CFS :Leak
 

Hello there, can some one please tell me, what sort of work or job do you have to get a CFS Leak and is there anywhere i can please read about CFS Leaks. And also how many different types of CFS Leaks are there. I would be so greatful for any information. Many thanks

hello Elaiza welcome to Neuro Talk, here is a link to one of the forums, its for cfs leaks

http://neurotalk.psychcentral.com/forum78.html

dont hesitate to ask question and explore the other forums, again welcome to NT

Hi there Elaiza and welcome to NeuroTalk.

I've never heard of a specific job that could lead to a Cerebro Spinal Fluid leak, but there are lots of causes for them to happen. It's even possible to have one occur spontaneously. http://www.medscape.com/viewarticle/405624

You don't mention why you want to know and I was wondering if you think this might be happening with you.

Try typing CSF leak into your web browser, and see what you come up with.

hello
 

hello Elaiza

sorry if you have this condition I don,t think there is any job you can do unless it involves banging your head or breaking your back
the main symptom are loss of balance , a thunder cap head ache on sitting or standing , ringing in the ear clear or straw colored thin liquid coming from nose ,ears or rarely eyes or internally from the spine or down the back of the throat
they are normally caused by skull fractures or lumber punctures but can be spontaneous it can also cause chari malformation I have a head leak and if you have a leak you sure know you have got one, post some more info on your problem on the csf forum and i will try to answer with some docs that treat this if I feel up to it

welcome to NT

Hello and Welcome to Neurotalk!! You will meet many great and supportive people here who will be more than happy to answer any questions you may have.

Unfortunately I don't know much about CSF leaks but just wanted to send you a :hug: and say I hope you feel better real soon!!

If you need anything, please don't hesitate to ask, I am more than happy to help you in anyway I possibly can!!

Take care and I look forward to seeing you around the Forum soon!!

Alison

Hello and welcome to NeuroTalk! Looks like you've gotten plenty of good direction with the responses here so I'll just say welcome to the group!!

Hi and Welcome to NeuroTalk. I hope you get some answers soon.

http://i98.photobucket.com/albums/l2...300262_med.jpg

welcome Elaiza to neaurotalk .... there are lots of friendly and helpful people here ... i hope you find answers soon ...

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene :hug:

CSF Leak
 

Hi there THANKYOU so much for all your support, its so nice to know there are awesome people out there. The reason I asked about the job was, my Doctor told me because I was a dog groomer it was highly unlikely that I would get a CSF Leak. But I did get a CSF leak which came out of my left nostril and got a cyst on top of it and then got Bacterial meningitus.I have had it fixed but I have been trying to find some one in New Zealand that had the same as me, so that I could talk to them. So if there is anyone out there from NZ please contact me, I will be so grateful.
Kind Regards to you all and take care

hi elaiza and welcome to NT,

i don't have any experience with CSF leaks either.
i see you have been sent a link already.

the site is great for info and support and i'm sure you'll find both here.

tick bites csf leaks
 

hi quote from a friend re leaks and tick bites (dog groomer ) ???? hope this helps answers your question



For those who don't know my DH's history, his leak started 9/2/2006 when he had a LP done in the ER where he presented with meningitis symptoms. Turns out he'd been bit by a tick (we never knew) and had Rocky Mountain Spotted Fever. He never had any of the RMSF symptoms, not a single one! He did however have one of the 'complications' of a RMSF infection - bacterial meningitis!

A month earlier my daughter had a tick bite and developed the classic 'bullseye' rash and all the symptoms of Lyme Disease.

Needless to say we are 'tick-shy' to say the least and have treated most of the yard (we live on 12 acres, so can't treat everything), all the animals, and spray when we go in the woods!

Last night I found 3 deer ticks in the nymph stage on my husband, and two other places where it looked as if a tick had been there 'recently' and fell off. We'd gone on a walk through our woods on Monday afternoon, so they'd been feeding about 48 hours ... well past the time needed to 'infect' if they did indeed carry any tick borne diseases. We've frozen the ticks (a good thing to do in case you ever need to 'test' them), taken pictures of where they were located (well, there were two 'indecent' locations that we didn't photo.... ), dated and labeled everything and are in the 2-30 day window of 'did ya get bit by an infectious one or not?' Deer ticks are only infectious in the adult and nymph stages and it's only the females that infect ... if you want some good links, let me know!

Today I called our GP and he's starting DH on a 10-day course of doxycycline which treats about 85% of the types of tick borne bacteria. He has antibodies to RMSF, so he can't get that again, but there are many other nasty potential bacteria.

He is 'supposed' to be having a CT-guided blood patch with Dr. Gray-Leithe at Duke (not scheduled yet as Dr. Schievink just spoke with her and passed on our number), but that's going to have to be out for the next 30 days till we are sure he's 'clear' of any bacteria. Then, if the leak isn't sealed on it's own, and we can't convince her to go fibrin, we will probably have to have every tick borne disease test known to mankind done before considering putting his blood next to an open dura! I emailed Dr. Schievink last night with the information regarding the ticks and our (obvious) concern about blood patching in hopes that he can talk Dr. G-L into fibrin with all things considered....

Why do I share all this, well clearly for support and prayers (Cherry even said she'd be praying for DH when she called this morning)! But also to mention that if you've had a tick bite and you have a leak, to be extra vigilant to watch your bite site! Also, if you have a GP that you trust, take the doxy for 10 days as a prophylactic course! It's 100 mgs doxycycline, 2 times a day for 10 days. Baby stuff as far as antibiotics go!