Inversion or other alternative treatments
 

Hi everyone,
Just curious if anyone has tried some alternative treatments for MG.
Like an inversion table, or massage therapy, or red light therapy on the
muscle currently fatigued, acupuncture, etc...
Or even any herbal and supplement creations. (I did just read that vitamin D thread). Anything other than what modern medicine says, or what the pharmaceutical companies are selling. We all know they just create customers not cures!
Hope everyone has a great day!
Sheri

Here is a Dr./Prof. who is using Vit D3 only to treat MS, and other autoimmune diseases. The video is long, but it is well worth viewing in its entirety. In Portuguese, but close captioned in English(bottom of screen)...Coimbra, vitamina D e patologie autoimmuni - YouTube

Additional item...
 

Another item of interest... Myasthenia Gravis remission with 1, IU vitamin D daily – one person Jan 216 | Vitamin D Wiki

Thanks Patrick! I will definitely read and watch.

Omg, I can't even breathe laying down! Thinking about trying to breathe inverted makes me crazy!

Hi, Sheri. I can appreciate wanting to find something, anything that will help MG improve, please take any information out there with some healthy skepticism.

There are many sensible ways to help MG. Get enough sleep, eat healthy foods, take sensible supplements, reduce stress (because it shortens telomeres, thereby promoting aging), and so many other sensible ways to keep the immune system happy.

Yes, vitamin D is essential. Newer studies do show that it might be the egg, not the chicken and not only a coincidental finding. It used to only be associated with lupus. Now they're realizing how essential it is to health. But it isn't the end all be all of autoimmune diseases, either.

There's also Huperzine A. But it can make MG worse, depending upon what other treatments someone is on. We should inform all of or physicians about anything we take. Nothing is benign and can interact with other drugs or foods that someone digests.

Anyone else have any input on the topic?

Annie

Thanks Annie, you are so right. I believe everything should be treated with a hefty dose of skepticism, especially 'regular' western medicine! But for me that was always the easiest because of insurance. Now that I really don't have insurance, I have been trying to figure out if there are different paths to try.

There was someone once on a forum that I had found when first diagnosed that was going to try one of those machines that women used in the 60's to 'jiggle' fat away. You know the ones with the big band like thing that went around their bottoms? That may sound crazy, but there were a couple people that she had found swore it helped. One man's trash is another's treasure.

I hope everyone has a great day!!!

Don't mistake what I'm saying. I believe that there are alternative, complementary, Eastern, Ayurvedic medicine, etc. that do help patients. But the west is so far behind what is done in other countries. Therefore it can be dangerous to go down that path without professionals who know what they are doing.

There needs to be a whole body approach. What might work for one person might not for another—trash or not.

For instance, massage feels great. It can get any kinks out. But it also can be the same as exercising muscles and might not be good for some people with MG.

Ayurvedic Medicine - Dr. Weil's Wellness Therapies

https://www.deepakchopra.com/

One thing I don't like about Deepak Chopra is his rather arrogant philosophy that all diseases are in one's mind. As if we're all to blame for our health issues.

People like him and Dr. Weil don't specifically address MG. They do address autoimmune diseases in general. And there are many things one can do to improve health.

Some people have undiagnosed allergies, for example. That is a "load" on the immune system. When they aren't addressed, they can become worse over time. The immune system really is like the straw that broke the camel's back. One too many assaults on it and it breaks down.

There is a mind-body connection, but many alternative medicine practitioners use that as an excuse to blame people for not healing. Poppycock! Sure, it's important to improve the mind, soul, and body. But that takes time that many people don't have.

It is important to look at how one sees themselves and how they react to others as well. The BEST person I have ever found to address self and how to improve it is Matt Kahn. Give him a chance. His "teachings" are heart-centered and truly can make someone feel better about themselves and others. He has several videos to watch. I love his humor and common sense approach.

Matt Kahn & Julie Dittmar | Facebook
True Divine Nature, Matt Kahn and Julie Dittmar, Whatever Arises, Love That

Being physical is a challenge for those with MG. Thinking in small terms helps. Biking for one minute or using thera-bands or getting some fresh air . . . anything we can do will help.

There are those who believe in the ley lines of earth and that some areas on earth are more healing than others, have better vibration than others. Florida is one such area.

This topic is nearly endless. I often don't have energy to type it all (my trigger finger/thumb is back, which doesn't help). I have been interested in these topics for decades, ever since I read Mahatma Ghandi's autobiography when I was ten. It's good to keep an open mind (and a skeptical one) and explore possibilities.

What is crazy? Thinking we can fly? Levitate? Make computers? Cure cancer? It's those "crazy" thoughts that push us forward and help us to evolve. Bring them on!

Just don't allow any of them to make you worse.

:hug:
Annie

An open mind is a terrible thing to waste...
 

Dr. Coimbra is a superlative practitioner of medicine in the western tradition. An MD, Phd... In the months since I have discovered the work of Dr. Coimbra, I have yet to come across credible assertions that he is a quack, or that his protocol is ineffective, quite the contrary... My take-a-way from all that I have read, Coimbra, et al, is that Vit. D3 is, at least, a VERY important adjunct to standard treatments for autoimmune diseases, and possibly, at very high doses a monotherapy capable of producing outcomes that exceed those of standard therapies. I suggest that all inform themselves as to the safety, and efficacy of Vit. D3 in treating AI diseases. I hope all realize that their physicians must be consulted/informed before making any additions/adjustments to their treatments... patrick

Patrick, I don't believe anyone here is denying that vitamin D is essential for good health. Mrs. D addressed that quite thoroughly in response to your vitamin D thread.

Annie

Yes, cures rickets, for sure...

Hi guys,

After trying multiple drugs and over 70 plus PlasmaPherisis, RITUXAN this coming September I'm probably going to be undergoing a STEM CELL transplant... they've done 8 patients so far with great success, no more meds nor need for PlasmaPherisis!!!!😂😂😂

I just have to talk myself into it... they're are risks but I think they're well worth it!!!

Certainly wish you the very best, which ever way you decide... Will your insurance pay for a stem cell transplant for MG...? .......p

I'm Canadian YES it's covered under our Government med plan...

That is a good thing!!

I've tried a lot. One tends to do that when desperate enough.
However, only prednisone, ivig and bipap help me survive the day.

I say survive because I still struggle every day.

I'm willing to chance , I'm to young to keep taking Imuran for a undetermined amount of time ... I say it's more dangerous to stay on Imuran than doing a Stem Cell our hospital has 8 patients done with 100% success rate, they use your own stems so the risks are lessened by a WHOLE lot.

Sometimes you do not have a chance.
I was 19 when I was started on prednisone, imuran etc. Tried cellcept, mtx and many more. I am not even 30 and thanks to my longterm prednisone us I have other health problems too. Tbh, I'd rather face longterm imuran risks than what I am facing now.

Snoel, I don't live with MG but immunology and cell biology are among my interests.

Out of curiosity, which kind of stem cells are being considered for you - there are many different kinds of stem cells, all with different biological properties?

Listen I'm no doctor....long story short is that they medicate me to over produce STEM CELLS and once they have reached there goal they collect them same way as PlasmaPherisis same machine bit takes much longer 6 to 8h once done they freeze them...

Now the tough part CHEMOTHERAPY start's to KILL your immune system! this can vary for the time length of treatment, again once they reach a certain point they STOP the chemo treatment then reinfuse the stems cells they had earlier collected from you and restart your immune system or reboots it to a fresh start... Meaning having to re do all your vaccines bla bla bla.

All the above all done in stages and I'm sure I'm missing out on some details but it's an overview, like I said I'm no doctor but if. I do go ahead with it I'll try to fill you guys in with the progress and bump's in the road😉

Thanks Snoel.

This sounds like an approach which a well-known Canadian team has been working on for some time.

There is a slightly technical account of their work here Myasthenia Gravis Treated With Autologous Hematopoietic Stem Cell Transplantation. - PubMed - NCBI.

It looks very promising and I hope that it will work well for you.

That's exactly it my Hospital and doctors, Atkins & Pringle we're the only Canadian Hospital that perform Stem Cells up to this day. It's a great hospital, doctors and staff I'm very fortunate to have such a up to date institute in my back yard!

Very interesting. Hope they are successful.