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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   SSDI... helpful info.. (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/108149-ssdi-helpful-info.html)

keep smilin 11-16-2009 08:56 AM

SSDI... helpful info..
 
Could anyone us RSD'ers out there .. have you heard any changes in the recongintion of RSD with SSDI.. are they reconginizing this illness still??? My case is not a wc case but I ma very close in appling and thought I read something of a lawyer saying that they are no longer honoring RSD as a true disability for entitlement... I may be all wrong, lets hope Iam..:grouphug:

Also..jaw pain anyone???? Guess I could stay here all day with the new aliments my RSD has showed up with everywhere but my newest is my jaw..nerve bed shadow and pain... so not nice...

Jimking 11-16-2009 03:11 PM

Quote:

Originally Posted by keep smilin (Post 590156)
Could anyone us RSD'ers out there .. have you heard any changes in the recongintion of RSD with SSDI.. are they reconginizing this illness still??? My case is not a wc case but I ma very close in appling and thought I read something of a lawyer saying that they are no longer honoring RSD as a true disability for entitlement... I may be all wrong, lets hope Iam..:grouphug:

Also..jaw pain anyone???? Guess I could stay here all day with the new aliments my RSD has showed up with everywhere but my newest is my jaw..nerve bed shadow and pain... so not nice...

As far as I know RSD is still a listed disability with SS. I did a google search for SS info on RSD and found just the opposite instead. I talked to my wife's lawyer the other day (my wife has RSD) and she mentioned nothing negative about SS except that the Fed has increased revenues to speed cases along, which is a very good thing. :)

keep smilin 11-16-2009 04:11 PM

thxs jimking
 
Quote:

Originally Posted by Jimking (Post 590285)
As far as I know RSD is still a listed disability with SS. I did a google search for SS info on RSD and found just the opposite instead. I talked to my wife's lawyer the other day (my wife has RSD) and she mentioned nothing negative about SS except that the Fed has increased revenues to speed cases along, which is a very good thing. :)

I appreciate your information... funny as I had heard just as you said that it is listed.. I read from a thread that someone said it has been removed.. but I agree with you in that it needs to be there and what better thought than revenues have been appropriated.. thank you! My best to your wife for a pain-less day... Iam sorry for her RSD also.:grouphug:

lisa12 06-29-2010 12:09 AM

ssdi/rsd
 
Quote:

Originally Posted by keep smilin (Post 590156)
Could anyone us RSD'ers out there .. have you heard any changes in the recongintion of RSD with SSDI.. are they reconginizing this illness still??? My case is not a wc case but I ma very close in appling and thought I read something of a lawyer saying that they are no longer honoring RSD as a true disability for entitlement... I may be all wrong, lets hope Iam..:grouphug:

Also..jaw pain anyone???? Guess I could stay here all day with the new aliments my RSD has showed up with everywhere but my newest is my jaw..nerve bed shadow and pain... so not nice...

I was diagnosed in Jan.'o5 & applied for ssdi in mid-'05 when i finally came to terms with this being a long term problem. I finally DID get approved (with the help of a lawyer) in June '09. My official diagnoses was RSD, but my Dr. also included my 25 year long lower back problem (I think he called it "failed back surgery syndrome"). Both my dr. and lawyer said that RSD WAS recognized as an "ssdi-worthy condition"(so to speak!), but who knows whether an RSD diagnosis would have been sufficient to get ssdi?!
Hope this helps. Keep trying & good luck!::grouphug::grouphug:

Kakimbo 07-01-2010 01:06 AM

ks.

I don't know of the rulings. I live in MD and was hurt on the job in DE I was just turned down because I can work as a secretary. I have not been a secretary since I was in high-school in '83. Do they even call it that anymore? The job I was working at when I got hurt was 80-100 hours on my feet. Maybe two hours of office work total. How does that compute?

Now I need to find a good SSDI attorney. I am hoping they don't make me pay up-front.
I do have to say that up to now w/c has been very good to me. (Bi-weekly benefits, meds, doctor and mileage reimbursement). Guess I should stop complaining!

Hope it works out for you. Quickly!

kim

fmichael 07-01-2010 01:31 AM

Quote:

Originally Posted by Kakimbo (Post 670561)
ks.

I don't know of the rulings. I live in MD and was hurt on the job in DE I was just turned down because I can work as a secretary. I have not been a secretary since I was in high-school in '83. Do they even call it that anymore? The job I was working at when I got hurt was 80-100 hours on my feet. Maybe two hours of office work total. How does that compute?

Now I need to find a good SSDI attorney. I am hoping they don't make me pay up-front.
I do have to say that up to now w/c has been very good to me. (Bi-weekly benefits, meds, doctor and mileage reimbursement). Guess I should stop complaining!

Hope it works out for you. Quickly!

kim

Kim -

As I indicated to you a moment ago in another thread, more important by far than a good lawyer is a good doctor, whose records and reports will support your filing. As in an ounce of prevention is worth a pound of cure.

Mike

Jimking 07-01-2010 09:39 AM

Quote:

Originally Posted by fmichael (Post 670566)
Kim -

As I indicated to you a moment ago in another thread, more important by far than a good lawyer is a good doctor, whose records and reports will support your filing. As in an ounce of prevention is worth a pound of cure.

Mike

And that's the truth. My wife's date in front of a judge is coming up. The lawyer received my wife's medical records from the doc and the lawyer is not happy because the records are "gleaming" with my wife's so called progress, when in fact she's not employable for obvious reasons. I talked to the doctor about this and she thought that because my wife has RSD it would be automatic that she receive SSDI. No way I stated. The doctor will write a letter stating that she is unable to work. The lawyer stated this may not be enough. It's akin to catch 22.

finz 07-02-2010 12:47 AM

Quote:

Originally Posted by Kakimbo (Post 670561)
ks.

I don't know of the rulings. I live in MD and was hurt on the job in DE I was just turned down because I can work as a secretary. I have not been a secretary since I was in high-school in '83. Do they even call it that anymore? The job I was working at when I got hurt was 80-100 hours on my feet. Maybe two hours of office work total. How does that compute?

Now I need to find a good SSDI attorney. I am hoping they don't make me pay up-front.
I do have to say that up to now w/c has been very good to me. (Bi-weekly benefits, meds, doctor and mileage reimbursement). Guess I should stop complaining!

Hope it works out for you. Quickly!

kim

************************************************** *

Hi Kim,

For a reputable SSDI lawyer, you will not have to pay up front....they take their fee from your backpay.

You will have to educate yourself on SSDI's expectation of what you can do for work. They are not at all concerned that your last job involved 80-100 hours a week on your feet. Their concern is if there is ANY work that you can do.....even as a telemarketer for minimum wage

cindi1965 07-02-2010 09:53 PM

During my journey with SSDI so far it's being recognized...I have one more appt before I go to the judge...

chrisandrob4ever 08-07-2012 02:43 AM

Quote:

Originally Posted by keep smilin (Post 590156)
Could anyone us RSD'ers out there .. have you heard any changes in the recongintion of RSD with SSDI.. are they reconginizing this illness still??? My case is not a wc case but I ma very close in appling and thought I read something of a lawyer saying that they are no longer honoring RSD as a true disability for entitlement... I may be all wrong, lets hope Iam..:grouphug:

Also..jaw pain anyone???? Guess I could stay here all day with the new aliments my RSD has showed up with everywhere but my newest is my jaw..nerve bed shadow and pain... so not nice...

I was entitled mine in 08 on my first try. But I had been to several drs trying to get to go back to work and everytime a dr told me no I would go to another. So as of 08 yes it was still available and I still receive it. If that is any help. Good luck.:hug:

Kimmidwife 08-07-2012 10:44 AM

I applied and had good letters from my doctors and everything and still was denied. I went in Front of a terrible judge who had made up his mind before I ever walked in the room. I found out after he denies everyone. My attorney then sent it to the appeal board and they denied me saying they agreed with the judge and did not review the evidence any further. Now I have to bring it up to the next step. I am looking for a new attorney since mine does not do the federal level.:mad: it has been very rough.

1sadhaka 08-11-2012 06:47 PM

Quote:

Originally Posted by chrisandrob4ever (Post 903848)
I was entitled mine in 08 on my first try. But I had been to several drs trying to get to go back to work and everytime a dr told me no I would go to another. So as of 08 yes it was still available and I still receive it. If that is any help. Good luck.:hug:

I just received my second denial. My doctors all say in writing that I cannot work in any job. But SSD does not appear to pay attention to this as they will not grant. Now I have to figure out how to find the best attorney for a hearing. I believe that all the political and financial pressure is impacting negatively people like myself who are truly disabled from this disease.

I am open to suggestions or advice! Thanks!

birchlake 08-11-2012 08:51 PM

Many, but not all may know that there is a forum dedicated to Social Security Disability.

Here is the link. Lots of helpful threads on there...........

http://neurotalk.psychcentral.com/forum28.html

1sadhaka 08-11-2012 10:50 PM

[QUOTE=birchlake;905087]Many, but not all may know that there

Thanks so much. Just spent time on that link. Very good info. Would love to find some dialogue directly involving RSD/CRPS and ssdi -
Appreciate your response to my post!

LIT LOVE 08-12-2012 01:38 AM

Read the sticky in the SSD forum about "Don't start your claim unprepared."

This is the SS ruling on RSD:
http://www.crpsadvisory.com/crpsa_ss...l#.UCdNM3t5mc0

RSD is not a disorder that automatically qualifies claimants for SSD benefits. But, it is possible to successfully prove you qualify if you understand the process which is VERY complex.

Also consider using a non attorney SSDI representative (they are often former SS employees) since they often do more hands on work and will often do more earlier in the process.

Buy or borrow a copy of a NOLO guide to SSD at your local library.

AintSoBad 08-12-2012 02:26 PM

This may seem unbelieably lucky to many of ya'll. Since I was self-employed, I bought my own disability Ins. (From btw, Northwestern Mutual, the best!), As my income increased, my salesman, added on. And, one of the policies is called SS replacement. They always took my doctors word. And, have been paying me for well, since the early, mid 80's, What the SS replacement does, is, if SS doesn't pay me, they DO! So, I get a notice a year or so ago, that they're going to apply for SS FOR ME! OK, then I'll be able to get medicare, and buy a rider, rather than pay the just about 800/mos. as current.

So, in PA, you're automatically flagged the first two times. NO PAY. So, the third time comes up, and I realize, it's not in the SS building a half mile away but in a neighborhood that I know nothing about and early in the AM, (My worst time). (Also, I was assaulted recently, and the humerus on my left arm is wrecked, and I have bi-lateral TOS already).
I'm a amess, I have a TBI and several discs also. RSD is full body.

A lawyer calls me that AM, I could hardly sleep, She was kind, flying in from Boston, to Baltimore, then driving up to Philly. (because she hates Philly's airport).

I raised a stink. I told her that I specificallly asked for an afternoon apt. (which i did), and can she re arrange it.
After another call, she gets back to me.

Here's what you're not gonna believe!

THE JUDGE SAYS, WE'RE JUST GONNA GIVE IT TO HIM! (ALL THE BENEFITS)..
I cried.
Wow!

Week later, because we had waited so long to apply, I get a check in the mail for north of 45 thousand!
And, my income just went up about a thousand a mos.!
(I havn't done the math yet).

But yes.
Sometimes, good things happen, just about when we feel like dyin'.

That's just My Story......

Hope yours goes well!

(OH, btw, my Ins Co paid ALL attorneys fees!)

I'll be glad to relate this companies name to anyone who wants it (the law firm) out of somewhere west of me...... FAR out of state! Everything was done by mail and phone!


Pete


asb


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