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-   -   a new way to describe what MS is to me (https://www.neurotalk.org/multiple-sclerosis/71769-describe-ms.html)

sassy 01-17-2009 10:10 AM

a new way to describe what MS is to me
 
“MS is a fact in my life. So is my grey hair and my sense of humor and my smile and my age and... Well, you get the idea. Yes, I have to consider the fact that I have MS when I make decisions about a huge variety of things. But it is only one 'fact' about me and the world I live in. I would be selling myself short if I put it at the top of the list or allowed my friends to limit me 'for my own good'.” From a blog about MS

http://blogs.webmd.com/living-with-m...-own-good.html

I love it! MS is simply a fact in my life, so what! And the rest of the blog talks about all the well intentined people that say to you "for your own good" blah, blah, blah!

MS is simply a fact in my life! my new mantra

Twinkletoes 01-17-2009 10:18 AM

That's good, Sassy.

I've heard people say, "It is what it is."

But "It's a fact of life" says it even better.



Unfortunately. *sigh

mom2five 01-17-2009 11:29 AM

Sassy - you are so right. It does NOT define who we are! It's just part of our journey.

I really don't think about it that much, and that's the truth. I do what I can, and don't worry about what I can't. :)

SallyC 01-17-2009 01:49 PM

Yep, part of your life's journey, or..as I like to put it...just another, GIGANTIC, bump in the road..:D

Nice sassy..:hug:

NurseNancy 01-17-2009 06:09 PM

not to go OT on you sass but how is your grandaughter?
i havn't read anything about her in a while, or is it just me.
didn't she have some kidney problem? is she ok now?

just wondering.

for me, MS is big in my life but doesn't control me. i work around it.
just like i did with the cancer. you just deal with whatever you're dealt and make the very best of it you can.

weegot5kiz 01-17-2009 11:15 PM

kind of weird in a way, its true aint much you can do about it anyway(meaning controlling if we get it or not) call it epilepsy call it RSD call it parkinsons or MS, it something we all have and ...

lala lalalalala live for today....dont worry about tomorrow hey hey ey...

thats what we have to do, it not always easy, thats for sure. I have a long way to go on mastering this at times

FaithS 01-18-2009 01:23 AM

Thanks for your perspective, Sassy.

I often say,

Quote:

MS is just 'stuff'. Everybody has their 'stuff' to deal with. MS is my 'stuff'.
~ Faith

sabimax 01-18-2009 06:18 AM

Good way to look at it sassy....hugssss
I tend to focus on what I can do, I keep trucking along doing too much at times...(cant stop working although body would love it) and deal with what I got.... whatever mine is hheehee undx crapola!!

hugsss,sarah

sassy 01-18-2009 08:25 AM

1 Attachment(s)
Quote:

Originally Posted by NurseNancy (Post 448417)
not to go OT on you sass but how is your grandaughter?
i havn't read anything about her in a while, or is it just me.
didn't she have some kidney problem? is she ok now?

just wondering.

Judy, thanks for asking. Joslyn is doing great after her surgery. She was tested about 6 weeks after the surgery with all those &*(^ tests and they showed all her plumbing was working the way it should.

She has another test in May just to double check and then she doesn't have to go there any more unless something comes up in the future, which it shouldn't.

Now, have you got an hour for me to brag about her on other things too?

She's our little princess!

weegot5kiz 01-18-2009 12:20 PM

what an adorable princess, thanks brenda

SallyC 01-18-2009 02:25 PM

Wow, that is a real Princess.:) :hug:

Did you see that, DM???:D

volada 01-20-2009 06:36 AM

it is what it is but it still sometimes sucks!
 
i'm approaching my "ms" anniversary and am way more in the acceptance mode. however, it still sometimes really blanks that i can't do what i used to do---go to political rallies, volunteer, attend parades, etc. etc.

but life is mostly good and i'm learning to do what i can with what i have!
including asking for help when i need it! on this historic week, i have had family visiting and they do not totally understand the impact of the fatigue.

Kitty 01-20-2009 09:07 AM

I've thought about this for a while. It's very thought provoking.

I suppose everyone asks themselves this question......"why did I get MS"? It can be a "why me" question or a scientific question...."what actually triggered MS in me?" I've asked both.

It's been a little over three years since I've been dx. I've seen alot of changes in my life since then. But one thing I firmly believe is that I have MS for a reason....whether to teach me something or help me teach others something. A little of both, I believe.

I choose to consider MS a different direction in my life. Something I had not banked on or considered but it's my reality now. I love a challenge and I try to find new and innovative ways to do things that I previously enjoyed but find it hard to do now. And if I help one person who is having a rough time of it.....whether they have MS or not......then to me it's all been worth it.

Some days I curse it, others I find reasons to be thankful for it. But what it all comes down to is that this is me. Take it or leave it. ;)

sassy 01-21-2009 08:43 AM

Quote:

Originally Posted by Kitty (Post 450003)
I've thought about this for a while. It's very thought provoking.

I suppose everyone asks themselves this question......"why did I get MS"? It can be a "why me" question or a scientific question...."what actually triggered MS in me?" I've asked both.

It's been a little over three years since I've been dx. I've seen alot of changes in my life since then. But one thing I firmly believe is that I have MS for a reason....whether to teach me something or help me teach others something. A little of both, I believe.

I choose to consider MS a different direction in my life. Something I had not banked on or considered but it's my reality now. I love a challenge and I try to find new and innovative ways to do things that I previously enjoyed but find it hard to do now. And if I help one person who is having a rough time of it.....whether they have MS or not......then to me it's all been worth it.

Some days I curse it, others I find reasons to be thankful for it. But what it all comes down to is that this is me. Take it or leave it. ;)

That is basically what I get from "MS is just a fact of my life". I have it and I will deal with it. Unfortunately it isn't as easy to deal with as my gray hair...Clairol but thats just the facts.


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