My son Jawad Pasha
 

I am located at Pakistan.Jawad Pasha my son is now 27 years old.He was injured on 13th Septembre 2004 in perhaps a road accident. He is perhaps now world's best manitained and much recovered Persistent Vegetative State or minimally conscious state patient. Details and discussion about his codition can be read after searching about him.We still could not find a way to regain motor function but he is with good health and takes notice of any move. Smiles and laughs but no way to communicate.He has a long history of epilopsy/seizure but we have successfully controled the seizure/fits by using the simple technic of diverting the attention of the patient to somewhere else.

http://i489.photobucket.com/albums/r...CliffsEdge.jpg

Hello Anwer, and welcome to NeuroTalk!

I am so very sorry about what happened to Jawad. I hope that eventually he has at least some return of function.

Below, I have posted some links to forums where you can get support.

http://neurotalk.psychcentral.com/forum92.html

http://neurotalk.psychcentral.com/forum56.html

Thank you.Actually I am not good in english and don't know much about computer so often i have to get aid of cut-paste to write.This is a great history about brain injury.We have very less facilities about brain injury so we have often to think and solve our problems ourselves. I am new here so not allowed to post links yet so unable to go in details but our experince regarding dealing with a very severe brain injury could help others. I am trying to help others here and thanks god there is some benifet to them.

The Lord Jesus christ is your Advocate,,,Keep praying and stay in the faith,,,Jeusus is the great physcian,,,,,,,,,,,,pm me if you need me,,,,,,,,,bobber

Hi Anwer Pasha

I'm glad you found NT

It's a wonderful place, with caring and helping people. There's so much here to research you can get lost so easy. Just ask us if you need to know how to find something, or have specific questions or concerns you want addressed, we will try.

I'm going to start a new thread about an embromic stem cell recipiant I met. She was remarkable. Here is a link I want to share with you and NT

http://www.youtube.com/watch?v=0HZsIJJA0hY

You certainly have a lot of will for your son. He's so lucky to have his family to care for him.

I so sorry about your son. How lucky he is that he has you to advocate for him and search for solutions. Best wishes to you both. :hug:

Welcome to the NeuroTalk Forum. Although I am sorry for what has happened to your son, I am glad you found us. I have taken care of many clients in the condition of your son~and have also helped a cousin stabilize after a coma-like state. It is usually such slow, slow progress to watch. I also think your son is very lucky to have you to watch over him.

Thanks to you all. It is a story like a movy.If someone of you can search and read about us.We are hopefull and Jawad Pasha is improving. Due to lack of knoweldge and facilities we are yet little slow but the doctors who have checked him in begining are surprised. It is perhaps less than two years to my first visit to a web site so I could not get any help and sorry to say that there is very less for PVS or MCS on web sites to how to deal.
I need to know more and want to tell more

My son Jawad Pasha
 

It is now 6th year.Jawad Pasha is still slowly recovering.He is without motor function even no contol on eyeballs but we tried our best to keep him heathy , fit and hopefull.Thanks God that he is healthy and no medicines since last many years exept a tablet of Apival at sleeping time in night.The other great success is to get rid of Seizures / Fits. In my view in the case of head trauma the patients who become PVS or MCS are basically effected with loss of motor function and consciousness is not much effected. I am also connected with a 17 year old young boy Muhammad Hussain of Pishin Quetta Pakistan who is a PVS since last one year and found him now recovering after using simple ways adopted by us. I have an advise for all caregivers of PVS and MCS patients that turning them after 2-3 hours for avoiding bedsores is not sufficient.A slight movement of arms,legs and body after each 20-30 minutes is necessary to keep blood moving. I found this point after four and a half year but adopting it is giving benifets.
Sorry for my poor English.

Praise the Lord
May healing continue for your family,,God is good

I just want to tell about our routine with jawad Pasha. This is all self planned and we need some guidance but could not get that exept once when a team of university of Peritoria (S.A) came Pakistan to help 2005 earth quake victims.
Jawad Pasha is very healthy and smart till now.He is with good moral smiles all the time and laughs frequently on every joke and looking any thing funny.We have very good routine of his exercise and movement. He is fully conscious now and there is no doubt about it.I must have to tell about routine.In morning he daily goes to hospital sitting in a car about 8-10 k.M.away and recieve a little physiotherapy. After coming back and a little rest a physiotherapy for more than one hour with help of a physiotherapist and two attendents and than takes a sleep.In evening again a physiotherapist gives him a hour treat. mean while he is kept standing 3 times a day for 20 or little less minutes,In night he daily goes out for a ride about one hour or more on a car and before sleeping we do try him some little exersise with me and an attendent like standing him on his own feet with our help and bending front ,sides and back and a little dancing type and than sitting standing 15-20 times.We try now from last 6 months to move his legs arms and head a little after 30-40 minutes even if he is sleeping. He is almost without any medicine exept a 500 mg Epival at sleeping time in night. His fits/Seizure has now been almost finished and no fever or chest infection since last one year. He is feeded by a tube but we use 80% home made feed.

Wow, Anwer, that's quite a routine! It sounds like your dear son is benefitting from everything you could possibly do to help him. Glad to know he is improving. :)

That's a pretty intense schedule. You're taking excellent care of Jawad.

I recently met a stem cell receiptent. She'd been involved in a motorcycle accident. She left the US and came to India, for two months. She's walking now and her TBI seemed to be better, she said. She was amazing.

Thank you for sharing your story with us. I hope to see you here more. :hug:

You have not read the story.This is a great struggle. You can read it at http://www.paklinks.com/gs/all-views...ml#post6414934

You wil have to go on page 1

Thanks for the link. I read it before I posted. Your an amazing mother. :hug:

Your son's story is amazing. It's so good of you to help the other young man too. God bless you. :hug:

I am a father. Thank you.

Whoops. :o

Another good news.
 

I am also supervising another young boy who was a PVS till last year. Now he gas started talking by repeating words, you can read more at
Persistent Vegetative State at Pasheen(Quetta)

G therapy
 

hi

this maybe of some use
Positive benefits include improvements in motor and cognitive functions, speech, and behavior.

http://www.g-therapy.org/

best wishes

My son Jawad Pasha
 

I just want to share an amazing news. Jawad Pasha is revering but he is slow. I have told about another boy Muhammad Hussain of Pishin.He has recovered too much.He gas started some movements and talking by repeating words. His feeding tube has also been removed and now he is feeded by mouth.

we are so thankful to hear this good news Anwer

Wow ! ! !
 

:Good-Post:

That's great ! ! ! ! !

It is amazing what you're doing.

Are you documenting your progress in a scientific manner, with dates and notes preserving your efforts and rewards.

Keep up the hard work. I know it's a labor of love for your son and it's beautiful.

http://www.paklinks.com/gs/all-views...wad-pasha.html
and
http://www.facebook.com/people/Jawad...stan/532559895
And another thing for discussion
Seizure/Fits may be a way of correction.

http://dl10.glitter-graphics.net/pub...nnla3zt986.gif

Happy New Year

Yes, another year to rejoice being on earth.

You are a very strong person. I do often think of the love you have for your son and family. If only an ounce of what you have could be felt by everyone. You are persistent and dedicated.

Never give up! :)

Yesterday I wrote
Seizure/Fits may be a way of correction.
This is some thing very important to be discussed in the issue of Persistent Vegetative State or minimally conscious state.(May be related to other brain injury issues).
I didn't find any treatment anywhere for these patients.
Good care/treatment about their general health is available.
How their seizure are treated when they are not often even traced in EEG.
This may be the only way of correction of their brain disorders.
Tell me something if anyone knew about this.(In easy English)

Wow, Anwer... so much sorrow and loss in your family. Yet you are like the cream that rises to the top. God bless you and your dear son. :hug: I hope you are able to find the information you seek.

Thank youhttp://neurotalk.psychcentral.com/images/smiliesb/icon_wink.gif

:winky::winky:

:I am here after five years almost , It is long time , My son is little better , Now eating by mouth but liquid is still difficult so tube is also under use . More healthy and more response . Smile , Laughs and becomes angry some time . still no motor function ,command . Now we know that most PVS and MCS are wise and aware but can not tell . Jawad is unfolding the mystery of PVS .

Many year more passed , My partner in this struggle , the mother of Jawad Pasha passed away two months ago , Jawad is little better but still no way to find some way for his motor function . It is very sad to see a man wise and conscious without any communication .https://pbs.twimg.com/media/CbcjoTJW0AAXp-l.jpg:thumb
He still smiles

Hello Anwer,

It has been a long time.

I'm very sorry to read this news. My condolences go out to you and to your son at this sad and difficult time.

Perhaps I told you earlier about a very big very big seizure/Fits continued for hours many years ago , which changed actually equaled the temperature of left and right sides of his body , His left side was stiff I mean hard and right was almost like paralyzed ,
Three days ago same big seizure attack occurred , I was expecting some seizure attack since few days because he was more responsive from last many days and it often happened that after showing some improvement a small seizure attack happens and down him .
But this attack was very big and continued for hours even after medication at hospital and a sleep in result of medicine it continued again after hours of sleep , Slow fits type movement continued more than 24 hours . The result which I am feeling that stiffness/hardness of left side has been finished and the both sides are becoming equal . More visibility will take weeks because like last time , these big fits destroyed his all muscle system and recovery will take may days .
It is for record .
Thank you for attention . Looking for some advice .

I so sorry about your son. :( Best wishes to you both.

May You and Your Son Feel Loved and Supported!
 

Dear Anwer Pasha,

You show great Love, devotion, courage and strength. :)

I am sorry for the loss of your wife.:(

I am also sorry your son has had such severe challenges.:(

Yet, his story is amazing. Your Love for him is amazing!:D

If only the world had loved ones so willing to advocate and to fight along with those seriously affected by any of life's many challenges.

Thank you for sharing your family's story with us.
Thank you for being You, quite an admirable role model for us all.:hug:

May you and your son feel Love surrounding and supporting you at all times.

:grouphug:

With Love and Admiration,
DejaVu