The neuropathy is in my tongue now.
 

For the past few weeks the neuropathy has spread into my ears and glands along my jaw. It hurts, throbs and is reactivating my neck and shoulders which I was hoping were going to calm down.
This morning I took a sip of water and it was strongly carbonated- but it wasn't. Every time I try to drink today anything besides a very warm beverage, my tongue tingles and feels just like I'm drinking club soda. I am so tired of this. What now? I called my neuro office and they said I need to come in Monday. I am so sick of this.

Please refresh my memory here.... did you have a brain MRI, to look for MS?

The tongue and other structures of the face are enervated by cranial nerves. They are not part of the peripheral nervous system.

I looked up tingling tongue for you, and it appears to be a serious sign. If you develop any weakness, on one side of the body, an inability to communicate, head pain, vision loss, then go directly to the ER. You can search further if you want.

There are less ominous causes, such as Candida infection, low B12, eating too hot of a food or drink which may temporarily burn the tongue, or some spicey food recently. Some people allergic to seafood may have tongue sensations as part of the allergic response. Poisoning by heavy metals should be investigated too.

So if you develop any further symptoms, get checked out at an ER.

actually, cranial nerves are part of the PNS....all except cranial nerve #2-which affects the eyes (hence the eye issues in MS):

http://emedicine.medscape.com/article/1948687-overview

I also get head symptoms-tongue, face, etc. They come and go like the rest of my body parts.

The tongue tingling is mentioned as part of brain lesions --as a symptom.

Tumors, stroke etc., MS... all CNS causation. It is best to be aware of that... so you can get help ASAP if it worsens etc.

Oh I'm sure MS can cause the issues also, I'm just saying PN can also cause it. It was one of my symptoms, and my neuro confirmed for me that it can be part of PN.

I definitely agree that an MRI is important no matter to rule out MS.

Also, many of the cranial nerves go thru the cavernous sinuses
in the skull...these also carry blood vessels. This can get very complex, and I don't know all the details, about it.

But infections can penetrate to these cavities (they are not the same as the sinuses we are more familiar with). The infections can arise on the face where certain areas drain in that direction.
(often called the "triangle of death")

http://en.wikipedia.org/wiki/Cranial_nerves

http://en.wikipedia.org/wiki/Cavernous_sinus

There was a very serious Mystery Diagnosis involving this special sinus area... involving the eye.

Hint== the speed with which you got an appointment with a neuro is proportional to the severity of the symptom you reported.

Keep that in mind.

Maybe I should tell the neuro appt. booking dept. that my tongue is tingling? :rolleyes: 5 mths since referral and still waiting.

I had a brain MRI 6 months ago. Its not an allergy, spicy food or low B12 and I had my metals tested. Im very upset. The pain is concentrated more in my face sides of jaw and ears than ever. I took 1/2 oxy and 1/2 valium and it took the edge off and I have to get through tonight and the weekend.

Makes me really wonder if I should go with the mad scientist lyme doctors year of antibiotics.

I hope. Its just so weird how this is spreading.

Great idea. And then once you get in you can say "uh, I accidentally bit my tongue, that symptom is resolved now but I do have these others…"

My first neuro took several weeks to get in, all the others were 3-4 months and I was having terrible symptoms that landed me in the ER. I took the earliest available neuro and he turned out to be awful.

7 months ago had brain and spine MRI and spinal tap
 

They didn't detect MS then, but I understand sometimes it takes time to show up. I am scared and I am going to go meditate and pray but first I will watch Netflix. Thanks for the thoughts. Y'all are awesome peeps.

Netflix will help.

I'm so sorry. All this stuff is terrible, but it makes it even more difficult when you can even have a dang cold beverage!

I have tingling, twitching and burning in the sides of my face by my ears along cheeks all the way toy mouth and front pArt of my tongue. Lately there are times where I feel intense pressure squeezing the sides of my face together. If it makes u feel better I have had a head and neck mri. Dr says no ms only herniated disc in neck.

Hey canagirl,

You refer to your neck issue of the disk as "only" a hernieated disk, but that is in my opinion a pretty big deal. I had surgery on a disk in 2008 and it was anything but "only a disk". It completely devastated my life! I was in constant pain and could not dress myself, sleep, walk, the list goes on and on. I am assuming there must be varying degrees of severity among each dx. In my case it was severe! I just do not want you to disregard that dx. It could be causing you major issues. I am no expert! I'm just referring to my personal experience. Maybe yours is mild and not compressing a nerve? I have read several of your posts and I am so so sorry for all your trouble. I'm praying you get relief soon.

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Btw, I was considering acupuncture but given your experience, I am very reluctant to try that now. Do you think most of your issues are a result of a botched acu. session?

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I've heard a herniated disc can cause issues but my doc says that there is no change in signal intensity so no cord compression. I have in my lumbar too. Doc says that if he took an MRI of the entire population over half would have herniated discs. I too thought that this must be my issue but apparently not.
I had neurological issues before acupuncture but NO pAIn. I am certain the acupuncture caused this pain. No doubt about it

I have this too. Also herniated disks between 5-6-7. I think I have accepted that the disks are not the problem. I don't see how it can cause damage to the nerve fibers all over my entire body.

One of my neuros seems confident that I have sjogrens so I am also on a sjogrens forum. I asked about the pressure/pain on the sides of my face and ears and many people got back to me saying that it is the attack on the parotid gland and saying it is "normal" for sjogrens. Also, many people got back to me saying that their onset was acute and rapid before it settled down and now they can cope, but have flares.