I need a Dr. in the MidWest!!!
 

I need some help with finding a doctor in the MidWest region that specializes in Chiari...I was dx with a 11mm Chiari Malformation in June...My nuero dr that I have seen for migraines for ten yrs left 1 month before this so I am left with nobody...I went to a new Neuro dr that was a horrible, all she wanted to tell me was that I didn't have MS (thankfully) and give me medicine to help me sleep...she blamed all my symptoms on the possibility of my Topomax that I take for the migraines...I then went to a NS who was a little better but he said that after doing 2 more MRI's that I didn't have a syrinx and I would never develop one and to go on with life and not worry about anything!!!!! Are you kidding me!!! When I was dx with this I was so relieved (which sounds weird) to finally have some answers to how I have been feeling...I almost felt like a hypochondriac b/c I was complaining about soooo many things about how I feel...If anyone knows of a good doctor that specializes in this I really need to see one...I'm tires of the ones who look at you like it's no big deal!!!

where are you in the Midwest ?

I live in SW Missouri...There is no Chiari specialist in this area...the two nuero dr's pretty much told me to go home and not worry about it...that is easy for them to say when they don't feel like I do!

are you close to arkansas , there is a dr there Dr Anthony Capocelli ..

also
Dr. Parley Madsen, III,
Neurosurgeon
Microsurgery and Brain Research Institute
6725 Chippewa Ave.
St. Louis, MO 63109
314-644-7111
Fax 314-644-3113

Dr. David G. Yingling, M.D.
Cape Neurosurgical Associates P.C.
3129 Blattner Drive
Cape Girardeau, MO 63701
573-339-0900

Dear Ihoover
 

I am a missouri girl. Lived there for 27 years in Columbia. Mayo clinic out of Rochester, referred me to that clinic. I participated in a trial study there.
Columbia University med. center on 1 hospital drive, has a great reputation, as it is a teaching institute. Also Barns hosptial in St. Louis has a good reputation. My daughter went to the childrens hospital there for neruological problems after birth. Both these facilities, were extrememly good. I am glad you have a DX too. Now maybe you can go on, and find someone to help. I do care and wish you all the best. I will keep you in my thoughts and prayers. ginnie

Thank you for getting back to me...I will check into the Med Center at Columbia...I did call one clinic in St Louis that said he was suppose to be a specialist in Chiari but when I asked they said that all their doctors were familiar with it but didn't specialize in it...I don't feel like that is what I need at this point...Any Nuero dr should be familiar with Chiari! I want someone who KNOWS what they are talking about! But I will check with Barnes and see who they have on staff there...
Thanks again...

Hi Ihoover
 

Both facilities, have complete listings of their staff available. Research every one you may have an interst in. Also they list their areas of expertise. MU also has a medical research library, they will open to the public once you have your doctor, if you should wind up with that faility. It is normally for students, but patients allowed in. I wish you all the best. ginnie

Chiari Specialist in Midwest
 

Did you ever find a Chiari Specialist in the Midwest? I was just currently diagnosed with Chiari, and I'm looking for a specialist as well. I have a neurosurgeon in Springfield, MO, but i want someone who specializes in Chiari.

Mid west doctors
 

Try Columbia University medical center, 1 hospital drive in Columbia, Mo. This is a top notch teaching facility. I took treatments there for 9 years. I do believe you can find a specialist there in any branch of medicine. I wish you all the best. Ginnie:grouphug:

top chiari specialist in Iowa dr Menenz

and dr Capocelli in Little Rock , arkansas

i know a Dr James Stone out of chicago from UIC giva him a call if you can find him

Hi llhover
 

I highly recommend Columbia University Medical Center. It is a teaching facility, and does research, trials etc. I was with them for about 11 years, and the treatment I received was wonderful. I have auto immune conditions, and Mayo clinic in Mn, sent me there for a trial study. They also have one of the finest medical research libraries around. ginnie:hug::hug:

2 chiari specialist dr Capocelli in Little rock, Arkansas and dr Menenez in Iowa city Iowa , not any really in MO.

I know this is a really late reply, but I also see neurologist/surgeon in Springfield & I feel at such a loss. I'm always in such pain & was wondering if you have had any luck with finding anyone new?

Advice maybe
 

I just recently moved out of the metro KC area where I was told by neuro after Neuro I was either a drug seeker, my herniation didn't warrant surgery, or they didn't specialize in it. I did find a clinic in Aurora Colorado that specializes only in Arnold Chiari but never followed my gut. If that is too far you might want to consider checking into via internet and phone research the Diamond Headache Clinic in the Chicago area.