Anyone have muscle pain and stiffness??
 

It does sound like spasticity to me, Jan.

What do they attribute the spasticity to, if not MS? :confused:

Cherie

That does sound like a pressure point of some type, just because it is so specific. I haven't had spasticity pain in a distinct, small area like that, but that's just my experience. Maybe others can pipe in that may have . . .

My spasticity comes and goes (although I know it can just stay for some people) and it is usually most or 1/2 (of usually both, or all) limbs that are effected at one time. It has lasted as long as two years one time, but got better with LDN.

For me, spasticity feels a lot like tendons being pulled to the max, if that helps. The only time my joints are effected is when it gets my wrists (feels a lot like carpal tunnel).

Have you undergone very reliable testing for Lyme? There aren't many tests that are reliable, but this company apparently offers one that is:

http://igenex.com

Cherie

I experience muscle pain and soreness on a daily basis and take Baclofen and Tramadol to help with the spasicity and pain. Works OK for me but kind of on and off. As with many of my symptoms, some days are better then others.

You may want to have your PCP test for any lack of enzymes in your system as you may be missing some substantial enzymes that help you matabolize in your body and the lack of them is causing build ups in you muscles and possibly your organ. (Is this a run-on sentance or what?)

I don't know how you keep two Rhuemys and two neuros straight. There are bound to be differences in opinions. Due you have a good PCP monitoring all of the general aspects of your medical care?

I always start with my PCP and then progress to a specialist if necessary. Even then, if I like the specialist I stick with just one.

First things first - :Birthday: Happy Birthday!!!

Now, yes I do have terrible joint and muscle pain and I take 600 mg Neurontion 3X a day for it. It's not helping enough but I don't want to take a narcotic pain reliever.

My worst pain is in my fingers on my right hand. By the end of the day my hand is screaming. I called my Neuro about it but all he did was bump up my dose of Neurontin. :(

HAH! Jan, that's always my resolution is to get down to a minimum of meds in my life. I have over 10 Rx meds that I have to take during the day at different times.

Everytime I ask my doc's which meds can I do without, they just look at me and say, "you're on these for life...........until something changes of course." Then they always let me know to keep an open mind as I may need more as the disease progresses.

hi jan,

i really feel for you. i have a lot of muscle pain too.
i've had a fibro dx since the 80's.
as of the latest my MS specialist attributes my pain to the MS.

i also get weekly massages which help a lot but they don't last. within a couple of days i'm back to square 1.

maybe your pcp could help direct you.

i just came across a website (which i havn't checked out yet) from my US News & World Report. it's a symptom search tool. "find possible causes of what's ailing you" it says. the search tool is from Healthline.

health.usnews.com/symptomsearch. sorry i don't know how to make a link.
and like i said i havn't checked this out myself. sounded interesting tho.

Sounds like spasticity to me too... I have had pains that small in my arms and legs - I always figured it was a little muscle cramping up. I have a specific muscle in my right arm that cramps constantly, and it's been doing that for four months - so I definitely think you could have spasticity in a muscle for a long time.

On the other hand, my left calf was really sore for weeks and wouldn't quit being sore... until this Saturday, when I woke up and it didn't hurt at all! Yay! I guess that nerve healed up.

I deal with spasticity and pain in my calves and upper thighs every day. I take a combination of Soma and Klonopin now to help deal with it.

In the past I have taken Sinemet/Sinemet CR (http://www.webmd.com/drugs/mono-41-L...-Levodopa+Oral) which helped a lot but the stomach upset side effects just got to be too much for me. The doc upped the lodosyn by 25 mgs to help with it but I decided that in combination with all the other meds I was taking that I would just switch to something else less toxic to my stomach.

I also have a B-12 deficiency which causes some of the same symptoms. I get monthly B-12 injections and can tell when it's time for my shot as the spasticity does increase.

As Judy pointed out about weekly massage, that has been a great help. I get weekly deep tissue massage by a certified massage therapist and she really knows what she is doing. She is not one of the "boutique" spa massage people. I have been going to her for about 3 years now.

It's a combination of treatments that get me through each day...it's not just one thing...you have to find what works for you. I found a percussion massager that helps at night when my feet cramp up so bad that I wake up screaming in pain b/c my toes have curled up and won't release.

So, yes...we all have our demons with this disease. We have to find what works. Baclofen did nothing for me, nor did Zanaflex.

Keep looking for what helps you. My doc was completely puzzled as well b/c what everyone needs to understand is that meds don't work the same for everyone. The Parkinson's Disease drug I mentioned above worked, but I have such a sensitive stomach, that it just wasn't the drug for me.

I also took MTX to treat my MS in conjunction with Betaserson. Did you take shots or oral? That in and of itself can make a difference.

Keep looking Jan, you will eventually find the right combination to help you. :hug:

Yes Brain we are on the same page, I have cont with the Plaquenil that the 1st Rheumy was giving me. And yes I see improvements. So when I run out of this RX I will see what my body goes through and YESSS I will return to him and tell him. THat med is bad for the retina's so you have to have it checked by a Neruo ophl.

YES I think the spasticity is my only constant symptom along with Buzzing. Its bearable tho.

The little quarter size pain in my upper arm left after nearly a year. It was soo intense that my PCP thought it was bone cancer !! SHe had an xray done just in case. Man its was an intense as a toothache!!!

AvIgirl, the ONLY thing that has taken away the leg/calf spasticty was Methotrexate!!! I hated it but notice my legs got all flabby...hahahaa
Then off of it..back to rock hard muscles.

WHEW.. I am much better and doing well. THANK you all for your help

Gratefullyl, Jan

Yes!
 

Hello!
I hope you will see this, even though your post was 12 years ago. We have very similar symptoms, etc. I was MISdiagnosed with MS also... then yes, this terrible muscle pain has taken over now. My neurologist did a muscle biopsy after a slew of genetic tests and has diagnosed me with idiopathic small fiber peripheral neuropathy. Most people seem to have burning though rather than aching, sharp, crushing-like pain. Have you found anything that works for the pain??

You could have osteoarthritis which I've been dealing with for over 60 yrs. Some days I b urn in certain areas of my body, lots of stiffness and sore muscles and lots of stuff. There are MANY arthritic supplements one can work with: glucosamine, shark cartlidge, and so many things we can try. Doing nothing is not the answer or just stay with pain meds. So much out there to work with but give them time to take hold in the body. All this pain and burning can bring on neuropathy.

This article about use of glucosamine as a supplement for management of osteoarthritis may be of interest to members.

Glucosamine for osteoarthritis: It doesn'''t work and could cause harm, scientists say

I've had osteoarthritis for years but it's not so much muscle pain as joint pain, stiffness, swelling, and sometimes redness of the joints that are hurting.

So far I've been taking 4 aspirin a day, and that does help. But one finger has permanently limited mobility and the others are somewhat deformed. Elbows are a problem too. The arthritis is also in my spine, and I have quite a few back pain problems--pain episodes, sciatica. I get leg cramps at night sometimes but those seem to be connected to a low potassium level or maybe spasticity due to MS.

10paindaily, the small fiber peripheral neuropathy is a different problem, and your pain sounds quite different from mine. I notice that you say in another thread that you don't have diabetes but have you been tested recently for it?

I have been supplementing with MSM powder for many years. 2 tps daily for sure. 1 tsp with 8 oz spring water in morning, one about later afternoon say way. Many take capsules but I prefer to use the power here and it does help with pain, dulls it. I live with advanced OA for about 60 yrs....and it advanced over the years...started at 18 and I'm 81.

https://draxe.com/nutrition/msm-supplement/

On the gluocosamine, I take 2 capsules of Cosamin DS daily, dosage calls for 3 but I take 2. A dear friend who died at 95, walked to the end and believes this supplement kept her moving. She was a marvel..