Exhausted.....just exhausted!
 

What is it
 

Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie

HI Billie!
 

Hi Billie! How are you today? I have Myasthenia Gravis - a disease that causes terrible fatigue.:(

IV IG is a drug that is given to maintain my immune system - in my case help suppress it - via IV as my veins are SHOT due to all the meds I take.

If you are interested, my entire story regarding MG is @ www.mgsouthtexas.org - it is long, but explains everything in detail!:D

THank you for the prayers! They mean so much to me!

Bg hugs!
Erin:D

exhausted.....just exhausted!
 

Erin,
I am so sorry to hear you are feeling so bad. I'm glad you're going in next week for your treatment so you can enjoy your trip to see your neice. I do believe in the power of prayer and will definitely be praying for you.
Kendra:hug:

Sorry you are having a down time Erin. I will remember you in prayer.

I will keep you in my prayers Erin. I hope the IVIG gives you that extra boost that you need so you can enjoy your niece.

Erin,
As always, you have got my prayers, my friend! Take care and keep in touch.
Huge Hugs to You,
Simon

oh sweety
 

I'm so sorry you're felling weak and exhausted. I will say a prayer for you and I hope you feel better soon.

Enjoy your Lillie! That is if I don't talk to you before then.

Have a good night.

Kristie

Hey Erin
 

I hope that the IViG gives you the strength that you so need at this time, and I hope that your trip to see your niece goes awesome! Good luck with everything and I WILL pray for you!

Btw, I clicked on the link that put up for Billie....Your story is so moving, Erin! I mean I knew pieces of it from your posts here on the site, but had never actually read it in chronological order...What were those spots that they had discovered on your lungs?

Nicky

Erin, I hope you will feel 100% better after IVIG and will have a fun and safe trip.

Annie

Hey Erin!

Big 'DITTO' to all of the other responses. I hope it will be much cooler for your New York visit. It is usually lovely there that time of year.

Sue

Hi Nicky!
 

Hi Sue!
 

Hi Kendra!
 

Thank you so much! :hug:
I really appreciate the prayer!:D

I am sooooo excited to see Lilli! We have been speaking every day, but it just isn't the same! I am going to spoil that little girl rotten!

Love,
Erin:hug:

Hi JCPA!
 

Thank you so much! How are YOU feeling? Are YOU OK?

I'm actually excited about the IV IG - it always helps so much! That way I'll be in "peak" position to spoil my little princess!:D

We are going to have sooooo much fun and it will be so nice and cool there!

love,
Erin:hug:

Hi JCPA!
 

Thank you so much! How are YOU feeling? Are YOU OK?

I'm actually excited about the IV IG - it always helps so much! That way I'll be in "peak" position to spoil my little princess!:D

We are going to have sooooo much fun and it will be so nice and cool there!

love,
Erin:hug:

Hi Shari!
 

Hi Simon!
 

Hey hon! Looks like we'll both be getting our "Go-go" juice @ the same time!:D

Here's hoping it works!

Big hugs and prayers to you!

Love,
Erin:hug:

Hi Kristie!
 

Hey sweetie! How are you? Any news?

I'm going to go CRAZY spoiling her! I've found the perfect b & b for us to stay @ while I'm there, cuz they keep the house hot - anything above 69 is too hot for me now - LOL!

My aunt is flying with me as well. I wish I could take Dr. I with me, but nope! Shucks!:D

I go to the hosp tomorrow for more lab work - hate that but it will get better!

Love,
Erin:D

Hi Annie!
 

Thank you so much! You really are a wealth of knowledge for the rest of us!:hug:

I am so ready to see my little girl! She is my best medicine - bar none!

Love,
Erin:hug:

Hi Erin
 

I hope the magic potion works!

Have a fab time visiting your neice.

Love
Rach

You know that you are always in my prayers Erin. Glad that you are having the IVIG can get moving again. =)

Hey Erin,
I was worried when your facebook said you were headed back to the hospital, but now I'm glad it's for IVIG. I asked my Mom (who has a direct line to the man upstairs) to keep you in her prayers too and she told me she's been praying for you since you were in hospital last time!! Good luck and enjoy your niece when you go away! I'm sure you'll feel great by then.
All the best,
~Kathy

Hi Rach!
 

Thank you honey! You just keep up with that GOOD news and we'll all feel better!

Love,
Erin:hug:

Hi Rezmommy!
 

THank you for the prayers! I KNOW that God has a plan for my life and I just need to wait and see what it is!

How are you feeling?

LOve,
Erin:hug:

Hey Kathy!
 

Nope! Just for IV IG! Then I should be ready to take on the world! LOL! We've even found a great little b & b! That way I'll have Lilli all to myself! LOL!

Thank you for the prayers! Tell your mom thanks as well!

How are YOU doing?

Love,
Erin:D

Cleaning
 

Well my peripheral vision has improved since my last field of vision test!:) Not that I had noticed.:confused: But my double vision (constantly) is an astigmatism. So glasses should fix it. Oh and my vision is 20/20 again!:):p it had gotten to 20/40 in my left eye with the optic neuritis.

I saw the Neuro-Ophthalmologist yesterday, that's how I know all of that. He says that my eye pain could be one of two things. It's lingering since my last bout of ON or it is atypical migraines. He wants to start by upping my Gabapentin. Then if that doesn't work he wants to try a certain kind of migraine medicine.

Okay my MS Neuro wants me to switch my MS care to the same hospital that takes care of all of my other specialists (other than cardiologist) so that my care can be more organized. She said that right now, today she thinks my MS is being well cared for and is stabilized. But she said that if anything changed with that she wouldn't know what to do because of how it would effect if I have Pompe or Periodic Paralysis or both.

I told her about the first Pompe test and she couldn't remember enough about the disease to know if it fits (but agreed that whether it fits or not if the tests show it then I have it) but she also said that she still thinks periodic paralysis fits my weak spells. She says it's the only thing that does. And being that steroids are contraindicated in Periodic Paralysis and Pompe she is just to scared to change anything in my care and wants me to see someone who can consult with my other doctors. I agree with her and the next time I see my Neuro-Muscular Neurologist I will ask about getting that switched (that's what she suggested to do). I think I will also see next time I see my cardiologist about switching that care there too. It would be nice to have everything other than my PC in one building. But my PC is closer and amazing there is NO WAY I'm switching to another PC.

They just did the other Pompe blood test yesterday, so about three to four weeks is how long they say the results should take. For me that usually means it should take about eight weeks. I can't wait that long to find out so I hope they have the results next time I see my Neuro-Muscular Neurologist. That's in about three weeks.

Okay, whew that was a lot of medical updates. :rolleyes: And all from yesterday.

So the cleaning, we are having a BBQ here on the 19th and I want my house CLEAN by then. I have a long way to go. I also want to do a cooking party sometime soon. That way I can get several ladies from around here, plan a menu, combine money, do the shopping and cook all day one day. Then we would all have lots of dinners in the freezer. I know there are a lot of women in the area who work and find that getting dinner on the table is a hassle, and for me, there are a lot of nights I'm just too weak to cook. Maybe if we could do one of these parties once a month all of our families would eat better.:D

Oh and I'm trying to get some of my family and one of my neighbors to get together for a Halloween party. Instead of a pot-luck style each family would pitch in about $20 and I would make all the food. I have so many cool Halloween themed dishes I want to make for the party! Including a very cool cake. Of course you had to know that was coming.;)

Okay I really have to go and get David to take his nap now.:eek: I can't wait to hear how much fun you have with your Lillie!

Sorry for the book, you asked to be updated. lol

Have a great day!

Kristie:hug: