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-   -   Spinal Cord Stimulation (https://www.neurotalk.org/spinal-disorders-and-back-pain/9297-spinal-cord-stimulation.html)

Harry 12-19-2006 05:00 PM

Spinal Cord Stimulation
 
I had an Advanced Bionics spinal cord stimulator implanted two weeks ago. The system helps the nerve pain but I am experiencing severe pain around the implant pocket. Has anyone had similar experiences? Please comment.
Thank you.:confused:

LindaM 12-20-2006 08:31 PM

Hi Harry,
I had the AB SCS implanted also last year but had to have it removed after a short time due to many complications.
I'm happy to hear that that you are getting good results and hope that it continues to help.
I had two inscions for the implant myself and don't really recall having any real severe pain problems at either site at the time.
It would really help if you could be a little more specific about what type of pain your having around the site, such is it stabbing, burning or what?
Have you had it ck'ed to make sure that you haven't devolped an infection, as I know that can be a common problem with the implants.
Anyway please let me know more about the pain if you can and don't heitate to contact your dr with this problem!
Good luck,
Linda

STEELRAIN23 01-09-2007 04:47 PM

Quote:

Originally Posted by Harry (Post 51313)
I had an Advanced Bionics spinal cord stimulator implanted two weeks ago. The system helps the nerve pain but I am experiencing severe pain around the implant pocket. Has anyone had similar experiences? Please comment.
Thank you.:confused:

HI HARRY, I HAVE A MED-TRONICS SPINAL CORD STIMULATOR IMPLANT, IT HAS BEEN 4 MONTHS SENSE THE IMPLANT AND I ALSO HAVE PAIN WHERE THE GENERATOR SITE IS AND ALSO WHERE THE LEADS ARE. I HAVE BEEN UNABLE TO GET AN ANSWER FROM MY DOCTOR.
IF YOU GET SOME KIND OF ANSWER PLEASE LET ME KNOW. STEELRAIN01@AOL.COM.
GOOD LUCK HARRY.

jonnyrocket 01-10-2007 05:27 AM

I also had the medtronics stimulator implanted last summer on a weekend trial for back and leg pain. The procedure took much longer than usual as they could not get the lead for my back in place -later told too much scar tissue there. Because you have to be awake it was quite a bad experience, though looking back now, quite comical at times - like when they thought they had the lead in place for my left leg and I felt the buzzing in my right butt cheek instead ! At one point the medtronics person told me jokingly this was all my fault because things were not lining up where they should have. Not sure but perhaps dermatone type things are as individual as eye color in people ? Maybe not that unique but surely there must be variation. So the weekend trial was a bust as they finally settled on a n area where I had to turn the amplitude up so high to feel it where I needed it that it was very uncomfortable.
Sorry so long - btw my doc says there is a new one out by a boston firm, not sure if its the one your're asking about and right now I can't recall the proper name, but its supposed to have very thin leads. And because the medtronic people were not very good apparently with many others besides me, he fired them.
Don't know as I would try it again for what thats worth.

Fancylady_2006 01-11-2007 07:38 PM

Hi Harry~
 
I had the Medtronitc's one. It was the best and most expensive on the market over a year ago. It gave me all kinds of trouble as months went by. The medtronic salesman blamed me also. That's just to put the blame on me. My advice is don't listen to them. They will tell you it don't work for everyone. I too had to turn it up on high and it just li
kicked my leg forward. It would shock me too when I would change from standing to laying down.

After 11 months I went to my other spinal doctor and during another spinal surgery I ask him to take it out. he did, and that was the end of my problems. I won't tell you what to do. Everyone has to make up their own mind about that.
_____
BC:)

Leeaelle 01-12-2007 03:10 PM

Hi Harry ~ By the implant "pocket" are you referring to where they put the "generator?" If so, I had that problem too. The stupid thing tried to even work itself OUT! (yuk) It made pressure sores on each end of the generator, as I was (and still am) quite thin and didn't have enough 'fat' to contain it. Consequently, since the whole unit wasn't doing much good anyway, we had to have it removed which I hate to tell you is a bit worse than having it put in. :rolleyes: But I was NEVER sorry.

Talk to your pain doc about this. The generator (if that's what you're talking about) should NOT be causing you ANY pain!!! So please let him/her know ASAP. God bless. Hugs, Lee

resa 01-18-2007 11:23 PM

my husband had one placed about 15 months ago. The "pocket" hurt for about 6 months but he has no problems at all with it now. It just took a while for the scar tissue to form around it. He has the Medtronics implant. As for the nerve pain, if you have trouble with the levels of stimulation causing an uncomfortable fleeting or makes you feel like you're electrocuting yourself, REMEMBER, there are numerous settings! You can't program it yourself. They only give you a few settings to choose from. Call the Medtronic rep and they will be happy to meet you in your doctors office and try new combinations. We met with them 3 times to try new settings and finally found a combination that reduced his pain level by over 50% without any discomfort to him.

Good luck.

Fancylady_2006 01-19-2007 12:08 AM

Rep from hell~
 
I had a rep like you wouldn't believe. He would never come in the 11 months I had one in. I even called Metronic's and turned him in. They did send a woman after that. It didn't help tho. Mine had a lot of settings and I learned them all. Not everyone likes them. I had so much scare tissue from that too that I was begging to have it out. That was the end of my problems. It has been out now 4 months. I didn't want it anyway for I was needing surgery at the time and my husband didn't want to take me since it was so far from our home. A different surgeon took it out. He did have to report it tho and contact the ones that put it in, for he is a bone specialist. He doesn't like them either. I was told, they do work for some people. The Neuroligist wouldn't do anything to my back and that is why I let him put it in, in the first place. I do want to wish your husband good luck.
___________
fancylady:)

DUTCH45 01-28-2007 02:24 PM

Gosh I feel like I am alone!
 
I had a Medtronics implanted May of 2005 and love it. After a trial implant of one week that was very successful for SOME of my neuropathic pain I elected to continue with the regular implant. What a blessing! I know it is not for everyone and certainly not for all types of chronic back pain. The success is not only determined by the type of pain, but the skill of the doctor implanting the leads and generator.

My SCS virtually eliminates my pain in the buttocks and the back of my thighs, however it does NOTHING for the pain in the lumbar region. I think I remember some doctor referring to my lumbar pain as "mechanical". Probably not nerve pain, but I just don't know.

As far as I am concerned, my SCS implant was very successful! Sorry for all the problems everyone has had with their SCS implant.

LindaM 01-28-2007 02:37 PM

Dutch45,
What great news I always enjoy hearing that they help someone.
Thanks for sharing.
Linda

Fancylady_2006 01-28-2007 04:25 PM

Dutch45~
 
I too am glad to hear of a success story from the implant. I can tell you I haven't heard of over 3 people in all the years I have been reading about them. It is nice to hear a good report.
_________
Fancylady:)

ICDAVILLA 02-11-2007 11:39 PM

Harry, I'm very sorry for your experience, but talk and demand answers from your doctor; it's your right.
I am new to this site and I'm glad I came to it. Your bad experience is good for me in the sense that I have been scheduled for an SCS implant as "last resource" for terrible, uncontrolable "permanent neuropathic" pain as a result of post- laminectomy syndrome. I have been doing some research on the 3 different systems and Bionics seems to be the best. Nonetheless, I am not still convinced that a device that has to be implanted in your deep tissue will not cause situations like yours (rejection to a foreign body). The location of your stim may be playing a part on your disconfort. I have good lines of communication with my pain specialist and he knows that I will do, am doing, research for anything that is going in my body. I had a very bad experience with my laminectomy on the hands of the director and top national ortho surgeon (80 chapters and 15 books on spinal surgery and more than 140 articles,; I walked to the OR and came out with my left side(from the waist down) paralized and a very weak right side, with constant and permanent neurological pain. My personal and professional life was completely changed. I believe that my pain doctor may have an answer and probable solution for you. Good luck and please feel better, but demand answers.

kkelly 02-15-2007 11:28 AM

Crossed Wires
 
Help! What is the status of anyone who has these devices removed.

I had miraculous experience with the trial in November with Precision SCS and went forward with the implant in the beginning of January. Two days later I twisted my spine and felt like something moved. I contacted my doctor and SCS rep, there were two attempts to re-program the device, to no avail. At the beginning of February the doctor finally ordered an x-ray which shows that the part of the leads containing the electrodes are crossed. Again he wanted reprogramming tried, which I did and ended up with an excruciating headache and in bed for the past week, along with pain in the back of my ribs, which I did not have before.

I am scheduled for a revision next week, but my doctor will not return my calls so that I can ask some questions. I have been told that if I have the device removed I will suffer much more pain than I had before having the device implanted. Note that my pain is mostly in my back and left leg. Anyone have similar experiences?

anonymous_no_more 02-15-2007 12:48 PM

Quote:

Originally Posted by kkelly (Post 70790)
Help! What is the status of anyone who has these devices removed.

I had miraculous experience with the trial in November with Precision SCS and went forward with the implant in the beginning of January. Two days later I twisted my spine and felt like something moved. I contacted my doctor and SCS rep, there were two attempts to re-program the device, to no avail. At the beginning of February the doctor finally ordered an x-ray which shows that the part of the leads containing the electrodes are crossed. Again he wanted reprogramming tried, which I did and ended up with an excruciating headache and in bed for the past week, along with pain in the back of my ribs, which I did not have before.

I am scheduled for a revision next week, but my doctor will not return my calls so that I can ask some questions. I have been told that if I have the device removed I will suffer much more pain than I had before having the device implanted. Note that my pain is mostly in my back and left leg. Anyone have similar experiences?

Kelly,
I had a medtronics synergy implanted in January of 2000. It worked wonderfully, until about three months after implantation. I won't go into details, but like Fancylady, I had to jump through hoops to get my doc to pay attention to my complaints, and had to constantly go in for reprogramming to compensate for the lost coverage (had two leads).

In the end, both the IPG pocket as well as the upper incision at T2/T3 became painful, burned, and had intermittent "shocking" sensations from the incison site down to the IPG. It turned out that not only had the leads migrated from the appropriate spinal nerve level, they had also begun pulling out at the IPG site.

I did keep the SCS for almost two years (implanted in 2000, explanted in 2002)...but in the end it was removed due to a need for spinal surgery.

After observing other SCS user experiences over time here and on the other site, I would suggest that it may not be the device that is the problem, rather the ability of the surgeon who does the implant. One needs to make sure the doc has done many of them, and that he/she will make sure that the patient gets whatever support required to have sustained success with the unit once it is implanted.

Don't beat yourself up about twisting, as many did nothing like that and still had the leads migrate. As far as going through with a revision...I would suggest that you need to decide if the benefits of the SCS outweigh having to go through another surgical procedure.

I did find that it [the SCS] was great for neuropathic/sympathetically mediated pain, and missed it when it was gone.

Would I put in another one at this point? Nope. I am trying to manage with less invasive treatments at this point.

Your doc may also want to do a paddle implant [for the revision] in order to secure the electrodes better, but that is a more extensive procedure, although, depending on your pain/nerve symptoms, may be beneficial.

Since having my implant removed, the IPG pocket pain/burning resolved, although, the upper incision area developed some kind of neuroma, and it is numb/hypersensitive. Ironic that something done to help pain/nerve symptoms, created its own set of problems.

Again, I am not discouraging anyone from getting the SCS, as it certainly worked for me when it worked.

best of luck.

LindaM 02-15-2007 08:08 PM

kkelly,'
I had y implant done On April 1st and with in a few days the leads had done as yours, it took some time to convince my DR to xray and when he did he found it and we did a revision and the same thing happened.
I'll say I did follow my instructions to a Tee as I really wanted this to work and was so excited about it. I have to say I was having some awful effects from this and would get shocks that would take me to my knees and then I wouldn't be able to get the darn thing to turn off, over all it was a terribly frightening experience and of course no one believed me.
Anyway the Dr and rep. offered to do one more revision and the Co. offered to supply with with these new anchors that weren't on the market yet that was suppose to be better and keep the leads from falling only the surgery was much more severe and my Dr couldn't do it I would have to go to a NS.
At that point all I want was the thing OUT OF ME!!
So I had it taken out the first week of June so it wasn't in very long over all, and the removal was not bad but now a couple of yrs later I am having a lot of problems from scar tissue that has built up in my T-spine after all it was 3 surgeries in a short time.
If I was you and plan on having it out I'd say the sooner the better before it scars in even more.
I know it's a very expensive implant too, and it is surgery no matter, so please make sure it's what you want before you do it.
Best of Luck.
Linda

stonehouser 03-03-2007 09:03 AM

Amazing success for me...anyone else?
 
I had the med-tronic spinal cord implant procedures done at the beginning of November 2006. My original injury was a result of an accident where I fractured my L5 and suffered three herniated discs at L3-L4, L4-L5 and L5-S1. After 7 surgeries I was still in a great deal of pain, taking 80-100 mg of oxycontin a day. After the surgery I described to my wife that the sensation was similar to being able to turn off the worst headache with a TV. remote. I hated being on drugs all the time because I felt that I was living in a fog. It has been 4 months now and the only problem that I have is pain where the wires come out of muscles in my back and snake around under the skin to the battery, which is located just under my left rib cage. At times it feels like someone is stabbing me in the back with a pencil. However, this is nothing compared to the pain I use to deal with. I am happy to announce that I only take Tylenol for my aches and pains. The fog has been lifted. My neurosurgeon told me that it will take time for the body to adjust to the foreign objects and to give it time. He also indicated that, for him, there appears to be a correlation between using this implant on patients who suffered trauma compared to people suffering pain as a result of degenerative disc disease. It makes sense to me because if your back parts have progressively gotten worse, who is to say that the implant would make it stop? What’s people’s opinion on this? rcs_kingston@yahoo.ca

angelray 03-12-2007 02:06 AM

neurostimular BAD results
 
Hi,
My husband had this put in last year, with in a month he was running high fevers, he would lay down and it looked like someone had dumped a five gallon bucket of water on him. ( we had to change sheets and dry his pillow everyday) He ended up in the hospital and they told me he had infection somewhere and it could go to his heart and kill him.. I was terrified. We told his dr we wanted the stimulator out that his body was rejecting it.. He told me that was a matter of opinion:eek: He asked my husband if he wanted him to try and rearrange the leads..(boy did I hehe) anyway.. we told him no to take them OUT ... well guess what.. a year later hubby had to have a ct scan done.. he is still running low fevers all the time..we got our results back
and the dr took the stimulator out but left the lead wires in.. I called medtronic for a allergy test kit both the box and leads are made of the same stuff.. we are going to another doc this week to do the allergy test..hubby has not been right since they put that box in.. I hope no one else ever has this problem..and yes they did do the temp one and I saw puss coming out of one of the leads.. told them and they told me that was just crust it wasnt puss.. ( I have four grown kids and dont have a clue what puss is imagine that).. whew I feel better, thanks for listening

Fancylady_2006 03-12-2007 05:30 AM

angelray~
 
I would go to a Dr. that would take the leads out if I were you. I don't understand why they left them in, in the first place. If you don't want to have another put in, there is no reason to have the leads left in place. I had mine taken out after several months when the Dr. done another back surgery and my problems are all gone. With the puss and all, it is plain to see he can't leave it in. It just has to be the reason for infection.

In my case, the surgeon did tell my family, if it was to close to my spinal cord he would not remove them. I was fortunate, and he removed them. It was another doctor though. He did contact the one that put it in before, he removed the leads. They do have to be careful or you could become paralzed.
I have never heard of a case quit like your husbands, but you can become allergic to the leads where they join the battery. That was my big concern. I too am allergic to metals. I really feel for your husband.:grouphug: Good luck having this taken out.
Blessings,
Billie:)

LindaM 03-12-2007 04:55 PM

Angelray,
I'm so sorry that your DH and you have had to go through all this, how sad..
I can't believe some of the crap they do and get by with.
Now your DH's leads will be even harder to take out as now they have scarred in for a year...
I hope that he is able to get them out and get rid of the infection and fever,
I can only imagine how hard this must be on you all.
I know of one girl that had the implant don and she got infection where the leads went in and it was so bad the infection was pushing the leads out, it was awful, she really had a hard time.
I wish you all the best and please let us know how DH does.
Linda

angelray 03-13-2007 09:58 PM

spine stimulator
 
Hi,
Hubby goes tomorrow to see if he is having a reaction to those thingys they put on his back. I hope and pray it tells us something. I feel like my world has fell apart with him as he is in so much pain all the time.. He says things he should not be saying and he doesnt realize he is tearing me up inside. I know it is hard to hurt all day and all night. I watch him walk the floors and cry he is in so much pain. Every doctor we went to or sent his reports to could not help him.. finally we found a doc that said he could help him and that is going to fall thru.. they said it would still cost us 12,000 facility fee plus 900 of the 20 percent of medicare... plus 600 a piece for airline tickets and 75 a night for motel..:eek: Does anyone know if there is any programs out there anywhere that can help with surgery? I have tryed to look and see what I can find but my mind can not consintrate. Can someone help me look for something when anyone has any free time , Please? Thanks so much
God Bless...Angel
so glad I found someplace where people know what I am going thru

sherylrx3 12-09-2007 01:59 AM

I have talked to you by email before. My mother found an attorney who is willing to take her case on a class action suit. Anyone else who is interested can email me at sherylrx3@aol.com. She had a SCS implanted and it shocked her. made her pain worse. she has a crooked spine and I think the leads must have gotten twisted. There are a lot of things in addition. Plus she is 64 yrs old. She has fibromyalgia. That is pain all over. I don't know why they thought a SCS would help her. She has terrible pain in the battery site. The thing never worked at all. It cost a lot of money to put in and to take out. The pain doctor who put it in promised her she would be able to go on vacation and travel and do things she hasn't been able to do in years. Imagine the false advertisemen!

seeker 01-13-2008 12:06 AM

Hi ALL, Seeker here, Has anyone had to have a battery replaced on the older medtronics SCS? My wife has had hers for 3 years and is nearing the end of battery life. She has severe pain and her STS set to the MAX almost always. In addition she is on meth and fentnyl.

I will probably be getting a STS in the near future. Any comments concerning the new rechargable Medtronic's units
Thanks for any help.
my Prayers are with you all

destiny 02-29-2008 07:28 AM

The Help of a Spinal Stimulator
 
My name is Sherry. I had a spinal stimulator implant 12/12/2007. I love it it has given me 90 percent of my freedom back. After being in pain since 1989.
I had back surgery in 1989 one disc deteriated had one disc taken out, a fusion that didn't take. I have disc problems, deformity of the spinal cord, & spinal nerve root damage, fibromyglia, sleep apnea, TMJ, Reflex Sympathic Destrophy in my right foot, also got RSD in my left knee after having a knee replacement February 7, 2007. I feel for anyone who has to deal with pain. I would tell someone with pain how good I feel now.

G. Relief 06-16-2008 08:22 AM

Eon Mini
 
I have the new ANS system (Eon Mini). The battery in my back is the smallest on the market (about 1/2 dollar).
I have some soreness where the battery is, but the trial was more painful to me.
Good Luck.

Floridian 06-25-2008 11:13 AM

Quote:

Originally Posted by DUTCH45 (Post 64235)
I had a Medtronics implanted May of 2005 and love it. After a trial implant of one week that was very successful for SOME of my neuropathic pain I elected to continue with the regular implant. What a blessing! I know it is not for everyone and certainly not for all types of chronic back pain. The success is not only determined by the type of pain, but the skill of the doctor implanting the leads and generator.

My SCS virtually eliminates my pain in the buttocks and the back of my thighs, however it does NOTHING for the pain in the lumbar region. I think I remember some doctor referring to my lumbar pain as "mechanical". Probably not nerve pain, but I just don't know.

As far as I am concerned, my SCS implant was very successful! Sorry for all the problems everyone has had with their SCS implant.

Hi DUTCH45
After reading so many "it didn't work" comments I was beginning to think I was a little nuts.
After trying epidurals, very temporary... botox injections, mild relief plus a lot of trials and errors my doc suggesed a trial for SCS.
Did the "outside" set up first before the leads inplant and for 4 days I thought "oh well another bomb".
I had been using a very $$$ tens set up which did help somewhat so doc thought this might be the better of the 2.
The 5th day I went in and told them this is doing not much better, let's quit.
That night I was in one of my frequent "I give up" moods. By the 3rd day I called his office and said the darn thing must have done something as I feel worse. Seems my brain thought it worked so when it was unconnected brain went into "what's going on now" mode.
That was 2 years ago. Does it "cure" the severe scolosis and kyphosis of course not, make it bearable sure does.
My "S curve" was a road block since he couldn't get the leads up high enough for a miracle but I'll take anything that helps. The pain in my legs and lower back is doable. I set it around 280 and jack it up to 325 or so when needed.
That's better than 6 Ultrams a day compared to 1 or 2.
The SCS combined with RAF of the facet joints is a winner.
Anyone here try the RAF of the facet joints...... I don't think I could continue without them every 5 months.
My doctor is an Anesthesiologist. Many are specializing in pain management and when it comes to my spine I want someone who knows what they are going.

BTW. I have read where some have the leads removed. Word of caution these are not intended to be removed that easily.. what with scar tissue and probable infections my doctor never removes them... he would removed the battery but that's it.
So make sure the trial period works for you first. Also wear a med bracelet or RX neck chain informing you have the implants and absolutley NO MRI or diathermy.
Thanks for listening.
Florida gal

prairiegirl 10-19-2008 08:40 PM

Quote:

Originally Posted by Floridian (Post 309275)
So make sure the trial period works for you first. Also wear a med bracelet or RX neck chain informing you have the implants and absolutley NO MRI or diathermy.

Can I ask why no MRI? I don't have a stim yet, but asked my doc if I did could I still have an MRI and she siad yes. THis is important because I have MS and they will likely need to continue doing yearly MRIs. Maybe it's the make of the stim that matters?

Good reminder about the medical alert. I have one and when I get my stim I will add it.

Thanks!
Prairiegirl

Summertime 10-30-2008 09:21 AM

WOW..:eek:

After reading a lot of the replies I'm wondering if I'm doing the right thing or not..:confused: I know the SCS is not for everyone but this scares me. I have a problem with a lot scar tissue to begin with, I have for years. I have CRPS, this why they want to do the SCS.
Please keep sharing your experiences, it helps to talk about this.

How many were scared to have this implanted in them?

citygirldoll 11-17-2008 10:55 PM

I had a permanent SCS placed on Saturday, two days ago. It has been a long time in being able to get it.
I have a Boston Scientific. The SCS trial was very successful. However, last December the doctor who tried to put in the permanent SCS punctured my dura twice, causing two spinal fluid leaks, and damaged nerves down my left leg. After a week in Intensive Care I was finally able to come home in much worse shape than I was previously.
I was determined to never do that again.
I'm a science teacher and I love what I do. For the past two years I've used a scooter to be able to continue teaching. I finally decided to give it another try with a doctor that travels around the country teaching other doctors how to do SCS implants.
He was successful on the second try. I have a "hard" back because of scar tissue.
Reading about your stories frightens me but I'm determined that something has to help. I'm 49 and I love to travel, to teach, and I have 2 young granddaughters that are a delight.
I have an artificial disc at L5 - S1. However, I fell off my bike and had to get a fusion on top of the artificial disc.
Kim

paindrw 12-01-2008 04:17 PM

Quote:

Originally Posted by citygirldoll (Post 410038)
I had a permanent SCS placed on Saturday, two days ago. It has been a long time in being able to get it.
I have a Boston Scientific. The SCS trial was very successful. However, last December the doctor who tried to put in the permanent SCS punctured my dura twice, causing two spinal fluid leaks, and damaged nerves down my left leg. After a week in Intensive Care I was finally able to come home in much worse shape than I was previously.
I was determined to never do that again.
I'm a science teacher and I love what I do. For the past two years I've used a scooter to be able to continue teaching. I finally decided to give it another try with a doctor that travels around the country teaching other doctors how to do SCS implants.
He was successful on the second try. I have a "hard" back because of scar tissue.
Reading about your stories frightens me but I'm determined that something has to help. I'm 49 and I love to travel, to teach, and I have 2 young granddaughters that are a delight.
I have an artificial disc at L5 - S1. However, I fell off my bike and had to get a fusion on top of the artificial disc.
Kim

Kim,
Sorry to hear about your initial experience with the SCS implantation. Hopefully the new one is giving you some relief! Most of the time, a patient with pain will continue to have some pain issues no matter what is done. It's a challenge to find the best balance between intervention and meds and their side effects, and the pain.
Good luck!

thecrutchlesswonder 12-16-2009 07:11 AM

new member
 
hi all, im new on here but basically just looking for people to chat with! i had my trial med tronic implant done last wed.......bloody painful initially, then got seriously worse as the days went on.....severe pain in my ribs. anyway went back for planned permanent inplant on moday. surgeon very good, did x ray and said that the elecrodes had moved....so again, whilst i was awake, they opened me up again and re aligned the electrodes....re programmed them and eventually put me to sleep and completed the full implant. Back/rib pain has now gone except the obvious pain from the surgical procedure. but now i have severe pain around the generator site. This is in my belly, and i am only a petite 8 stone size 6 43 year old female! it looks like i am about 8 months pregnant!i know it is only day 3 of my implant, but should i contact my GP regarding the pain. I am on volterol, tremadol, oramorph and amoxycillin....but i cant sleep, find it very difficult and painful to move and haven't had a pooh (sorry probably too much info there!) i dont want to sound like a whimp, but i think it is just the fear of the unknown.....any help/suggestions would be much appreciated.

thank you
lynnie

Greggg 12-20-2009 10:34 AM

It's so good to hear about the SCS although I'm sorry that ya'll are having so much trouble and pain associated with it. My pain management doc keeps pushing me to get the SCS and I keep backing away. I had a REAL bad experience with my back surgery a few years ago and I don't want anyone cutting on me no matter how minimally invasive.

This thread just cemented the big NO that I gave my doc. There's nothing else that works on my pain but I'll live with that. Thanks to everyone for helping me out.

kzlrogue 01-05-2010 09:02 PM

I'm glad someone had good luck
 
Quote:

Originally Posted by DUTCH45 (Post 64235)
I had a Medtronics implanted May of 2005 and love it. After a trial implant of one week that was very successful for SOME of my neuropathic pain I elected to continue with the regular implant. What a blessing! I know it is not for everyone and certainly not for all types of chronic back pain. The success is not only determined by the type of pain, but the skill of the doctor implanting the leads and generator.

My SCS virtually eliminates my pain in the buttocks and the back of my thighs, however it does NOTHING for the pain in the lumbar region. I think I remember some doctor referring to my lumbar pain as "mechanical". Probably not nerve pain, but I just don't know.

As far as I am concerned, my SCS implant was very successful! Sorry for all the problems everyone has had with their SCS implant.

I am scheduled for the Medtronics implant the beginning of February and after reading everyone's post, I'm starting to get a little nervous. I'm glad to see that it worked for someone. I am also going to have the paddle inserted which means they are going to have to cut some bone out so I'm trying to find as much info as possible. I actually have pain throughout my entire body but the doctors said I can only chose my arms or legs. I chose my legs/lower back since that is where the pain originated from and is the worst. Can you tell me the recovery period you had? i.e. time off of work, when did you start walking, driving, etc. Any info as to what I can expect after the surgery is greatly appreciated!!

Thanks!!

vannafeelbettr 01-07-2010 11:19 AM

kzlrogue!!!
 
Quote:

Originally Posted by kzlrogue (Post 607281)
I am scheduled for the Medtronics implant the beginning of February and after reading everyone's post, I'm starting to get a little nervous. I'm glad to see that it worked for someone. I am also going to have the paddle inserted which means they are going to have to cut some bone out so I'm trying to find as much info as possible. I actually have pain throughout my entire body but the doctors said I can only chose my arms or legs. I chose my legs/lower back since that is where the pain originated from and is the worst. Can you tell me the recovery period you had? i.e. time off of work, when did you start walking, driving, etc. Any info as to what I can expect after the surgery is greatly appreciated!!

Thanks!!

I am very concerned!! I have 2 spinal cord implants..... so I can get relief in both the upper and lower extremities. Why wouldn't your doctor not suggest that for you?? The both work excellent for me!!

Also, I truly DO NOT understand why there would be any cutting of the bone!!!!! Both my implants (by St. Jude) sit nicely in the hip area of the small of my back. Just a cut, insert, and sew. I would seriously question why cutting of the bone is necessary. I've never heard of it!

Best of Luck Vanna

kzlrogue 01-07-2010 09:16 PM

Quote:

Originally Posted by vannafeelbettr (Post 607844)
I am very concerned!! I have 2 spinal cord implants..... so I can get relief in both the upper and lower extremities. Why wouldn't your doctor not suggest that for you?? The both work excellent for me!!

Also, I truly DO NOT understand why there would be any cutting of the bone!!!!! Both my implants (by St. Jude) sit nicely in the hip area of the small of my back. Just a cut, insert, and sew. I would seriously question why cutting of the bone is necessary. I've never heard of it!

Best of Luck Vanna

Hi Vanna,

The problem I have is that I have a very narrow opening around my spinal cord which means that there isn't a lot of room to place the leads let alone insert a paddle. So in order for me to have the paddle inserted, they will need to cut some bone out to make room for the paddle. Regarding my arms/neck area. The opening is even more narrow and my surgeon will NOT cut any bone there which was another reason I ruled out having the upper part being done. You are probably asking.....why would she want to even get the paddle then???? It's a question I have asked myself many times. The number one reason is to be active in my son's life. I want to be able to go to the park with him....have a snowball fight....chase him around the house. I can't do that now. It's sad when my son has to ask, "Mommy, how do you feel today? Can you play with me?" The worst is when I tell him that I can't. Or when I am restricted to my bed because the pain is so bad I literally can't get out of it, my son will come in and either lay with me or ask if he can get me anything. He shouldn't have to take care of me at age 6. WOW! Sorry about the sob story!!! Anyway, that's why they are taking a little piece of bone out. It is well worth it if I can be more active with my son. Plus, I'd like to be more active period. I'd like to try and start golfing again. I really miss that!!!

Thank you so much for concerns. I really do appreciate them. How was your recovery after the implant? I'm wondering what realistically to expect. I know what I've read and I know what my nurses/doctors say but I'd like to hear from people who have actually gone thru it. :)

vannafeelbettr 01-08-2010 01:10 PM

Quote:

Originally Posted by kzlrogue (Post 608094)
Hi Vanna,

The problem I have is that I have a very narrow opening around my spinal cord which means that there isn't a lot of room to place the leads let alone insert a paddle. So in order for me to have the paddle inserted, they will need to cut some bone out to make room for the paddle. Regarding my arms/neck area. The opening is even more narrow and my surgeon will NOT cut any bone there which was another reason I ruled out having the upper part being done. You are probably asking.....why would she want to even get the paddle then???? It's a question I have asked myself many times. The number one reason is to be active in my son's life. I want to be able to go to the park with him....have a snowball fight....chase him around the house. I can't do that now. It's sad when my son has to ask, "Mommy, how do you feel today? Can you play with me?" The worst is when I tell him that I can't. Or when I am restricted to my bed because the pain is so bad I literally can't get out of it, my son will come in and either lay with me or ask if he can get me anything. He shouldn't have to take care of me at age 6. WOW! Sorry about the sob story!!! Anyway, that's why they are taking a little piece of bone out. It is well worth it if I can be more active with my son. Plus, I'd like to be more active period. I'd like to try and start golfing again. I really miss that!!!

Thank you so much for concerns. I really do appreciate them. How was your recovery after the implant? I'm wondering what realistically to expect. I know what I've read and I know what my nurses/doctors say but I'd like to hear from people who have actually gone thru it. :)

Kz, check your pm, I left you a message ;)

abrown176 01-30-2010 04:39 PM

I had a medtronics stim placed in April09. I had to have the generator moved in Oct.09 and it is still giving me pain around that area and is protruding out. If I can not find a more comfortable place for it I think I will have to have it removed.

abrown176 02-03-2010 11:24 AM

Quote:

Originally Posted by seeker (Post 186675)
Hi ALL, Seeker here, Has anyone had to have a battery replaced on the older medtronics SCS? My wife has had hers for 3 years and is nearing the end of battery life. She has severe pain and her STS set to the MAX almost always. In addition she is on meth and fentnyl.

I will probably be getting a STS in the near future. Any comments concerning the new rechargable Medtronic's units
Thanks for any help.
my Prayers are with you all

I have the rechargable battery implanted. It is suppose to have up to 7 year battery life. I have had mine for almost a year. You will get a recharging pack. This contains a belt that has like a big flat oval piece that u place over the battery and a box kind of like the remote that is hooked to it to. You will plug up the box and when it shows it is charged u place the belt around u with the oval piece over the battery. I have to wear mine about an hour or two depending on how long u wait to charge it. I try to charge mine once a month or when the battery shows half. My battery poket is sore so the recharging is not very comfortable. If you let the battery discharge all they way I believe they said it could take up to 4-5 hours. I hope this has helped. If you have any more questions please pm me!:hug:

Rrae 02-08-2010 11:13 PM

So glad to see SCS talk!
 
I'm very thrilled that a new forum has just been created specifically for SCS and Pain Pumps. !
It's at the very top of this forum in the "Stickies", or, on the Forum main menu it is listed under "Medications".

Please go there to share your updated experiences/advice/opinions/questions ! Alot of new members are coming to the board looking for this info.

Also, there is a poll. I really want to cast my vote but I don't have my SCS in YET !!

see you there!!

sargeisme 02-09-2010 02:48 AM

Hang in there I had mine now four four weeks and its getting better every day.I do have trouble sleeping , but not due to the implant. I have the Boston Scientific and had one of the best Dr to do the work. David

staceyc 03-03-2010 02:08 PM

Hello Jonnyrocket,
I'm considering getting the SCS inplant. I have not tried the trial part yet of the SCS. I'm very concerned with my scare tissue as well. My first surgery left me with a lot of scare tissue. Its wrapped around my nerve. My doctor tells me that there is nothing they can do about it. If they were to clean the scare tissue it would come back twice as bad. I dont really want to go threw all that if my scare tissue is so bad. I have a lot of lower back pain as well as nerve pain. What do you think?


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