occipital neuralgia
 

Daughter's condition getting more painful since having occipital nerve severed.
What drugs are in nerve blocks? Does anyone know? SHe has taken Cymbalta (didn't help-nasty drug) and now is going on Topomax. Nothing is releivng the pain. Any ideas or help would be appreciated greatly.

Hi alices nice to met you welcome to neuro here is our forum for O.N.

http://neurotalk.psychcentral.com/forum105.html
I am sorry to hear what you and your daughter are going threw
i think you will find good info ,great people...dont forget to read the stickies at top of the link. :hug: :hug:. hope to see you around neuro again soon.
PEACE
BMW

Alice,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Hello Alice and Welcome to NeuroTalk.

http://dl8.glitter-graphics.net/pub/...qirkm5fopy.gif

Drugs that may help
 

Have you tried Gabapentin Gen. for Neroutin? This is what the doctor gave me for damage to my left arm and calf after a stroke. Be sure that you start out with a 100MG and go up from there as needed. I was started on the 300MG and they made me feel so out of it that I quit taking them. When I went to another Neurologist he started me on the 100MG and worked me up from there.

Hi Alice.I'm new to this site but was looking for some answers myself for my husband who has had O.N. for ten years now. His is an extreme case and the pain is excruciating and hard to watch. He's had the nerve stipped,severed and injected with everything you can imagine. Nothing has worked. The doctor warned us that severing the nerve could make it worse and that's just what happened.He is now waiting for a peripheral nerve stimulator to be placed in his head(electical pulses interupt the pain) but we live in Canada where you could wait forever to get surgery.As for Gabbapentin,my husband has been on it for 5yrs.(doesn't help) every kind of pain meds known to man and is now on Methadone(which also doesn't help).Meds are taking their toll on his health. My recommendation if her pain is really severe would be to look into a stimulator implant.It decreased my husband's pain and meds by half when he tried the temporary implant. There is also on You Tube a video of a gentleman who had the implant (showed his surgery and everything) and was pain free after that. Hope this helps.

occipital neuralgia
 

:grouphug:welcome.
there is a site for occipital neuragias on here so it will be worth you looking in.
i have o.t take tegretol, gabapentin 1800mgs, methadone, amytryptaline & nerve blocks of aneastic & steroids. at the moment am having a breather from blocks & using versitis patches which are difficult to stick on head & face
i`m just getting used to them but so far pain no different maybe early days i`m hoping so.
all the best & take care
jane

Hi, Alices...
 

It's very nice to meet you. I was recently diagnosed with some form of neuralgia after being ill for six years, but it has nothing to do with my occipital nerve. However, I did take Cymbalta for a while, and like your daughter I found it to be rather useless and unpleasant. If I learn anything else, I'll try to pass it along. I go to see another specialist pretty soon. Best of luck for you and your daughter, and all my best wishes...

Hi, Alices! :Wave-Hello: Welcome to NeuroTalk!

Geez, I hope you can get some answers for your daughter, I'm sure you are suffering right along with her. Feel free to join in anywhere, NT is a very friendly place. :)

Hello and Welcome to Neurotalk - you will meet many great and supportive people here!!

I'm so sorry to hear about everything that you and your daughter are currently going through :hug:

I don't suffer from Occipital Neuralgia, however I do suffer from RSD (Reflex Sympathetic Dystrophy) which is also very painful, I have had it since I was 12 years old (i'm now 13). The medications that I have been on so far are Lyrica, Gabapentin, Tramadol, Paracetamol, Ibuprofen, Morphine and many others.

I hope your daughters pain reduces soon - please send her my love and best wishes.

Alison

Will not do nerve block anymore
 

I had four nerve blocks since spring. I was in servere pain last week ans was told the nerve blocks are no longer working. What are my alternatives? I have missed three days of work with the pain. Any advice will be great!!!

Welcome to Neurotalk mtrout ... although i personally do not know about nerve blocks i was able to find a site where you might find some answers ... i hope this helps
http://neurotalk.psychcentral.com/se...g_searchinfo=1

Cymbalta
 

I had such bad occipital neuralgia that I thought I had a brain tumor and even got an MRI. Totally unrelated but I started on Cymbalta (60 MG a day) for depression and next thing I know the occipital neuralgia was completely gone. It was so subtle I didn't even realize it until I stopped the Cymblata and the ON returned, big time.

I wouldn't put a dog on Cymbalta or Topomax!!! Been on both and are terrible. I have migraines and always in search of something to help me.
I was at a dead end when I was introduced to Neurontin, figured I didn't have anything else to lose. Already lost my job and my sanity why not. It works great! Or at least better than anything else I have tried. I could function again. My sister suffers too and just started taking it reluctantly I might add and to her surprise she has found relief. She took it for a month before she noticed a huge difference and for me it was almost 2 weeks.
It is an older drug and these days everyone is out for the newest thing and man I hate that. It is FDA approved for seizures but widely used from anything from leg pain to migraines. And with very few if any side effects. Good luck.

THE NERVE BLOCKS USSALLY HAVE
DEPOMEDROL (methylprednisolone)AND/OR
HYDROCORTONE (Hydrocortisone) BOTH STEROIDS I HAVE A CHRONIC PAIN COND. SO I CAN RELATE SOMEWHAT
GOD BLESS AND I WILL KEEP YOU & YOUR IN MY PRAYERS

Occipital Neuralgia
 

Hi All,

My name is Amy, and I am here because of my husband. He developed a headache on Sept 1, 1997, and has had one every day since. He has had every kind of drug, injections except Botox which he is having on Monday.
His neurologist doen't think that the Botox will work work but all the medications that my husband has been on has pretty much destroyed his stomach and don't work anyway. My husband has taken himself off the fentynal 50 patch, he is now at 12 mcg and will be done with them completly by Saturday. The fentynal patches helped some and made it so he could work, but they stopped working and he was developing a rash under the patches.

Something that we did find that helped some along with being on the patch was working with a Chiro that does NUCCA adjustments.

NUCCA stands for National Upper Cervicial Care Association.
The whole NUCCA process is very different then most Chiro adjustments.
The Chiro that first worked with my husband, had a couple of diaginostic (sp??) moves and then did X-Ray that looked at the neck in ways that had not been done in all the previous tests, MDI, CT, X-Rays.
For those of you who have developed headaches after a whiplash injury, and especially if none of the more conventional treatments have worked, you may find some help with a NUCCA doctor.

Has anyone else had the Botox injections, and if so how long did it take for it to take effect, any side effects at the injection sites, and how lond did they last between injections?

Thank you for have a site where hopefully someone can shed some light on a miserable and life changing problem.

Amy

Hello Amy and welcome to neuroTalk.

I'm sorry to read about the problems that your husband has been through, and I hope our members will be to able to give you the advice that you seek.

I've copied your post over to our Occipital Neuralgia Forum in the hope that you might receive replies from there as well.

Here's a link to your thread: http://neurotalk.psychcentral.com/sh...d.php?t=113322