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Port is IN!!!!
Hi guys! Awoke yesteray to my hema/onc telling me that myl line was being placed that day........surprised me but I have been waiting. It took about 2 hours and I was so scared that they had to heavily sedate me, but all is well!
I am on my 3rd day of IV IG and already feel better - my strength is returning - YAY! I will also have a shunt placed in my arm soon, that way I get get either IV IG or the plasma exchange monthly....... Good things are coming.......... Hope you are all feeling strong and happy! Love, ERin:D |
Wonderful news! Things are looking up!!
Sue |
Erin
So glad to hear from you! You have been in my thoughts always ! I am so happy you are feeling stronger from the IVIG. YAY is right ! |
Hi Erin
congratulations on getting the port put in! You've waited long enough.
Glad the magic juice is working, long may it continue. Love Rach xx |
Port is IN!!!!
Hey Erin,
Great news!!! I'm sure you're glad that is behind you and I'm so glad you're already feeling like you have more energy! Kendra |
Congratulations, Erin, you well deserved these improvements!
I surely would'nt blow your happyness but I hope you've been given clear indications on how to avoid infections as these ports and permanent shunts are open doors to our internal system and infections could be severe… Maurice. |
That's good news, Erin. I hope it really helps.
Please be careful with the shunt. In particular, if they have to change it out. I'm not saying this to scare you, okay? When my Dad had his replaced, he died three days later of what we believe was a clot that broke off during the changing of it (cardiac arrest). He had one for dialysis. So make sure they are very careful about heparin and all that and infection precautions. It sounds like your docs are good at all that though. Annie |
Hope your well again today Erin, just thinking of you!
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That is good news Erin!! Now you can work on getting your energy and strength back. :)
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Erin,
Hope all is going well with you! Hugs galore! Simon |
Feel better soon Erin. I can tell from your posts that you are a kind and very caring person!
:Wave-Hello: |
OK Erin - time to turn that corner. Just keep getting stonger and stronger and remember to save some strength for the next day, then the next......
We loves ya, baby! |
Hi Erin,
glad you got your port, and glad the ivig is making you feel good!!!! keep taking care Kate |
Hi Erin,
I'm glad that you got your port in and that the IViG is going so well! You'll have lots of strength when you go to visit your niece, and you'll have a great time! :hug:Nicky |
Thank you ~ all of you!
THank you so much for the support! It is the reason I love this site so much!:grouphug:
I just love my go-go juice! Amazing stuff! I met this really sweet lady who has been suffering with MG for 27 years! 27 years! Can you imagine?:( She had the port in her neck and (me being me) I asked her about it and we had the best conversation about MG. She was STILL upbeat after everything.........she also tried my neuro but did not like him. I was surprised to say the least. I LOVE the fact that dr I doesn;t sugar coat anything and is very cautious, but u did not work for her.......... As for the sites - I will be very cautious with them. I'd love to take a shower right now, but am waiting till 2morrow - just in case...... I hope this finds all of you stronger and happy! Love, Erin:grouphug: |
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