnel to the light.

Hang in there buddy, there is a crowd around you and we aren't going to let you fall!

We've all been there, and trust me none of us got a Tshirt. A respite or a cure is what we'd prefer.

With prayers for solace for your heart,
pat e:grouphug::hug::grouphug::grouphug:

broturtle 03-23-2011 06:41 PM

understanding
 
rest assured my friend that we undertstand. i know that doesn't help your pain but for what it's worth you're not alone!! keep fighting. that's all we have sometimes and if it gets so bad you can't stand it fight harder. get your pain meds, demand them and don't worry about side affects, long term damage - just get relief. not sure what you're on for pain but demand releif. it's inhuman to suffer so much. we put our pets out of their misery but we humans suffer through misery unjustly. demand meds and take them fearlessly.

Breezy55 03-25-2011 01:03 PM

Please Stay with Us!
 
Krank,we have all been where you are now! I also just lost my Mother this month! I have also (not that I am proud of this)been thru 2 divorce's. My oldest son which has had my only 2 grandchildren will not even talk to me? The crazy thing is he will not even tell me why! My pain level almost every day is about 7-9! I know that you can make it,please have alot of trust in this site,and all of the great people on here that are more like a family than one will ever know! If you want to please remember you can alway's pm me! With lot's of concern and hope! Breezy55! :hug:

Imahotep 03-28-2011 11:33 PM

Feeling like a burden to friends, family, and society is one of the tough things about this disease. But we can all contribute to the degree we can even if that's only just taking care our own needs or some of them. I used to be the guy who did all the work in most every situation and never got any accolades for it so so what if I have to impose on friends to help me do some little thing? Just plan ahead so the imposition is as minor as possible. Get a hobby, do research, read, write a book or just reach out to others on the net. There might be some volunteer work you can do. Just try to get outside everyday.

For me this thing is not just pain but pessimism and I have to fight the pessimism with the same vigor as the pain. Nothing has really worked but I am continuing to learn my triggers and getting better at avoiding them. Distraction and the right meds are critical. We need our sleep more than just about anyone probably. After a good night sleep I can wake up and feel almost normal sometimes even though it rarely lasts more than an hour and the effect is worn off completely by late morning.

There's still a chance to beat this thing but more importantly there's life even if it proves impossible. It can't be like the life you once had but this just means more time for old and new hobbies.

You're not a burden until you're not trying. There are always people who like doing a lot of work so pass the baton and let them go.

Good luck.

sockknitter4 04-02-2011 12:46 PM

I am new here. I know where you're coming from. The feelings of desperation, burden etc can be so overwhelming.
My RSD/CRPS is confined to the right side of my body (so far). I've had it for 9 yrs now and there are days when it's a bit much.

Try to find a psycologist who will talk with you. Non-judgemental and willing to listen. I've been with a pain counselor for 1 1/2 yrs now and he has helped me so much. I can't do the pain meds because I'm anaphylatic so the counselor is all I have left to help.

A few things that have helped me are just a few simple things:
I knit if for only a few moments a day (it's my passion)
I listen to my favorite music
I smile if only for a moment
We have pets and they give me great solace

Hang in there.

Teresa Marie 04-09-2011 08:48 PM

To Krank and all who have posted here,
I found this site just a few days ago. Since then I'm finding that there truly are people out there who have the same thoughts as I do. Coming from a small town in MN myself, I am cut off from anyone who has anything like I do to talk to who understands. In desperation I went to the net and here I landed. Krank, you and I share many things in common. From the worst winter I can remember in my 53 years living in MN to this red-hot monster RSD.

No words seem appropriate to express what I felt when I read your message tonight. Just compassion and hope that tomorrow will be that 70 degree day that is forecast. Would it help to share that after almost 6 years of pain in my feet/ankles/knees hope is only around the corner when we look around that corner. Don't give this disease what it wants. Meditate on something--Hawaii/ocean breezes/sunsets--whatever it takes to get out of your body/pain for a while. Distraction is the best method out there.

Remember those who would be crushed to lose you--and those of us here who can help. Nothing is better than going to a psychiatrist who can give you that combination of drugs to get you through. --we are here to continue on.

Sitting in MN

Teresa Marie

katfeet62 04-09-2011 10:37 PM

I am new here
 
I just got out of the hospital because I was done with my life. I have a severely disabled son and my mom just finished

katfeet62 04-09-2011 10:45 PM

continues
 
hit the button again.
Well that's about all. Thanks :rolleyes:


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